Lymphoproliferative disorder diagnosis following PET scan

[Kimlescam]

My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder.

Does anyone know anything about this?

[mp0130]

dear Kimlescam, Lymphoproliferative disorder is in your husband’s case an complication after transplant.. It is generally considered as quite serious complication..I hope, that you have got more specific answers from your medical specialists.. Wish you all best.

[Kimlescam in reply to mp0130]

Thank you - unfortunately they were wrong with the diagnosis. He had a biopsy which found he had seconadry liver cancer. They then found a large malignant tumour in his stomach. On September 4th they said it was terminal and he had a few months left. Sadly he didn't have that long and died peacefully on 23rd September 2024. We still had 7 years post transplant that we wouldn't have had.

[mp0130 in reply to Kimlescam]

I am so sorry… Life can be so unpredictable… I am glad, that you could have these 7 years together after transplant, it was a gift. Every day is a gift. Hope you are well.

[Kimlescam]

Yes thank it was a shock and very quick but you can't replace those 7 years which were a blessing. Take care x