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Only 288 hours until my second opinion assessment at the Royal Papworth for my lung transplant.
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Any suggestions for reducing creatinine/ urea
My daughter is 6 years old and 3 years post renal transplant. It has been very challenging with numerous bouts of UTI's and BK thrown into the mix. She currently takes tacrolimus (3.2 mg BD), sytron, bicarbonate, cefalexin and prednisolone (2.5mg every other day), alphacalcitol and darbepoetin. Her
My daughter is 6 years old and 3 years post renal transplant. It has been very challenging with numerous bouts of UTI's and BK thrown into the mix. She currently takes tacrolimus (3.2 mg BD), sytron, bicarbonate, cefalexin and prednisolone (2.5mg every other day), alphacalcitol and darbepoetin. Her
BlueistheColour1
in
Kidney Transplant
2 years ago
In the Rush to Return to ‘Normal,’ What Happens to the Vulnerable? By Sarah Wildman in NYT 04/10/22
“Covid-19 need no longer control our lives,” President Biden announced in the State of the Union address, speaking to a room of unmasked though back-room-tested members of Congress. He then offered, magnanimously: “If you’re immunocompromised or have some other vulnerability, we have treatments and free
“Covid-19 need no longer control our lives,” President Biden announced in the State of the Union address, speaking to a room of unmasked though back-room-tested members of Congress. He then offered, magnanimously: “If you’re immunocompromised or have some other vulnerability, we have treatments and free
Iupiter
in
CLL Support
2 years ago
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MIN-102 update: summer 2022
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
wilburlois15
in
AMN EASIER
2 years ago
Newby here seeking advice please.
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Mrbojangles
in
Lung Cancer Support
2 years ago
Liver transplant
Hi , I am waiting for a liver transplant, was wondering if there is anyone on here who has had one
Hi , I am waiting for a liver transplant, was wondering if there is anyone on here who has had one
Swansliver
in
British Liver Trust
2 years ago
Food plan for transplant woman weight 80
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
noor99
in
Kidney Transplant Patient Support
2 years ago
Supporting parents
Hi all, I'm new here and am seeking support on how to be of help to my parents in IL while I'm in IA, as my Dad (who is a kidney transplant recipient) skin cancer gets progressively worse, and my mom (who was Dad's donor) is in denial that she is depressed and is in need of help. In 2003 Mom donated
Hi all, I'm new here and am seeking support on how to be of help to my parents in IL while I'm in IA, as my Dad (who is a kidney transplant recipient) skin cancer gets progressively worse, and my mom (who was Dad's donor) is in denial that she is depressed and is in need of help. In 2003 Mom donated
SmilesMickey
in
Care Community
2 years ago
Should I do only kidney or pancreas as well?
I have been listed recently in august for kidney and
pancreas
transplant
. I am type 2 diabetic and not on dialysis yet. I was not aware if my
transplant
doctor would list me for
pancreas
. I am not sure if I should go for
pancreas
transplant
or keep only kidney. Having both increases risk?
I have been listed recently in august for kidney and
pancreas
transplant
. I am type 2 diabetic and not on dialysis yet. I was not aware if my
transplant
doctor would list me for
pancreas
. I am not sure if I should go for
pancreas
transplant
or keep only kidney. Having both increases risk?
Live_Positive
in
Kidney Transplant
3 years ago
Ascetes after transplant
Hi everyone. Has anyone had ascetes 4 years after a liver transplant?
Hi everyone. Has anyone had ascetes 4 years after a liver transplant?
Hidden
in
British Liver Trust
2 years ago
Thank you!
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Hidden
in
Lung Conditions Community Forum
2 years ago
Covid Risk from Travel after Transplant
Hello from New Zealand , I have had a very successful kidney transplant around 20 months ago , and doing very well , no other health issues other than the need for Immuno suppressants , my dilemma is Covid Risk as I am wanting to travel soon to my step daughters wedding in the UK this year , has anyone
Hello from New Zealand , I have had a very successful kidney transplant around 20 months ago , and doing very well , no other health issues other than the need for Immuno suppressants , my dilemma is Covid Risk as I am wanting to travel soon to my step daughters wedding in the UK this year , has anyone
Taconeo
in
Kidney Transplant
2 years ago
Meds
I had a successful kidney transplant on 2/11/21 however at that time I was also diagnosed with Parkinsonism and put on Carbidopa/Levodopa. I have struggled since then with agitation and jitters. Maybe on too many meds or the wrong ones. Is there anyone out there who has Parkinsonism and also on
I had a successful kidney transplant on 2/11/21 however at that time I was also diagnosed with Parkinsonism and put on Carbidopa/Levodopa. I have struggled since then with agitation and jitters. Maybe on too many meds or the wrong ones. Is there anyone out there who has Parkinsonism and also on
Mesabi
in
Kidney Transplant
2 years ago
I've been blessed
On 2/22/22, I received an anonymous live donor kidney transplant. I was totally blown away but so very grateful for this gift. I will be forever thankful and appreciative for this opportunity to give back and support others on their journey. My only regret is that I will not be able to personally thank
On 2/22/22, I received an anonymous live donor kidney transplant. I was totally blown away but so very grateful for this gift. I will be forever thankful and appreciative for this opportunity to give back and support others on their journey. My only regret is that I will not be able to personally thank
MartyVA
in
Kidney Transplant
2 years ago
Virtual Kidney Support Group
Kidneysolutions.org has a free virtual kidney transplant support group on Monday nights at 6:00 CDT. The group supports anyone who is looking for a living kidney donor or who has had s kidney transplant. Go to kidneysolutions.org to sign up. It is free no fees. It is moderated by Kent Bressler MA RN
Kidneysolutions.org has a free virtual kidney transplant support group on Monday nights at 6:00 CDT. The group supports anyone who is looking for a living kidney donor or who has had s kidney transplant. Go to kidneysolutions.org to sign up. It is free no fees. It is moderated by Kent Bressler MA RN
Kbressler
in
Kidney Transplant Patient Support
2 years ago
Please help. How do I get back to transplant with info on Medicare issues.
I was reading about kidney transplant and Medicare and it had a link so I clicked it. Now I can’t get back to those posts. Please help.
I was reading about kidney transplant and Medicare and it had a link so I clicked it. Now I can’t get back to those posts. Please help.
ESRDRLS
in
Kidney Transplant
2 years ago
Refusing Lung Transplant
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
hillclimber1
in
Lung Conditions Community Forum
2 years ago
Health/Travel Insurance after Liver Transplant
I am travelling to the USA soon and am so stressed about the cost of Health insurance for the 7 days that I will be there. Last quote I received was upwards of £2000. I am 3 years post liver transplant. Am I going to the wrong companies? Just want to feel reassured that if anything happens that I will
I am travelling to the USA soon and am so stressed about the cost of Health insurance for the 7 days that I will be there. Last quote I received was upwards of £2000. I am 3 years post liver transplant. Am I going to the wrong companies? Just want to feel reassured that if anything happens that I will
ThePug
in
British Liver Trust
2 years ago
Positive crossmatch ?
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
MAK88
in
Kidney Disease
2 years ago
Week 2 Buddy?
Anyone on Week 2? Looking for an online buddy or some chat with someone who is at the same point as me? I’m doing in part for health reasons as I’m waiting for a kidney transplant. Doing most of the actual runs with my partner, unfortunately he finds them very easy and is naturally fit!
Anyone on Week 2? Looking for an online buddy or some chat with someone who is at the same point as me? I’m doing in part for health reasons as I’m waiting for a kidney transplant. Doing most of the actual runs with my partner, unfortunately he finds them very easy and is naturally fit!
MerlinonMull
in
Couch to 5K
2 years ago
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