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The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
3 months ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
3 months ago
1st patient enrolled in global Phase 2 trial of daxdilimab for lupus
Study to test safety, efficacy of Horizon's lupus nephritis treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration. A Phase 2 trial evaluating the safety and efficacy of daxdilimab, a potentially first-in-class treatment for people with active
Study to test safety, efficacy of Horizon's lupus nephritis treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration. A Phase 2 trial evaluating the safety and efficacy of daxdilimab, a potentially first-in-class treatment for people with active
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
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biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
3 months ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
4 months ago
Transplant
Yes I had a liver transplant in October 2018 my liver decease which ended up stage 4 liver decease caused unfortunately by medication for another health issue, prior to my transplant I also had open heart heart surgery I was one of these fitness people who didn't know I had a severe heart condition
Yes I had a liver transplant in October 2018 my liver decease which ended up stage 4 liver decease caused unfortunately by medication for another health issue, prior to my transplant I also had open heart heart surgery I was one of these fitness people who didn't know I had a severe heart condition
Bellarman
in
British Liver Trust
1 year ago
Good sats - so why so breathless?
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
Timberman
in
Lung Conditions Community Forum
4 months ago
Celebrating International Clinical Trials Day.
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
Richard-Allen
in
British Liver Trust
1 year ago
6 month transplant anniversary!!! Whoo hoo
Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7
Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7
Jayhawker
in
Kidney Transplant
1 year ago
One year stem cell transplant anniversary
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
Scaredy_cat
in
MPN Voice
4 months ago
10 Year Anniversary
A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,
A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,
StormCl0ud
in
Kidney Dialysis
1 year ago
Need a rant
Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a liver transplant because the AF complicates things I'm really upset and scared I really don't know what to do. I've got to have
Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a liver transplant because the AF complicates things I'm really upset and scared I really don't know what to do. I've got to have
Corrie12
in
AF Association
1 year ago
have you had trouble getting approved for stem cell transplant?
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
Plasmapool
in
MPN Voice
5 months ago
after effects of kidney transplant
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
asahdev
in
Kidney Transplant
1 year ago
lung transplant
found this on my computer in box today you have probably seen it too but putting it on here hopefully
found this on my computer in box today you have probably seen it too but putting it on here hopefully
Jaybird19
in
Lung Conditions Community Forum
1 year ago
one month post op
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
Rubyrebe
in
British Liver Trust
1 year ago
Lipstickandcrayons
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Lipstickncrayons
in
Kidney Transplant
1 year ago
F4: cirrhosis
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
TrixieMami
in
Living with Fatty Liver and NASH
1 year ago
kidney transplant recipient.
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
ru7318
in
Kidney Transplant
1 year ago
Transplant and BKV Realities
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
Hidden
in
Kidney Transplant
1 year ago
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