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Pain pkd
I has my pd catheter put in last Friday. I have not had much pain around the area. But m back pain is really bad. I always get back pain with my polycystic kidney and I used to take a hot soak to ease the pain, of corse can’t do that anymore. I miss my hot bath😱 I have only had to take one pain pill
I has my pd catheter put in last Friday. I have not had much pain around the area. But m back pain is really bad. I always get back pain with my polycystic kidney and I used to take a hot soak to ease the pain, of corse can’t do that anymore. I miss my hot bath😱 I have only had to take one pain pill
Beachgirl32
in
Kidney Dialysis
1 year ago
nerve damage after open heart surgery
Hi there have been suffering what specialist says is nerve damage after my open heart surgery 3years ago. It comes and goes a bit but very sharp pain and usually catches me unaware. Anyone else experience this and any remedies apart from pain killers x
Hi there have been suffering what specialist says is nerve damage after my open heart surgery 3years ago. It comes and goes a bit but very sharp pain and usually catches me unaware. Anyone else experience this and any remedies apart from pain killers x
Sheilad3
in
British Heart Foundation
1 year ago
Short synathecen test
Hi i have m.e cfs used to be severe was in wheelchair and bedridden now able to walk doctor wants to synathecyn test because i have symptoms of congenital adrenal hyperplasia im scared of a relapse in the m.e and was wondering if there alternative blood test anyone with cfs have this test and what was
Hi i have m.e cfs used to be severe was in wheelchair and bedridden now able to walk doctor wants to synathecyn test because i have symptoms of congenital adrenal hyperplasia im scared of a relapse in the m.e and was wondering if there alternative blood test anyone with cfs have this test and what was
Ester467
in
Thyroid UK
1 year ago
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Collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
hunkyd0ry
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Doctor makes it seem like I want to have surgery and not like I actually need it
After struggling with severe constant daily pain for a year and a half, a gynaecologist has decided to put me on a waiting list for surgery. I didn't go see him requesting to be put on a list, but he thought it'd be a good idea because hormonal treatment hasn't worked, and painkillers don't help. However
After struggling with severe constant daily pain for a year and a half, a gynaecologist has decided to put me on a waiting list for surgery. I didn't go see him requesting to be put on a list, but he thought it'd be a good idea because hormonal treatment hasn't worked, and painkillers don't help. However
JustPain2
in
Endometriosis UK
1 year ago
Rib pain
I have suffered with rib pain & pain top of my stomach since menopause 5 years ago. I have been to my gp but still no wiser as to what is causing the discomfort. I have tried heat pads & pain killers but neither helps. It’s affecting my mood lately & feel really fed up. Does anyone else have the same
I have suffered with rib pain & pain top of my stomach since menopause 5 years ago. I have been to my gp but still no wiser as to what is causing the discomfort. I have tried heat pads & pain killers but neither helps. It’s affecting my mood lately & feel really fed up. Does anyone else have the same
Gilly61
in
Pain Concern
1 year ago
Swelling & severe pain in toe
Hi, Does anyone else suffer with swelling and excruciating pain in their toe(s) during a elongated flare up? I currently have severe swelling, redness and pain in my second toe - to the point where socks are hurting it - and lets be honest, no socks is not a possible answer in this weather... Walking
Hi, Does anyone else suffer with swelling and excruciating pain in their toe(s) during a elongated flare up? I currently have severe swelling, redness and pain in my second toe - to the point where socks are hurting it - and lets be honest, no socks is not a possible answer in this weather... Walking
Bec-Ray9
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Itching with RLS
I am now on 1500mg of Gabapentin but not seeing much relief. At my next MD appointment I will be asking for an iron infusion as my iron levels are just barely at 100. The biggest problem I still have is the itching that I get all over my body with it most active towards evening. Analgesic creams have
I am now on 1500mg of Gabapentin but not seeing much relief. At my next MD appointment I will be asking for an iron infusion as my iron levels are just barely at 100. The biggest problem I still have is the itching that I get all over my body with it most active towards evening. Analgesic creams have
jinolke
in
Restless Legs Syndrome
1 year ago
WARNING: If you have FND and live in UK
Hi, If you live in UK and have FND you may wish to check your online medical record has not been incorrectly updated. I have had FND for over 12 years following a virus. When I was diagnosed 10 years ago, my consultant neurologist wrote a clear diagnosis letter, stating that I have a physical illness
Hi, If you live in UK and have FND you may wish to check your online medical record has not been incorrectly updated. I have had FND for over 12 years following a virus. When I was diagnosed 10 years ago, my consultant neurologist wrote a clear diagnosis letter, stating that I have a physical illness
sykgirl
in
Functional Neurological Disorder - FND Hope
1 year ago
Sudden severe back pain
I am seeing a neuro physio. I have explained that I am experiencing an increase in body pain over last eighteen months. She has given me exercises. On Thursday, I experienced sudden severe back pain, so severe that I couldn't walk. I was crying out when I moved. I have no recollection of injuring myself
I am seeing a neuro physio. I have explained that I am experiencing an increase in body pain over last eighteen months. She has given me exercises. On Thursday, I experienced sudden severe back pain, so severe that I couldn't walk. I was crying out when I moved. I have no recollection of injuring myself
deborah27
in
Headway
1 year ago
Kindly suggest me what it is!!
Hi everyone, i have a question which is more like a concern. This is my recent OCT scan on 06/03/2023, as I'm diagnosed macular edema. And taken avastin injection in my eye. The central thickness was 219 (green part) and it remain same 219 after the inj, but the other swelling was reduced. Now my concern
Hi everyone, i have a question which is more like a concern. This is my recent OCT scan on 06/03/2023, as I'm diagnosed macular edema. And taken avastin injection in my eye. The central thickness was 219 (green part) and it remain same 219 after the inj, but the other swelling was reduced. Now my concern
iAdnanShah
in
Macular Society
1 year ago
Wind-eze problems
Hi all Hope you all had a good pain and sprout free Christmas Reading some feeds today I see there is a problem with Wind-eze supply, a couple of weeks ago a GP recommended an over the counter/ shop floor product called COLPERMIN IBS RELIEF it’s basically Peppermint oil capsules, I’ve tried it a couple
Hi all Hope you all had a good pain and sprout free Christmas Reading some feeds today I see there is a problem with Wind-eze supply, a couple of weeks ago a GP recommended an over the counter/ shop floor product called COLPERMIN IBS RELIEF it’s basically Peppermint oil capsules, I’ve tried it a couple
Jaluga
in
IBS Network
1 year ago
filled with sadness and frustration
Taking a medication called roaccutane 20years ago has ruined my life. It has damaged my brain and i’ve been living with these awful side effects all through my 20s and 30s. I’m utterly fed up with chronic head pains, scorched sensations, cognitive problems, brain numbness/deadness, ringing in my head
Taking a medication called roaccutane 20years ago has ruined my life. It has damaged my brain and i’ve been living with these awful side effects all through my 20s and 30s. I’m utterly fed up with chronic head pains, scorched sensations, cognitive problems, brain numbness/deadness, ringing in my head
Dann2
in
Headway
1 year ago
I’m scared of treatment
Venetoclax and Obinutuzumab My Haematologist has suggested that I may need to start treatment with these drugs and Calquence. I’ve been on Watch & Wait since diagnosed in 2014 when WBC count was just above normal range. Now it’s about six times higher than normal range and my red cell count has gone
Venetoclax and Obinutuzumab My Haematologist has suggested that I may need to start treatment with these drugs and Calquence. I’ve been on Watch & Wait since diagnosed in 2014 when WBC count was just above normal range. Now it’s about six times higher than normal range and my red cell count has gone
tigerbeauty
in
CLL Support
1 year ago
B96 Trial and will I get there?
hello everyone I was diagnosed 3C HGSOC in Nov 2021. After 6 rounds Carbo:taxol and debulking surgery I was NED in June 2022. By end Oct I had recurred only 4 months later, Niraparib not doing its job. I’m platinum resistant, BRCA neg. HRD =30 I was advised to wait to get onto a treatment plan and
hello everyone I was diagnosed 3C HGSOC in Nov 2021. After 6 rounds Carbo:taxol and debulking surgery I was NED in June 2022. By end Oct I had recurred only 4 months later, Niraparib not doing its job. I’m platinum resistant, BRCA neg. HRD =30 I was advised to wait to get onto a treatment plan and
Narna1
in
My Ovacome
1 year ago
cataract op for glaucoma
hi. Has anyone had a cataract operation to reduce eye pressure and did it work? I have not been able to use any eye drops for over a year as developed allergy to all. Laser only reduced pressure slightly. Was told optic nerve had deteriorated slightly over 5 years. As I am 75 I thought it would be ok
hi. Has anyone had a cataract operation to reduce eye pressure and did it work? I have not been able to use any eye drops for over a year as developed allergy to all. Laser only reduced pressure slightly. Was told optic nerve had deteriorated slightly over 5 years. As I am 75 I thought it would be ok
Islandhome
in
Glaucoma UK
1 year ago
Hashimotos double vision
Hello everyone. Just wondering if anyone else here has experienced double vision with Hashimoto's ? I have been feeling tired, heavy, low mood, brain fog, memory problems etc. I went to my optician for a routine check up 3 weeks ago and the letters on the chart were swimming around in a way I'd never
Hello everyone. Just wondering if anyone else here has experienced double vision with Hashimoto's ? I have been feeling tired, heavy, low mood, brain fog, memory problems etc. I went to my optician for a routine check up 3 weeks ago and the letters on the chart were swimming around in a way I'd never
Girtonian
in
Thyroid UK
1 year ago
Pegasys - to start or not
It has been now 3 years with ET diagnosis. Lot of reading about MPN’s behind me, especially through this network of wonderful people. I am now seriously considering starting Pegasys and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of
It has been now 3 years with ET diagnosis. Lot of reading about MPN’s behind me, especially through this network of wonderful people. I am now seriously considering starting Pegasys and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of
Bigcheat
in
MPN Voice
1 year ago
HIP REPLACEMENT SURGERY
Hello, Am booked for a hip replacement operation on 1st February. I had 2 knee replacement operations in 2017 and 2018. Although a hip replacement is supposed to be somewhat less painful and easier to recover from, I am dreading it for the simple reasons I have severe rheumatoid arthritis - so stopping
Hello, Am booked for a hip replacement operation on 1st February. I had 2 knee replacement operations in 2017 and 2018. Although a hip replacement is supposed to be somewhat less painful and easier to recover from, I am dreading it for the simple reasons I have severe rheumatoid arthritis - so stopping
JGBH
in
NRAS
1 year ago
Neck & Head Pain - MSA-C
Hi everyone. My Sister has MSA-C and her illness has progressed rapidly over the past few weeks and months. She is experiencing severe neck pain and headaches. Her neurological doctor has given her botox in her neck which has helped slightly but her headache does not seem to go away. I was wondering
Hi everyone. My Sister has MSA-C and her illness has progressed rapidly over the past few weeks and months. She is experiencing severe neck pain and headaches. Her neurological doctor has given her botox in her neck which has helped slightly but her headache does not seem to go away. I was wondering
HOL69
in
Multiple System Atrophy Trust
1 year ago
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