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advice from all you angels
I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the waking headache continues as it approaches its 4 year birthday 🤦♀️. I Saw a trainee Gp last week who was kind and lovely . She referred me to neurology which I’ve since discovered is a 10 month wait The headaches are
I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the waking headache continues as it approaches its 4 year birthday 🤦♀️. I Saw a trainee Gp last week who was kind and lovely . She referred me to neurology which I’ve since discovered is a 10 month wait The headaches are
Tiggywoos
in
LUPUS UK
1 year ago
cateract surgery
Hello: I’m a little worried about having cateract surgery as I like most have tremor or dyskinesia. The doctor asked could I be still. Funny. Anyone experience this? Any thoughts? Thanks.
Hello: I’m a little worried about having cateract surgery as I like most have tremor or dyskinesia. The doctor asked could I be still. Funny. Anyone experience this? Any thoughts? Thanks.
Ep0522
in
Cure Parkinson's
9 months ago
cool packs
I thought I’d share the fact that I have found great relief from the pain in my head from GCA using gel cool packs. This has helped me from having to use as many pain killers. Give it a try, it’s been a blessed relief and feels wonderful. Thanks
I thought I’d share the fact that I have found great relief from the pain in my head from GCA using gel cool packs. This has helped me from having to use as many pain killers. Give it a try, it’s been a blessed relief and feels wonderful. Thanks
Garden__lover
in
PMRGCAuk
1 year ago
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Pain in left knee and right forearm
I'm getting quite bad pain in left knee and right forearm ordinary pain killers don't touch it it's very hard to get a face to face with a doc over here on the Isle of Wight. I haven't had one since last October all it seems to be is phone calls and even then I have to wait up to a fortnight! What pain
I'm getting quite bad pain in left knee and right forearm ordinary pain killers don't touch it it's very hard to get a face to face with a doc over here on the Isle of Wight. I haven't had one since last October all it seems to be is phone calls and even then I have to wait up to a fortnight! What pain
Caulkhead63
in
PMRGCAuk
1 year ago
Who has had cataract surgery with a bleb?
So as is the way with this condition, you cruise for a while then your eyes decide they do not wish to play ball! So basically I’ve been noticing a decrease in clarity with my right eye. The Glaucoma clinic doesn’t think I’m an urgent case so I’m waiting till November where I will see a nurse 😒.
So as is the way with this condition, you cruise for a while then your eyes decide they do not wish to play ball! So basically I’ve been noticing a decrease in clarity with my right eye. The Glaucoma clinic doesn’t think I’m an urgent case so I’m waiting till November where I will see a nurse 😒.
Vich81
in
Glaucoma UK
9 months ago
FIbromyalgia
Just need some info on fibromyalgia - husband has suffered with back pain for as long as I can remember also sporadic pain in his right arm/elbow, also has problem with hips knees and neck - various MRI scan's confirm bulging discs in back, left knee bone on bone, right knee not far behind, both hips
Just need some info on fibromyalgia - husband has suffered with back pain for as long as I can remember also sporadic pain in his right arm/elbow, also has problem with hips knees and neck - various MRI scan's confirm bulging discs in back, left knee bone on bone, right knee not far behind, both hips
Jackndanny
in
Fibromyalgia Action UK
1 year ago
Being taking off Pegasys. :( Looking for alternatives
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
JustKeepSw1mming
in
MPN Voice
9 months ago
a little drama
I have just reduced to 5mg. And like many others my energy is crashing. So a bit of a roller coaster and trying to plan things so that I don’t have too much excitement all at once! Wednesday my husband was diagnosed with detached retina, yesterday was an hour and a half trip to eye hospital for his
I have just reduced to 5mg. And like many others my energy is crashing. So a bit of a roller coaster and trying to plan things so that I don’t have too much excitement all at once! Wednesday my husband was diagnosed with detached retina, yesterday was an hour and a half trip to eye hospital for his
Alazarin
in
PMRGCAuk
9 months ago
Can anyone explain about soy please
Can someone please explain if it is fermented or unfermented soy that is ok to eat if you have an underactive thyroid. I have to make adjustments to what I eat and have been looking at tofu and tempeh but am not sure if they are ok to eat. Apologies I am a bit forgetful at the moment after long surgery
Can someone please explain if it is fermented or unfermented soy that is ok to eat if you have an underactive thyroid. I have to make adjustments to what I eat and have been looking at tofu and tempeh but am not sure if they are ok to eat. Apologies I am a bit forgetful at the moment after long surgery
carnation
in
Thyroid UK
1 year ago
So much pelvic pain, any advice?
Hi All, I've been having pelvic pain on and off for many years, but lived fine with it before. However, in the last 5 months, it's gotten worst and in the last few weeks, it's gotten even worst again. I've already done: * All types of gynae assessments from a scan, to PAP and other tests, to
Hi All, I've been having pelvic pain on and off for many years, but lived fine with it before. However, in the last 5 months, it's gotten worst and in the last few weeks, it's gotten even worst again. I've already done: * All types of gynae assessments from a scan, to PAP and other tests, to
Juliet_22
in
Pelvic Pain Support Network
1 year ago
What a year so far
Well as title stated "what a year so far"Had my right cataract done in January, (meds stopped in December) day after my Birthday, so far so good. Went for left to be done on 31st March, cancelled as kit wasn't all there, great so had an idea it wouldn't be done before our Benidorm holiday, I coped. I
Well as title stated "what a year so far"Had my right cataract done in January, (meds stopped in December) day after my Birthday, so far so good. Went for left to be done on 31st March, cancelled as kit wasn't all there, great so had an idea it wouldn't be done before our Benidorm holiday, I coped. I
Ginger46
in
NRAS
1 year ago
This is a long one
Since my heart attack (February 2019) I have been in a state of flux. I’m up, I’m down, I’m in pain, I’m miserable, I’m very happy, I’m shattered. I caught the dreaded illness were not allowed to discuss twice and was very ill both times. I’ve lost a number of friends and relatives; attending quite a
Since my heart attack (February 2019) I have been in a state of flux. I’m up, I’m down, I’m in pain, I’m miserable, I’m very happy, I’m shattered. I caught the dreaded illness were not allowed to discuss twice and was very ill both times. I’ve lost a number of friends and relatives; attending quite a
Maisie2014
in
British Heart Foundation
1 year ago
movies1578
hi just sum advice was on 15mg steroids iam now down to 1mg pain in muscle first thing in morning as day goes on get better is there any pain medication I can take to help with pain or is it going to be like this all time
hi just sum advice was on 15mg steroids iam now down to 1mg pain in muscle first thing in morning as day goes on get better is there any pain medication I can take to help with pain or is it going to be like this all time
Movies5178
in
PMRGCAuk
1 year ago
Glaucoma along with advanced AMD (GA stage)
Hi all, I am new to this forum and would like an opinion from the experts here. My father has glaucoma in both eyes and unfortunately, by the time it was diagnosed, his vision in right eyes was 30% remaining only. This was almost 12 yrs back. His left eye was the savior for us so many years till 2018
Hi all, I am new to this forum and would like an opinion from the experts here. My father has glaucoma in both eyes and unfortunately, by the time it was diagnosed, his vision in right eyes was 30% remaining only. This was almost 12 yrs back. His left eye was the savior for us so many years till 2018
VikPa
in
Macular Society
9 months ago
immune system
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
lindyloulou
in
MPN Voice
9 months ago
Surgery day
OMG, after what seems a long wait my vitrectomy is scheduled for tomorrow. I have to be in hospital at 12:15 !!!!! I’m excited and anxious all at the same time. Relieved that the macular hole is going to be repaired. Not looking forward to posturing though Any advice or tips on how to survive the
OMG, after what seems a long wait my vitrectomy is scheduled for tomorrow. I have to be in hospital at 12:15 !!!!! I’m excited and anxious all at the same time. Relieved that the macular hole is going to be repaired. Not looking forward to posturing though Any advice or tips on how to survive the
Gulfstream_Maggie
in
Macular Society
9 months ago
Cauda Equina
This is some background. I was recently diagnosed with enlarged prostate. My general health is not good as I had a Triple Bypass and Mitral Valve Repair and also, last year was diagnosed with Heart Failure. I’ve also got Severe Spinal Stenosis which has returned following a Failed Laminectomy Spine
This is some background. I was recently diagnosed with enlarged prostate. My general health is not good as I had a Triple Bypass and Mitral Valve Repair and also, last year was diagnosed with Heart Failure. I’ve also got Severe Spinal Stenosis which has returned following a Failed Laminectomy Spine
Davewm
in
Pain Concern
1 year ago
Cloudy Vision after IVOM / Injection
Good day, On Friday, I had my 3rd Vabysmo injection in both my left and right eyes. I'm 28 years old and have been a diabetic for 23 years. My prescription for both eyes is -0.75. During my last appointment four weeks ago, my left eye had 100% vision, while my right eye had 90%. After the procedure
Good day, On Friday, I had my 3rd Vabysmo injection in both my left and right eyes. I'm 28 years old and have been a diabetic for 23 years. My prescription for both eyes is -0.75. During my last appointment four weeks ago, my left eye had 100% vision, while my right eye had 90%. After the procedure
eddys95
in
Macular Society
9 months ago
Very sore shin (bone not joint)
Hi everyone, I am on holiday abroad at the moment so not in contact with any healthcare provider. I am wondering if anyone could advise me on pain I am suffering. Just before I left for holiday I suffered an agonising night of no sleep with a very sore shin. Right on the bone, not near a joint. I blamed
Hi everyone, I am on holiday abroad at the moment so not in contact with any healthcare provider. I am wondering if anyone could advise me on pain I am suffering. Just before I left for holiday I suffered an agonising night of no sleep with a very sore shin. Right on the bone, not near a joint. I blamed
Sunshinereturns
in
NRAS
1 year ago
4 months post TT
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
Rfranzoni
in
Thyroid UK
7 months ago
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