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Neck Rigidity relief??
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
HipsterChick
in
PSP Association
3 years ago
Life after Ropinirole.
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Birdland
in
Restless Legs Syndrome
3 years ago
Fractured vertebrae
Hi all having a bit of a tough time! I fractured my vertebrae no really sure how! But that was 2 months ago. The pain has got worse all around lung area. Iv had X-rays to confirm. I not sure if pmr pain or vertebrae. Painkillers not touching it. Oxycodone and paracetamol. Anyone got any advice please
Hi all having a bit of a tough time! I fractured my vertebrae no really sure how! But that was 2 months ago. The pain has got worse all around lung area. Iv had X-rays to confirm. I not sure if pmr pain or vertebrae. Painkillers not touching it. Oxycodone and paracetamol. Anyone got any advice please
Uglow
in
PMRGCAuk
3 years ago
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My sister has been diagnosed with ovarian cancer. I'm new here so would appreciate any information given.
My younger sister was diagnosed with ovarian cancer at the begining of March this year. What an absolute shock that was. Obviously devastated. I have joined this forum to try to understand the treatments and just what she is going through. She was diagnosed with stage 3c, and I have to say they were
My younger sister was diagnosed with ovarian cancer at the begining of March this year. What an absolute shock that was. Obviously devastated. I have joined this forum to try to understand the treatments and just what she is going through. She was diagnosed with stage 3c, and I have to say they were
nettiebobs
in
My Ovacome
3 years ago
Oxycodone
Oxycodone is not working so well and have trouble getting to sleep and staying asleep so have increased dosage by 5ml
Oxycodone is not working so well and have trouble getting to sleep and staying asleep so have increased dosage by 5ml
Hidden
in
Restless Legs Syndrome
3 years ago
CBD oil/Grapefruit effect
Hello all, just wanted to draw attention to something that could be quite important. I have been using cbd oil recently with a little success on my rls symptoms but going through augmentation so it's really not powerful enough to cut the mustard. Doc prescribed me 5mg oxycodone to take twice a day which
Hello all, just wanted to draw attention to something that could be quite important. I have been using cbd oil recently with a little success on my rls symptoms but going through augmentation so it's really not powerful enough to cut the mustard. Doc prescribed me 5mg oxycodone to take twice a day which
Nettles68
in
Restless Legs Syndrome
3 years ago
transdermal fentanyl vs methadone
I've been MIA because of duress. I wrote about a week ago and want to thank everyone for their responses. I'm on overload and in an altered state since we are trying to once again customize my husband's pain management treatment. He's been on oxycontin and oxycodone along with gabapentin. We are in
I've been MIA because of duress. I wrote about a week ago and want to thank everyone for their responses. I'm on overload and in an altered state since we are trying to once again customize my husband's pain management treatment. He's been on oxycontin and oxycodone along with gabapentin. We are in
Bluebird11
in
Advanced Prostate Cancer
3 years ago
Hysterectomy in Dec 20 bowel issues and right side pain since just a loss what to do next
I had a hysterectomy full one in December 2020 confirming adenmyosis. Two weeks after surgery severe right hand side pain occurred and after an X-ray and ct bowels confirmed as impacted. Lots of hospital stays and distended bowel. Colonoscopy done 20 biopsies all clear and some inflammation in top and
I had a hysterectomy full one in December 2020 confirming adenmyosis. Two weeks after surgery severe right hand side pain occurred and after an X-ray and ct bowels confirmed as impacted. Lots of hospital stays and distended bowel. Colonoscopy done 20 biopsies all clear and some inflammation in top and
Rainbowblues
in
Pelvic Pain Support Network
3 years ago
Methadone used for PCa bone met pain...
We've been struggling with gone pain. There isn't more that can be done. We've had some scans that show a lot of progression. We are 14 years into Stage iv.. something we are grateful for, THOUGH, this is really tough.. Methadone is being recommended. I am looking for information about how active
We've been struggling with gone pain. There isn't more that can be done. We've had some scans that show a lot of progression. We are 14 years into Stage iv.. something we are grateful for, THOUGH, this is really tough.. Methadone is being recommended. I am looking for information about how active
Bluebird11
in
Advanced Prostate Cancer
3 years ago
opioid replacement
My mom has MS and been dealing with severe leg pain for about 20 years. She was prescribed Oxycodone in the early 2000's and her dosage gradually increased since then. Now she is at a point where the Doctor doesnt want to increase the dosage saying it could be dangerous. She asked me to find some on
My mom has MS and been dealing with severe leg pain for about 20 years. She was prescribed Oxycodone in the early 2000's and her dosage gradually increased since then. Now she is at a point where the Doctor doesnt want to increase the dosage saying it could be dangerous. She asked me to find some on
Symbiose
in
My MSAA Community
3 years ago
RLS after hip surgery
I have been on this site for a long time. I recently had hip replacement surgery and have had a severe increase in my RLS. The opiates that I take (methadone 10mg po every 8 hours and up to 20mg oxycodone po per day for breakthrough RLS) used to work wonderfully, but since I have this hip replacement
I have been on this site for a long time. I recently had hip replacement surgery and have had a severe increase in my RLS. The opiates that I take (methadone 10mg po every 8 hours and up to 20mg oxycodone po per day for breakthrough RLS) used to work wonderfully, but since I have this hip replacement
Hidden
in
Restless Legs Syndrome
3 years ago
Can buprenophine help with rls
So, because i am an addict the oxycodone was unsuccessful, I took all the 2 weeks pills in about 4 days then bought street morphine sulphate (susbitol) to get through the rest of the 10 days, well it didn't take long to build up an 800mg a day habit, I took one 200mg tablet over the last 19 hrs I am
So, because i am an addict the oxycodone was unsuccessful, I took all the 2 weeks pills in about 4 days then bought street morphine sulphate (susbitol) to get through the rest of the 10 days, well it didn't take long to build up an 800mg a day habit, I took one 200mg tablet over the last 19 hrs I am
velosolex
in
Restless Legs Syndrome
3 years ago
Temgesic success
After 20 years of nightly hell, my painful, super-destructive RLS has been relieved by Temgesic/Buphrenporphine. I posted a few months ago how my GP (physician) was willing but my neurologist refused to authorise. I contacted a private neurologist, who agreed to prescribe ... and the drug worked! Wow
After 20 years of nightly hell, my painful, super-destructive RLS has been relieved by Temgesic/Buphrenporphine. I posted a few months ago how my GP (physician) was willing but my neurologist refused to authorise. I contacted a private neurologist, who agreed to prescribe ... and the drug worked! Wow
rkatt
in
Restless Legs Syndrome
3 years ago
Does it really get better after Pramipexole?
Hello Everyone. My husband experiences RLS, since he was 13. For many years he was untreated, but around the time of university it got bad -- so he went to a neurologist and was put on DA's. For the first couple years, he was on something he can't remember, but then got switched to Pramipexole. He estimates
Hello Everyone. My husband experiences RLS, since he was 13. For many years he was untreated, but around the time of university it got bad -- so he went to a neurologist and was put on DA's. For the first couple years, he was on something he can't remember, but then got switched to Pramipexole. He estimates
Ananda00
in
Restless Legs Syndrome
3 years ago
Lu 177 update 1 month post infusion number 1
It has been over a month now since my wife and I traveled to England to get a dose of Lu 177. I thought I would give an update on what it did for me. That intense bone metastasis pain completely disappeared after about 2 weeks. It was rough going and I needed 24/7 opiates to get any relief. I weened
It has been over a month now since my wife and I traveled to England to get a dose of Lu 177. I thought I would give an update on what it did for me. That intense bone metastasis pain completely disappeared after about 2 weeks. It was rough going and I needed 24/7 opiates to get any relief. I weened
Cleodman
in
Advanced Prostate Cancer
3 years ago
Targinact not working
I have severe RLS and I was prescribed targinact 10mg prolonged release tablets,
oxycodone
hydrochloride/
naloxone
hydrochloride by my neuro constant after a long battle. I have been on targinact for a couple of days and, em, it's not actually working.
I have severe RLS and I was prescribed targinact 10mg prolonged release tablets,
oxycodone
hydrochloride/
naloxone
hydrochloride by my neuro constant after a long battle. I have been on targinact for a couple of days and, em, it's not actually working.
RLSBecca
in
Restless Legs Syndrome
4 years ago
How long does it take for Zoladex to stop working?
I have stage 4 endo and had a 12cm endometrioma removed from my left ovary and my ovary sewn back together in November. I also had my right Fallopian tube removed at the same time. My consultant couldn’t remove my right ovary as it’s stuck to my bowel by adhesions, which I’m told are extensive and in
I have stage 4 endo and had a 12cm endometrioma removed from my left ovary and my ovary sewn back together in November. I also had my right Fallopian tube removed at the same time. My consultant couldn’t remove my right ovary as it’s stuck to my bowel by adhesions, which I’m told are extensive and in
Drivinganywhere
in
Endometriosis UK
3 years ago
Good meds for bone pain w. metastatic PCa.
Need pain med advice. GP Doc finally put me on Percocet -- which is way too weak to do much good. Have bone mets for almost 2 years from femurs to neck, and sometimes excruciating pain. Starting Hospice soon as my MO discharged me. (Have Braca 2 gene, and last med -- Lynparza -- lost its effectiveness
Need pain med advice. GP Doc finally put me on Percocet -- which is way too weak to do much good. Have bone mets for almost 2 years from femurs to neck, and sometimes excruciating pain. Starting Hospice soon as my MO discharged me. (Have Braca 2 gene, and last med -- Lynparza -- lost its effectiveness
bloodyveinpoke
in
Advanced Prostate Cancer
3 years ago
End of my tether with RLS
Hi all! Here I am again, needing support and advice! I have such a long RLS history that it's difficult to put this in a nutshell, but this is my present situation: since moving house last year I had to change my GP which was unfortunate, as I had been lucky enough to have a GP who was both knowledgeable
Hi all! Here I am again, needing support and advice! I have such a long RLS history that it's difficult to put this in a nutshell, but this is my present situation: since moving house last year I had to change my GP which was unfortunate, as I had been lucky enough to have a GP who was both knowledgeable
Sheelaghj
in
Restless Legs Syndrome
3 years ago
RLS TREATMENT: Every day I read questions and answers on this forum and I would like to share with you some of my concerns
about the replies given to the many RLS sufferers who are struggling with their medication. All medications, if you read the leaflets, have side-effects and complications and at the end of the day, we have to weigh up which ones are going to be effective for each of us individually. 1.Dopamine Agonists
about the replies given to the many RLS sufferers who are struggling with their medication. All medications, if you read the leaflets, have side-effects and complications and at the end of the day, we have to weigh up which ones are going to be effective for each of us individually. 1.Dopamine Agonists
Felicity21
in
Restless Legs Syndrome
3 years ago
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