After 20 years of nightly hell, my painful, super-destructive RLS has been relieved by Temgesic/Buphrenporphine.
I posted a few months ago how my GP (physician) was willing but my neurologist refused to authorise. I contacted a private neurologist, who agreed to prescribe ... and the drug worked! Wow. I'd given up by this time because everything had failed – gabas, Pramipexole, Oxycodone. I was a traumatised, terrorised. Even Tramadol, cannabis, whisky and Kratom had lost whatever effectiveness they'd had.
A routine appointment with my NHS neurologist came up last month and this time, hearing about my success, he said it was a no-brainer to authorise my GP to go with Temgesic. He revealed that the pharmacy at his hospital is totally resistant to prescribing this drug – that was the basis of his refusal. Now he'll try it on his patients and try to pressure the pharmacy to change tune, he said.
No way was this the end of the story. The medical authority in my borough of London refused to allow my GP to prescribe even with the neurologist's say-so. They wanted to get in on the torture, to have their go at kicking my head, and who can blame them as it must be terrible to be a frustrated sadist. My GP wasn't having it, however. She'd taken in everything I and my wife and told her about my condition. In the end they told her it was okay, as long as I pick up the drug from the chemist every week, not every month. So, she's a total medical hero (also a ray of sunshine).
Last night I slept 8 hours straight, recorded as 90% on my sleep app. Salvation.