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Travelling with interferon/pegasys
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Sunnyhunny
in
MPN Voice
5 months ago
Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
5 months ago
EXCESSIVE WATERING EYES
I have had normal tension glaucoma for about 12 years, I’ve had a variety of eye drops for 10 years and a Deep Scleretomy operation on my right eye 18 months ago which now needs a Bleb adjustment. For the last few years I have had a real problem with watering eyes which has gone worse in my right eye
I have had normal tension glaucoma for about 12 years, I’ve had a variety of eye drops for 10 years and a Deep Scleretomy operation on my right eye 18 months ago which now needs a Bleb adjustment. For the last few years I have had a real problem with watering eyes which has gone worse in my right eye
Ella59
in
Glaucoma UK
5 months ago
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IOP question
Last month,after a allergic conjuctivitis treatment which includes steroids drop,I measured my intraocular pressure,it's 16 in both eyes.Today,I measured it again and it's 18mmHg.My eye pressure was measured at 10am, why is there a difference?
Last month,after a allergic conjuctivitis treatment which includes steroids drop,I measured my intraocular pressure,it's 16 in both eyes.Today,I measured it again and it's 18mmHg.My eye pressure was measured at 10am, why is there a difference?
Our-poor-guys
in
Glaucoma UK
5 months ago
How accurate is a visual field test?
Hello I am new to this site but have been a member of Health Unlocked for some time. I have had glaucoma in both eyes for approximately 11 years and was well controlled until about 3.5 years ago when I developed uveitis in my left eye (my worse eye for glaucoma). It was treated as an acute emergency
Hello I am new to this site but have been a member of Health Unlocked for some time. I have had glaucoma in both eyes for approximately 11 years and was well controlled until about 3.5 years ago when I developed uveitis in my left eye (my worse eye for glaucoma). It was treated as an acute emergency
Mitziecat
in
Glaucoma UK
5 months ago
Edoxaban and dreams and nightmares
Hi all, Hope you all have a great Easter ... plenty of chocolate and bunnies ..... or even warm, sunny, dry weather ! Have any of you who take Edoxaban experienced the worst most sleep destroying nightmares of a violent topic ? Or even any nondescript dreams or nightmares. I did put a post on here
Hi all, Hope you all have a great Easter ... plenty of chocolate and bunnies ..... or even warm, sunny, dry weather ! Have any of you who take Edoxaban experienced the worst most sleep destroying nightmares of a violent topic ? Or even any nondescript dreams or nightmares. I did put a post on here
BenHall1
in
Atrial Fibrillation Support
5 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
5 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
5 months ago
Webinar: Is it possible to slow myopia progression in childhood and adolescence?
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Carol_MacularSociety
Partner
in
Macular Society
5 months ago
Still no photo
Short episode for tonight. Mum's life has not always followed a smooth course and she has never been one to complain. It was only after several months of poor vision that she finally went to the optician only to discover too late that she had a badly detached retina. She was quickly admitted to hospital
Short episode for tonight. Mum's life has not always followed a smooth course and she has never been one to complain. It was only after several months of poor vision that she finally went to the optician only to discover too late that she had a badly detached retina. She was quickly admitted to hospital
LissacFrance
in
Lung Conditions Community Forum
5 months ago
How long to wait for trabeculectomy?
I'm wondering how long people have waited for a trabeculectomy operation, once they have been told they need one, either through NHS or going private? I'm asking because when I saw my consultant ( privately) in Feb he said that the visual fields test showed there was some deterioration ( normal tension
I'm wondering how long people have waited for a trabeculectomy operation, once they have been told they need one, either through NHS or going private? I'm asking because when I saw my consultant ( privately) in Feb he said that the visual fields test showed there was some deterioration ( normal tension
Iona57
in
Glaucoma UK
5 months ago
Biologic and methotrexate injections
hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does anyone know what time gap there should be between the two injections? Thank you x
hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does anyone know what time gap there should be between the two injections? Thank you x
Amb1xkr
in
NRAS
5 months ago
Urgent Synarel - help!
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
MollyHar
in
Fertility Network UK
5 months ago
Unsure how to proceed after flare continues
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
Donna5658
in
PMRGCAuk
5 months ago
help with results please
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
Bollieforme
in
Thyroid UK
5 months ago
Diabetic and Eye Damage
I have been insulin dependant diabetic for 40 years, which has been the cause of my eye conditions. I was one of the first patients my consultant gave eye injection, I've had three steroid implants, lots of Lazer and eye injections. Last year I had a sever bleed at the back of the eye resulting in
I have been insulin dependant diabetic for 40 years, which has been the cause of my eye conditions. I was one of the first patients my consultant gave eye injection, I've had three steroid implants, lots of Lazer and eye injections. Last year I had a sever bleed at the back of the eye resulting in
123charl
in
Macular Society
5 months ago
Headaches!
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Tescohednesford
in
PMRGCAuk
5 months ago
Tapering with a high ESR Reading?
My GP rang me yesterday because my ESR reading was 48 in a range of 1-30. He suggested I should increase the Pred. Because my cataract operation was cancelled for a fourth time yesterday, I dropped to 7 mg yesterday after being told, from 31 days on 7.5mg. I have read that ESR could denote
My GP rang me yesterday because my ESR reading was 48 in a range of 1-30. He suggested I should increase the Pred. Because my cataract operation was cancelled for a fourth time yesterday, I dropped to 7 mg yesterday after being told, from 31 days on 7.5mg. I have read that ESR could denote
Motida
in
PMRGCAuk
5 months ago
frustrated and anxious re appt
just feel this Is a safe space to have a rant was diagnosed beginning of October with NTG ( quite a lot of damage already , nerve damage, some peripheral vision loss ) Started on medication and was due to have a follow up appt after. 2 months ( so should have been December) However the hospital
just feel this Is a safe space to have a rant was diagnosed beginning of October with NTG ( quite a lot of damage already , nerve damage, some peripheral vision loss ) Started on medication and was due to have a follow up appt after. 2 months ( so should have been December) However the hospital
Crafty-gran
in
Glaucoma UK
5 months ago
Sore dry eyes
Good morning folks. I’ve been switched from Latanoprost to Monopost drops for both eyes. Bilateral NTG. I was getting a lot of headaches, eye pain and swelling around my right eye and a duty A&E ophthalmologist suggested I could be reacting to the preservatives in the Latanoprost drops. I’ve been on
Good morning folks. I’ve been switched from Latanoprost to Monopost drops for both eyes. Bilateral NTG. I was getting a lot of headaches, eye pain and swelling around my right eye and a duty A&E ophthalmologist suggested I could be reacting to the preservatives in the Latanoprost drops. I’ve been on
Maisie79
in
Glaucoma UK
5 months ago
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