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eye problems with Scleroderma
I was diagnosed with diffuse cutaneous scleroderma in 2018. Currently no treatment but I suffer with dry eyes which have become worse over the last few weeks very itchy and feel tender over the eye ball and eye lids also have dull headache over frontal area above eyes. Anyone have any suggestions? I’
I was diagnosed with diffuse cutaneous scleroderma in 2018. Currently no treatment but I suffer with dry eyes which have become worse over the last few weeks very itchy and feel tender over the eye ball and eye lids also have dull headache over frontal area above eyes. Anyone have any suggestions? I’
Sowze
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Pegasys dosage question
I have ET and am Jak 2 positive. I was on hydroxyurea for two years, but the last six months were difficult because I was extremely nauseous and tired. I am extremely light weight to medication‘s effects and so was on hydroxy once every three days before it became too much for me. I switched to Pegasys
I have ET and am Jak 2 positive. I was on hydroxyurea for two years, but the last six months were difficult because I was extremely nauseous and tired. I am extremely light weight to medication‘s effects and so was on hydroxy once every three days before it became too much for me. I switched to Pegasys
Island-Lady
in
MPN Voice
2 years ago
Confused about pressure and trabs
I had SLT in August. I was told to continue taking Latanoprost/Timolol. When I went to the follow-up 6 weeks later, the pressure was down to 18 L and 24 R from 28 and 34, and the doctor was quite pleased. I had to continue with the eyedrops and come back after 8 weeks . In the meantime I had an appointment
I had SLT in August. I was told to continue taking Latanoprost/Timolol. When I went to the follow-up 6 weeks later, the pressure was down to 18 L and 24 R from 28 and 34, and the doctor was quite pleased. I had to continue with the eyedrops and come back after 8 weeks . In the meantime I had an appointment
BlueMarina
in
Glaucoma UK
2 years ago
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Retinal Bleed
My daughter had a retinal bleed 3 weeks ago. She has myopic degeneration in both eyes. Her central vision is gone in effected eye. She is seeing a black spot in that area. Treated with Avastin 3 days post incident and is due another shot in November. She had a previous bleed in 2018. However I suspect
My daughter had a retinal bleed 3 weeks ago. She has myopic degeneration in both eyes. Her central vision is gone in effected eye. She is seeing a black spot in that area. Treated with Avastin 3 days post incident and is due another shot in November. She had a previous bleed in 2018. However I suspect
Faith8867
in
Macular Society
2 years ago
Pace lesson learned
There has been a lot about pace and distance in the chat recently here’s my story… I graduated 3 months ago and have done 3 Parkruns so far (what a great organisation!) I was determined to go faster on my second PR. Big mistake! Took me about 20 minutes to realise I was struggling, my breath wasn’t
There has been a lot about pace and distance in the chat recently here’s my story… I graduated 3 months ago and have done 3 Parkruns so far (what a great organisation!) I was determined to go faster on my second PR. Big mistake! Took me about 20 minutes to realise I was struggling, my breath wasn’t
Jog176
Graduate
in
Couch to 5K
2 years ago
anticoagulant and injections for Macular degeneration?
I am on anticoagulant for Afib, I just had a 2nd injection for wet macular degeneration. I am concerned about how safe I am with taking these two drugs? Please let me know your thoughts as I am worried!
I am on anticoagulant for Afib, I just had a 2nd injection for wet macular degeneration. I am concerned about how safe I am with taking these two drugs? Please let me know your thoughts as I am worried!
Slattery
in
Macular Society
2 years ago
Preparation for surgery
Hello, I am due to have surgery for a macular hole in my left eye, in the next couple of weeks. Please could anyone advise me on what equipment is the most helpful to help with 'posturing', whichI have to do for a week. I am feeling pretty daunted by the whole thing!
Hello, I am due to have surgery for a macular hole in my left eye, in the next couple of weeks. Please could anyone advise me on what equipment is the most helpful to help with 'posturing', whichI have to do for a week. I am feeling pretty daunted by the whole thing!
marypw
in
Macular Society
2 years ago
Introduction
Hi there, I've been suffering from MDD, PTSD and GAD since I was a child due to a traumatic event. I don't like the way medication makes me feel so I have been on and off certain ones before they can medically take affect. So far I prefer Prozac because it has been around for a while. I don't trust newly
Hi there, I've been suffering from MDD, PTSD and GAD since I was a child due to a traumatic event. I don't like the way medication makes me feel so I have been on and off certain ones before they can medically take affect. So far I prefer Prozac because it has been around for a while. I don't trust newly
MichelleMGalvan
in
Major Depressive Disorder (MDD) Support
2 years ago
Is vision loss always permanent?
Is it always the case that any vision loss due to glaucoma is permanent? My son (diagnosed with juvenile open angle last year, now aged 20) has a grey blurred area in the centre of one of his eyes and a trip to A&E showed his perssure to be 63 in the affected eye and 50 in the other. Following an emergency
Is it always the case that any vision loss due to glaucoma is permanent? My son (diagnosed with juvenile open angle last year, now aged 20) has a grey blurred area in the centre of one of his eyes and a trip to A&E showed his perssure to be 63 in the affected eye and 50 in the other. Following an emergency
Dodie68
in
Glaucoma UK
2 years ago
allergic to eye drops
is anyone else allergic to ALL the eye drops? Had xalacom and xalatan for years, no problem. Then changed several times and ended up with cosopt and monopost. Eyes became swollen, red itchy. Changed to preservative free with the same reaction. Have retried most of the others with the same result. It
is anyone else allergic to ALL the eye drops? Had xalacom and xalatan for years, no problem. Then changed several times and ended up with cosopt and monopost. Eyes became swollen, red itchy. Changed to preservative free with the same reaction. Have retried most of the others with the same result. It
Islandhome
in
Glaucoma UK
2 years ago
Incessant itching driving me crazy
I was diagnosed with SLE and APS around 25 years ago ; although I reckon I've had both for most of my life ; I'm 74. Over the years I've had a number of DVT's and a PE and I'm on life long Warfarin. I was on Hydroxy. but was taken off this due to it causing vision problems. The most persistant problem
I was diagnosed with SLE and APS around 25 years ago ; although I reckon I've had both for most of my life ; I'm 74. Over the years I've had a number of DVT's and a PE and I'm on life long Warfarin. I was on Hydroxy. but was taken off this due to it causing vision problems. The most persistant problem
jamesroybuck
in
LUPUS UK
2 years ago
Experiences with 75mcg Levothyroxine (Teva)?
I have some questions about specifically the Teva 75mcg Levothyroxine. Increased my dose recently from 50mcg, but recently started waking up with headaches, dizziness and blurred vision which never happened before on 50mcg. Curious if this is just my body not liking the Teva brand, and maybe trying
I have some questions about specifically the Teva 75mcg Levothyroxine. Increased my dose recently from 50mcg, but recently started waking up with headaches, dizziness and blurred vision which never happened before on 50mcg. Curious if this is just my body not liking the Teva brand, and maybe trying
Yasai
in
Thyroid UK
2 years ago
Simbrinza eye drops
We have contacted Novartis pharmaceutical corporation for an update about the supply difficulty with obtaining Simbrinza eye drops. In a verbal message, they said: “There is an interruption in the supply of Simbrinza eye drops. There is no confirmed date of when it is likely to be made available again
We have contacted Novartis pharmaceutical corporation for an update about the supply difficulty with obtaining Simbrinza eye drops. In a verbal message, they said: “There is an interruption in the supply of Simbrinza eye drops. There is no confirmed date of when it is likely to be made available again
TomS_GlaucomaUK
Administrator
in
Glaucoma UK
2 years ago
Retinal Toxcity &Hydroxychloroquine
HI Everyone ,I haven't posted in a while just been jogging along quietly taking each day as it comes. I was diagnosed with Lupus in 1999 along with sjgreons .I have taken Hydroxychloriquine since diagnosis along with all the other meds associated with this disease. When first diagnosed I was being
HI Everyone ,I haven't posted in a while just been jogging along quietly taking each day as it comes. I was diagnosed with Lupus in 1999 along with sjgreons .I have taken Hydroxychloriquine since diagnosis along with all the other meds associated with this disease. When first diagnosed I was being
Mrsdoozer
in
LUPUS UK
2 years ago
Need help/support/advice for healing relationships with adult children and dealing with the guilt of unintentional damage done to them by me
I’ve been trying to catch up on posts on here and end up talking about myself too much so I thought I’d try to put my own post out here. I need support concerning my guilt over messing up my relationships with my adult children. I used to have very close relationships with all three of my kids. They
I’ve been trying to catch up on posts on here and end up talking about myself too much so I thought I’d try to put my own post out here. I need support concerning my guilt over messing up my relationships with my adult children. I used to have very close relationships with all three of my kids. They
Mumbutterfly
in
Anxiety and Depression Support
2 years ago
After Trab worry
Hello fellow people who have had trabeculectomies. It has been 4 months since my right eye had a Trabeculectomy. Things are pretty good with a pressure of 9 which is very nice for me. I am thinking now about surgery in the other eye BUT am not keen on a Trabeculectomy. I'm afraid of the risks of
Hello fellow people who have had trabeculectomies. It has been 4 months since my right eye had a Trabeculectomy. Things are pretty good with a pressure of 9 which is very nice for me. I am thinking now about surgery in the other eye BUT am not keen on a Trabeculectomy. I'm afraid of the risks of
stephanie1977
in
Glaucoma UK
2 years ago
LUPUS
My mum suffers with Lupus. She has tried using Zerobase, several Steroid creams, and Mepocrim tablets. She suffers with this on her face, neck, hands and arms. Please can anyone suggest anything that she can use or take that doesn't cost too much money? Thank you.
My mum suffers with Lupus. She has tried using Zerobase, several Steroid creams, and Mepocrim tablets. She suffers with this on her face, neck, hands and arms. Please can anyone suggest anything that she can use or take that doesn't cost too much money? Thank you.
Shorty09
in
LUPUS UK
2 years ago
Sjogrens
Hi, has anyone experienced the loss of taste in there food with Sjogrens ? Any feed back would be grateful x
Hi, has anyone experienced the loss of taste in there food with Sjogrens ? Any feed back would be grateful x
Swanfull
in
NRAS
2 years ago
Rutin
Apparently Rutin is very rich in flavinoids which can help health in many ways. My husband and I ( both over 70) used to get leg cramps every week or two especially at night, since taking rutin we no longer have cramps. I think it took several months to really make a difference. It is also supposed
Apparently Rutin is very rich in flavinoids which can help health in many ways. My husband and I ( both over 70) used to get leg cramps every week or two especially at night, since taking rutin we no longer have cramps. I think it took several months to really make a difference. It is also supposed
muddledme
in
Glaucoma UK
2 years ago
Drusen/CRVO reporting to DVLA
Ive recently developed a central retinal vein occlusion in my right eye and also been told I have Drusen in both eyes. I believe this has to be reported to the DVLA. Vision in my right eye with glasses si 6/7.5 so not bad. My husband is arguing that no one has told me to report this so I don't need
Ive recently developed a central retinal vein occlusion in my right eye and also been told I have Drusen in both eyes. I believe this has to be reported to the DVLA. Vision in my right eye with glasses si 6/7.5 so not bad. My husband is arguing that no one has told me to report this so I don't need
Ecki
in
Macular Society
2 years ago
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