Urgent wait list

[MamaRed]

I had my first laparoscopy in November where I was diagnosed with severe endometriosis and told I had endometriosis and my ovary was also stuck to my bowel. After my surgery the surgeon said I would probably need a stoma and a hysterectomy and then left the room! Since then my gynaecology follow up appointment in March has been cancelled and when I called up in a panic the secretary then got the endometriosis specialist to look at my notes who agreed that I should be on the urgent list and that I should have an endometriosis MRI to see what they are dealing with. My question is, does anyone know roughly how long an ‘urgent list’ is at the moment, particularly at the Norfolk and Norwich?! (Only been waiting just over 3 weeks so far but wanted to manage my expectations!)

[Sunset-lady]

I'm very similar to you and I was told 9 to 12 months. I'm on zoladex in the meantime x

[Crazy4cats]

When you are added to the waiting list, your Nhs app will show you your approx waiting time. Your consultant won't give you a time scale as they don't know, there are too many factors. When your on the list you will get a text every few months through the NHS app asking if you want to remain on the list and if you do it'll give you options as to how much notice you want to have. I think it's like under 1 wk, over 1 wk.It will feel like a long road, stay in touch with your consultant, keep them updated on your pain and symptoms.. Tell them your happy for any cancellation spots, they're rare but hey, it's worth telling them.

Stay strong. Read up and ask lots of questions, I did. As its all very overwhelming. The docs will give you the facts but on here is where I got the most support.

Good luck.

[Churchie93]

I’m waiting for an appointment (I’ve been referred back by my gp) but I think it’s about 27 week ish wait for an appointment and I’be been referred back to the n&n

[catsrule40]

Hi, sounds very similar to what i had 3 years ago and i had to wait because it was during the pandemic. I had surgery for a full hysterectomy and bowel surgery. I had to have a temporary stoma as my endo cyst had stuck to my bowel. I can't help with what's going on with wait lists these days but can hopefully offer support if you have any questions. It's so frustrating not getting clear answers I can imagine. Big hugs x

[MamaRed in reply to catsrule40]

Thank you ☺️

Could I ask how long you had the temporary stoma for? X

[catsrule40 in reply to MamaRed]

had it for 3 months. Needs to be long enough for your bowel to heal properly x