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New to the group but not PBC
Hello everyone. Just a brief something about myself. Diagnosed with PBC stage 4 in 2007. Wasn't able to take urso but did well for nearly a decade. Had liver transplant in 2016 and now have (probably) recurrence. Basically I've run the gambit and going for round 2. Everyone have a great day!
Hello everyone. Just a brief something about myself. Diagnosed with PBC stage 4 in 2007. Wasn't able to take urso but did well for nearly a decade. Had liver transplant in 2016 and now have (probably) recurrence. Basically I've run the gambit and going for round 2. Everyone have a great day!
OdinsMom
in
PBCers Organization
6 years ago
Concerned
My son is 3 years post kidney transplant & his creatinine has never been really stable. He starts to creep up & they do a biopsy & everything is normal. He drinks a gallon of water a day. He will end up going back down only to go up again. Anybody else seen this?
My son is 3 years post kidney transplant & his creatinine has never been really stable. He starts to creep up & they do a biopsy & everything is normal. He drinks a gallon of water a day. He will end up going back down only to go up again. Anybody else seen this?
Wheeling
in
Kidney Transplant Patient Support
6 years ago
Lung Transplant
I am 58 years old. My Pulmonologist says I may need a lung transplant if the meds I’m on don’t show any signs of the lung scarring slowing down. I would like to know if anybody close to to my age had a lung transplant?I am skeptical about major surgery when you’re not young.
I am 58 years old. My Pulmonologist says I may need a lung transplant if the meds I’m on don’t show any signs of the lung scarring slowing down. I would like to know if anybody close to to my age had a lung transplant?I am skeptical about major surgery when you’re not young.
Dermatray15
in
Asthma Community Forum
6 years ago
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Good evening lovelies I had a kidney transplant a few years ago and the quality of it is deteriorating and I’m beginning to feel the effects of this which is also having an impact on my attendance at work. I don’t have a full time contact with work due to my body being so unpredictable with having SLE
Good evening lovelies I had a kidney transplant a few years ago and the quality of it is deteriorating and I’m beginning to feel the effects of this which is also having an impact on my attendance at work. I don’t have a full time contact with work due to my body being so unpredictable with having SLE
Taurion
in
LUPUS UK
6 years ago
My husband has been battling liver cancer since 2016
I am new here so bear with me. This has been an extraordinary journey filled with a roller coaster of emotions. From terrifying, low points to highs with those that have taken the journey with us in support. My husband has endured multiple radiation and chemo embolizations, was multi-listed for liver
I am new here so bear with me. This has been an extraordinary journey filled with a roller coaster of emotions. From terrifying, low points to highs with those that have taken the journey with us in support. My husband has endured multiple radiation and chemo embolizations, was multi-listed for liver
Sschiltz
Caregiver
in
Blue Faery Liver Cancer
6 years ago
Depression and Coping Post Transplant. What is a typical response and when should a partner worry?
I Live in London and met a wonderful man who soon into dating me told me he had a rare autoimmune disease & had had 2 kidney transplants by age 36.after much thought I decided it would definitely not stop dating him because he is ill.we are all going to get ill at some point anyway. He just got ill sooner
I Live in London and met a wonderful man who soon into dating me told me he had a rare autoimmune disease & had had 2 kidney transplants by age 36.after much thought I decided it would definitely not stop dating him because he is ill.we are all going to get ill at some point anyway. He just got ill sooner
Newneedadvice
in
Kidney Transplant Patient Support
6 years ago
I have updated my Bio, I thought I would share It on here too. 😀.
Tomorrow is March the 9th and a big day in the RFC household. It is our Kidney Transplant Birthday. 2 years today. 😀 I thought today would be a great day to update my Bio on here, as the one I have had up is a bit outdated RFc’s Bio I lost my lovely Mum in 2009 in April, just before we lost her
Tomorrow is March the 9th and a big day in the RFC household. It is our Kidney Transplant Birthday. 2 years today. 😀 I thought today would be a great day to update my Bio on here, as the one I have had up is a bit outdated RFc’s Bio I lost my lovely Mum in 2009 in April, just before we lost her
Realfoodieclub
Graduate
in
Couch to 5K
6 years ago
TERRIBLE ITCHING TRIED ABOUT EVERY FTIG AND LOTIONS
HI I'm looking for anyone that has PBC and suffering from severe itching like myself all day everyday. I just had a visit with my U of Mic Dr the other day and he is looking into me having some type of procedure where they put IV in for a hour and it removes toxins and it works for some patients for
HI I'm looking for anyone that has PBC and suffering from severe itching like myself all day everyday. I just had a visit with my U of Mic Dr the other day and he is looking into me having some type of procedure where they put IV in for a hour and it removes toxins and it works for some patients for
genj65
in
PBCers Organization
6 years ago
Lung Transplant listing...
For those who already know 20 months ago I was told by Papworth that I was severe enough for a transplant but due to a damaged Oesophagus due to reflux I didn’t qualify!!! Last March I broke down in front of my respiratory consultant and told her that I felt I’d been let down by the system. She personally
For those who already know 20 months ago I was told by Papworth that I was severe enough for a transplant but due to a damaged Oesophagus due to reflux I didn’t qualify!!! Last March I broke down in front of my respiratory consultant and told her that I felt I’d been let down by the system. She personally
Lynnelovessunshine
in
Lung Conditions Community Forum
6 years ago
CAR T versus Stem Cell transplant for Richter's
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
profrich
in
CLL Support
5 years ago
Post Liver Transplant
My name is Iskandar, from Tajikistan post liver transplant patient. I was under treatment from march 2018 until January 2019. My transplant surgery was done in April 2018.. Now I am on recovery period, I feel weak with Osteoporosis because of much steroids and kidney stones. Any Transplant Doctor Reco
My name is Iskandar, from Tajikistan post liver transplant patient. I was under treatment from march 2018 until January 2019. My transplant surgery was done in April 2018.. Now I am on recovery period, I feel weak with Osteoporosis because of much steroids and kidney stones. Any Transplant Doctor Reco
Jazzy_Jazz
in
British Liver Trust
6 years ago
Question
Hey everyone, my boyfriend was diagnosed with stage 4 CKD last year, he has about 25% function left. It was such a shock to us as he is only 32 years old.... Since his diagnosis I have been canvassing the internet about information regarding kidney transplant. From what I read I think for a healthy person
Hey everyone, my boyfriend was diagnosed with stage 4 CKD last year, he has about 25% function left. It was such a shock to us as he is only 32 years old.... Since his diagnosis I have been canvassing the internet about information regarding kidney transplant. From what I read I think for a healthy person
Keeper2017
in
Kidney Disease
6 years ago
Question about transplant time.
Hey everyone, my boyfriend was diagnosed with stage 4 CKD last year, he has about 25% function left. It was such a shock to us as he is only 32 years old.... Since his diagnosis I have been canvassing the internet about information regarding kidney transplant. From what I read I think for a healthy
Hey everyone, my boyfriend was diagnosed with stage 4 CKD last year, he has about 25% function left. It was such a shock to us as he is only 32 years old.... Since his diagnosis I have been canvassing the internet about information regarding kidney transplant. From what I read I think for a healthy
Keeper2017
in
Kidney Transplant
6 years ago
The possible future of organ transplants
Should I ever need a second transplant, it will probably be a 3d printed liver. This stuff is mind-blowing 🤯 https://youtu.be/NMe_fOKKC24
Should I ever need a second transplant, it will probably be a 3d printed liver. This stuff is mind-blowing 🤯 https://youtu.be/NMe_fOKKC24
Hidden
in
British Liver Trust
6 years ago
European Liver Patients Association - HE & HEP C
First of all I'd like to send a special thank you Jim (LAJ123) for his excellent work with the Liver Transplant Patient's Consortium. Jim very kindly sent me some information about the burden of Liver disease in Europe and in particular the case of Hepatic Encephalopathy: http://www.elpa.eu/sites/default
First of all I'd like to send a special thank you Jim (LAJ123) for his excellent work with the Liver Transplant Patient's Consortium. Jim very kindly sent me some information about the burden of Liver disease in Europe and in particular the case of Hepatic Encephalopathy: http://www.elpa.eu/sites/default
Hidden
in
British Liver Trust
6 years ago
Just an update 😊
All my bloods sorted themselves out thank god 😊 I seen the kidney consultant last week and had a chat about cannabis and that was the cause of my alt going off the wall its because I am post and also because of my kidneys I told him I been using it to sleep and that I would now just have it a couple
All my bloods sorted themselves out thank god 😊 I seen the kidney consultant last week and had a chat about cannabis and that was the cause of my alt going off the wall its because I am post and also because of my kidneys I told him I been using it to sleep and that I would now just have it a couple
jojokarak
in
British Liver Trust
6 years ago
Hep c and chronic liver disease
Hi everyone my brother is recently diagnosed with Hep c he under went 3 months medication the virus is cured but doctor is saying the liver had got some damage. They are saying he might has to go for transplant He is already a kidney transplant patient and now one more problem. Can anyone pls help
Hi everyone my brother is recently diagnosed with Hep c he under went 3 months medication the virus is cured but doctor is saying the liver had got some damage. They are saying he might has to go for transplant He is already a kidney transplant patient and now one more problem. Can anyone pls help
ankitarai267
in
Kidney Transplant
6 years ago
Desperate for a Kidney Donor
I'm have joined this Group on Behalf of My Boyfriend who is Dire Need of a Kidney Transplant. He was weeks away from actually Scheduling his Surgery when his Donor got rejected at the last minute
I'm have joined this Group on Behalf of My Boyfriend who is Dire Need of a Kidney Transplant. He was weeks away from actually Scheduling his Surgery when his Donor got rejected at the last minute
Moochy01
in
Kidney Donation
6 years ago
Infection after kidney transplant
I on my third kidney transplant 4 yrs. out. I have some kind of infection every month. Trying to find out what meds transplant patients are taking for this issues. My sister is on her third kidney transplant 5yrs. out and from day one she's been prescribed Bactim by her Doctor. I am getting no where
I on my third kidney transplant 4 yrs. out. I have some kind of infection every month. Trying to find out what meds transplant patients are taking for this issues. My sister is on her third kidney transplant 5yrs. out and from day one she's been prescribed Bactim by her Doctor. I am getting no where
noonekcb
in
Kidney Transplant
6 years ago
I just wanted to let everyone know.....
Hello family, it's Fancy. I know I have disappeared again, but I wanted everybody to know I am once again fighting secondary health issues. Had positive results on a cologuard colonoscopy test I took. So I have to go in and find out what's wrong with the colon the end of the month. On top of that I don't
Hello family, it's Fancy. I know I have disappeared again, but I wanted everybody to know I am once again fighting secondary health issues. Had positive results on a cologuard colonoscopy test I took. So I have to go in and find out what's wrong with the colon the end of the month. On top of that I don't
Fancy1959
CommunityAmbassador
in
My MSAA Community
6 years ago
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