Experiences with

Organ transplant

I want everyone to know how important organ donation is. For me, it is a true Miracle! This October 15th is my 25th Kidney Transplant Anniversary! This is all due to my Hero my angel Ryan. He was involved in a horrific car accident and lost his life at 16. His parents donated all of his organs

Hello, My sister went on the kidney transplant list two and a half years ago after being diagnosed with renal failure, and until this past July, was doing Peritoneal Dialysis, which she was doing quite well on. However, starting in the new year this year, she had three minor strokes, and after the last

I had a Liver transplant in 2019 and recovered well. I have travelled to Europe and the States since, however, I need to visit family in The Gambia with all the vaccines that entails. Has anyone post Liver transplant got experience of not having the live Yellow Fever vaccine and travelling to The Gambia

I am mindful that, as I post this, there are many people not as fortunate as me, having received a liver transplant. I was finally deemed ready for discharge home on day 12, after some fine tuning of tacrolimus levels and a phosphate infusion. A low phosphate was thought to be contributing a tremor

Today I feel so abysmally low that words can't express it. I am writing just because I think it might be therapeutic. I found my Life Coach's email address yesterday (he had been hiding it) and also the fact that he once had a website that is now defunct. So, I sent him an email telling him how much

Could be a long story and not sure I am in the right community. Apologies in advance.Had a Liver transplant due to PSC in 2006. In 2013 got PTLD. The Lymphoma was cured but it damaged one of my ureters. Since then I have had ureteric stents replaced every 6 months to keep the ureter open. The last few

Hello! On 16 May 2024, I had a kidney transplant. Please recommend me a shampoo that I can use after I had a kidney transplant and steroids are administered to me, my hair is falling out. I am interested in receiving information and socializing with people who have had a kidney transplant. Thanks

Like some who have had kidney issues I have also experienced eye issues and had to undergo omni glaucoma surgery. Due to the multiple medications I already take for blood pressure and transplant many of the eye drops available for glaucoma have poor interactions with my system and result in serious side

I have a kidney transplant 18 months and have developed bad diarrhea last to nights mostly at night and in the morning

I was diagnosed with PBC and 2017. My alkaline phosphate levels were 277. I was told I was gonna go in the liver transplant list or I was going to die. I was prescribed URSODIOL and Oclavia. My levels started to go down, but I was starting to have a reaction from the Oclavia, causing me to have eczema

Told no treatment, no Liver transplant, blocked bile ducts not resolved after two ERCPs. Left Right intrahepatic ducts. Left to palliative care, no surgery or bypass offered does this sound right to anyone ? Does anyone know of an ERCP specialist? Were South East England

Hi everyone I hope you’re all as well as you can be. We are still on our journey for being assessed for a liver transplant. it’s been a long one but at least we are still on it😁 So the hubby had a stress test in nuclear med at the QE Birmingham. They said that 17% May get called back for another scan

Hi All. This is my first post. I had a fibroscan back in July and the nurse who performed it told me I had high-level F3, possibly creeping into F4. I’ve been referred to the Cirrosis Surveillance Team at my local hospital, but my first appointment isn’t until the middle of October. I’ve done a lot of

CBD cream question. I was pretty surprised when the hand surgeon I saw yesterday recommended I use CBD creme on my arthritic thumbs twice a day. I can't take any anti inflammatory drugs because of my chronic kidney disease. Even aspirin is likely to hurt my kidneys. Since I'm on the kidney transplant

We need to share this with everybody.... End Kidney Deaths Act Introduced in Congress By Charlotte Robinson - Last Updated: August 15, 2024 On August 12, 2024, US Representatives Nicole Malliotakis (R-NY), Don Bacon (R-NE), Josh Harder (D-CA), and Joe Neguse (D-CO) introduced the End Kidney Deaths

We need to share this with others..... Kidney Transplantation > End Kidney Deaths Act Introduced in Congress By Charlotte Robinson - Last Updated: August 15, 2024 On August 12, 2024, US Representatives Nicole Malliotakis (R-NY), Don Bacon (R-NE), Josh Harder (D-CA), and Joe Neguse (D-CO) introduced

We need to share this with others..... Kidney Transplantation > End Kidney Deaths Act Introduced in Congress By Charlotte Robinson - Last Updated: August 15, 2024 On August 12, 2024, US Representatives Nicole Malliotakis (R-NY), Don Bacon (R-NE), Josh Harder (D-CA), and Joe Neguse (D-CO) introduced

How often do you need a full work up to remain on kidney transplant list if you have been already approved? I understand it may vary by hospital but looking for an average.

My father is a kidney transplant recipient. He is 72 and 7 years in. He had polychistosis. We are from Mexico City. We are in Colorado for a brief holiday. My father, unfortunately forgot his prescription medicines back home. We are trying to get the medicines shipped from back home. The fastest

Hi Please help or advice thanks, I had a Kidney Transplant from my sister 9 years ago all has been well really I just get so tired I walk my Archie twice a day, I feel somtimes quite low I am not a sleepy sort got to much to do, I do not