URGENT. Need help w/medication. - Kidney Transplant

Kidney Transplant

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URGENT. Need help w/medication.

Ponchar profile image
27 Replies

My father is a kidney transplant recipient. He is 72 and 7 years in. He had polychistosis.

We are from Mexico City. We are in Colorado for a brief holiday. My father, unfortunately forgot his prescription medicines back home.

We are trying to get the medicines shipped from back home. The fastest we can get them is in two days time. His doctor suggested he take the medication as soon as possible. He needs:

Tacrolimus 1 mg (5x)

Azathioprina 50 mg (8x)

Prednisona 20 mg (4x)

We can’t get these in the States fast enough as we are not in any way enrolled in the health care system. We are in the Denver area. Please reach out if you can help.

Also, have you experienced being without your drug as for multiple days? Any consecuences?

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Ponchar
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27 Replies
MusicalEighth profile image
MusicalEighth

Have you contacted any pharmacies in Colorado? I don’t know if this will work, but maybe the pharmacy in Colorado could contact your father's pharmacy in Mexico to get your father’s prescriptions, and then you could buy medication for a few days “out of pocket,” which means you would pay for the medications yourself. The medications can be really expensive when you have to buy 30 days at a time, but if you just need enough for one or two days, it might not be so bad. I am most familiar with prednisone. One time, I had to pay “out of pocket” to cover two days, and it was less than $5 USD (I was taking 5 mg tablets at the time). Another thought is that maybe you could contact a hospital in Colorado to see if they can help your father.

Jayhawker profile image
Jayhawker in reply toMusicalEighth

This is what I was thinking might work too.

Jayhawker

OperationKidney profile image
OperationKidney

A couple days of prednisone and tac shouldn't be too much money out of pocket, I wouldn't think. I'm not sure I recognize the other one. Otherwise could you maybe have it shipped to where you're staying?

Ponchar profile image
Ponchar in reply toOperationKidney

We’re getting it shipped via FedEx. Coming in today which would be the third day w/o meds. He seems well!

Tashikat profile image
Tashikat

it may be difficult to obtain meds here with a prescript that is not from the US. 2 days is pushing it to go without his anti rejection drugs. 3 days may be critical. I PM’d you.

LisaSnow profile image
LisaSnow

He really should not stop the 20mg Prednisone even for one day. He can go into an adrenal crisis that can be life threatening (independent of the transplant). If you can not get him to buy it soon please go to the ER and explain the situation there.

LisaSnow profile image
LisaSnow in reply toLisaSnow

If it is 4 tabs of 20mg that he takes a day, it is really important to not stop it abruptly.

Anja71 profile image
Anja71

Perhaps there is a hospital with a transplant outpatient clinic near you that can help out to bridge the gap?

Jayhawker profile image
Jayhawker in reply toAnja71

I agree that the emergency room at the hospital may be the best option. They should be able to provide the needed meds, hopefully.

Jayhawker

Winner76 profile image
Winner76

in Europe , we could probably get our Healthcare from home to send a prescription to whatever country we were in by email and get them in a pharmacy ??

sugabear profile image
sugabear

Go to the ER. Try to find a hospital with a transplant center attached.

Ponchar profile image
Ponchar in reply tosugabear

Thanks! Will consider in case anything gores wrong with FedEx

Darlenia profile image
Darlenia in reply tosugabear

Yes, this is important! We discovered our local hospital couldn't order my husband's transplant meds. In our area, some of those meds are very restricted and only certain doctors have the qualifications to order them. (Prednisone may be less restricted.) Our local hospital had no one on staff. We keep a couple days worth of meds in our car in case we can't get home for some reason.

sugabear profile image
sugabear in reply toDarlenia

I hope you live in a cooler climate than we do! Meds would melt in our car. 😂

Darlenia profile image
Darlenia in reply tosugabear

Good point! Ours might no longer be in good shape; we stashed them in our car when we got caught in a snow storm. But it's summer now, and we've had fairly high temps. (We live in Virginia.) We'll need to replace them asap. Thanks!

Transplant2018 profile image
Transplant2018

Try going to urgent care and see if you can get a prescription here.

Ponchar profile image
Ponchar

thank you all. We came to the ER at University of Colorado Hospital in Aurora. We got the prescription and the meds in a couple of hours. Thanks for your support

Oceansideup profile image
Oceansideup in reply toPonchar

Glad to hear someone helped. Best of luck to you and your family.

ShyeLoverDoctor profile image
ShyeLoverDoctor

GO TO A HOSPITAL NOW. Get off the internet and go now. ThIs how people lose their transplanted kidney.

Balap profile image
Balap

Sorry to say, forgetting Immuno suppressive medicines shows extreme negligence

Jepsos profile image
Jepsos in reply toBalap

That is not helpful….🤨

Balap profile image
Balap in reply toJepsos

Next time it will be helpful !!!

when I'm travelling, I take twice the amount of medicines needed. I keep one set of Immuno medicines in hand luggage, another set in check-in luggage. while site seeing, I keep medicines for few days in shoulder bag, remaining in Hotel room. But why? I give high importance to my Transplant kidney.

Jepsos profile image
Jepsos in reply toBalap

Her Father has had his transplant for 7 years. Clearly he has been a responsible transplant patient. Accidents do happen. Luggage can be stolen or lost, meds can get damaged and situations you haven’t even thought about can happen. No one is perfect! His daughter very quickly had FedEx ship the meds before reaching out online to see if anyone in CO could help. We all gave suggestions and they went to the hospital. All of those actions are very responsible considering one simple mistake.

Your comment was condescending and unnecessary.

1 mistake in seven years doesn’t deserve your vitriol. We are here to support each other.

What you could have done was suggested the way you pack your meds when you travel. A helpful tip is much more useful for avoiding this scenario from happening again than a negative comment. I have no doubt that he and his family were very stressed and upset because of the oversight.

It is wonderful that you are so diligent with your transplant. I wish you much health and peace and kindness. 🙏🏻

Balap profile image
Balap in reply toJepsos

Jepsos:

Today I'm very happy to learn that forgetting Immuno medicines while travelling abroad is "one simple mistake"

thanks Jepsos for your lecture and Thank you so much for your wishes. I appreciate a lot and wish you the same.

LisaSnow profile image
LisaSnow in reply toBalap

Maybe you are going through something difficult because you are not usually rude like this. I hope you feel better soon.

Balap profile image
Balap in reply toLisaSnow

Thanks Lisa. There were many helping hands and I was so sure that Ponchar would get the medicines in 1 or 2 days. If I were in Colorado, I would have given my medicines. (I was in Boulder many years ago). I have known many patients losing their kidney due to skipping medicines or due to taking low doses. I believe in Constructive criticism, I did not give lecture to Ponchar, I replied in one line.

LisaSnow profile image
LisaSnow in reply toBalap

I believe you meant well too. However the same good intention can be taken as harsh and condescending especially to family members who are already in distress. That's all we wanted to suggest for you to consider in the future.

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