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on going chemo
Hi , I have another question please, I have just had my 4th chemo out of 6 and this is the worst I have felt . Fatigue ( extreme) feeling totally wiped out as if everything left my body !!!! Has anybody else had this , I have been to my doctor so not to worry myself to much ( but you do) !!!!!
Hi , I have another question please, I have just had my 4th chemo out of 6 and this is the worst I have felt . Fatigue ( extreme) feeling totally wiped out as if everything left my body !!!! Has anybody else had this , I have been to my doctor so not to worry myself to much ( but you do) !!!!!
Cazy1010
in
My Ovacome
1 year ago
Support Group
Good Morning, I am a newbie. I live in Suffolk, near Ipswich and was wondering whether there were any others near me who would be interested if I were to set up a local support group to meet up. I had stage 3 ovarian in September 2021. I was operated on and had 6 lots of chemo. To date I have
Good Morning, I am a newbie. I live in Suffolk, near Ipswich and was wondering whether there were any others near me who would be interested if I were to set up a local support group to meet up. I had stage 3 ovarian in September 2021. I was operated on and had 6 lots of chemo. To date I have
Greengecko67
in
My Ovacome
1 year ago
Update treatment
it’s been about, half a year sinc[i]e i thought i had some options for the treatment i needed[/i] [i]I posted this dilemma here, and got a lot of responce to it. My thanks for this.[/i] [i]But unfortunately, there were no options for me, and the FCR was scheduled.[/i] [i]The first time, about two
it’s been about, half a year sinc[i]e i thought i had some options for the treatment i needed[/i] [i]I posted this dilemma here, and got a lot of responce to it. My thanks for this.[/i] [i]But unfortunately, there were no options for me, and the FCR was scheduled.[/i] [i]The first time, about two
Renefaassen
in
CLL Support
1 year ago
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Any tips welcome on how to tolerate chemo
As you know, my 88 year old warrior of a father, has battled his cancer HARD for 16 years. He has been optimistic despite all of this, and has always KNOWN he can beat this. A great attitude to have. He has declined quite a bit after having a spontaneous fracture of his pelvis 8 weeks ago - after 5
As you know, my 88 year old warrior of a father, has battled his cancer HARD for 16 years. He has been optimistic despite all of this, and has always KNOWN he can beat this. A great attitude to have. He has declined quite a bit after having a spontaneous fracture of his pelvis 8 weeks ago - after 5
dadsdrdawn
in
Advanced Prostate Cancer
1 year ago
New MRI finding
Yesterday I had an MRI due to some back pain. I had an MRI, pet scan in February and clean CAT scan in June. Plus all of my labs have been perfect. Now they’re telling me that they see a 2.1 CM metastasis on my L2 area of my spine. I am a bit freaked out but I’m trying to wrap my head around this.
Yesterday I had an MRI due to some back pain. I had an MRI, pet scan in February and clean CAT scan in June. Plus all of my labs have been perfect. Now they’re telling me that they see a 2.1 CM metastasis on my L2 area of my spine. I am a bit freaked out but I’m trying to wrap my head around this.
Flavia100
in
SHARE Metastatic Breast Cancer
1 year ago
Helperwifey
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy and has been taking Orgovyx and Nubeqa since his diagnosis. I am interested in exploring more holistic approaches in going foward with his treatment.
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy and has been taking Orgovyx and Nubeqa since his diagnosis. I am interested in exploring more holistic approaches in going foward with his treatment.
Helperwifey
in
Prostate Cancer Caregivers
1 year ago
Helperwifey
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy. He has taken Orgovyx and Nubeqa since his diagnosis. I am exploring holistic adjunctive therapy for him.
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy. He has taken Orgovyx and Nubeqa since his diagnosis. I am exploring holistic adjunctive therapy for him.
Helperwifey
in
Advanced Prostate Cancer
1 year ago
fatigue
Just had my 4th round of chemo out of 6 !!!! Getting there after being delayed over my blood work but it’s this fatigue 😢 even after recovering before next round I’m still so so tired , any help or advice
Just had my 4th round of chemo out of 6 !!!! Getting there after being delayed over my blood work but it’s this fatigue 😢 even after recovering before next round I’m still so so tired , any help or advice
Cazy1010
in
My Ovacome
1 year ago
Hello strangers.
Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people I liked so much. (I was banned for complaining about the ALT-MED stuff that used to appear so regularly there, and the fact that it was treated
Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people I liked so much. (I was banned for complaining about the ALT-MED stuff that used to appear so regularly there, and the fact that it was treated
andysnat
in
CLL Support
1 year ago
Clinical Trial with Abemaciclib and Olaparib
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
TealBlooms
in
My Ovacome
1 year ago
Surviving in retirement
At age 52 I was diagnosed with stage 3 Multiple Myeloma ; after 2 bone marrow transplants in 2007 & 2009 I was able to continue my engineering job until age 65. At 66 my PSA was 3400 with Gleason score 4 ; started Docetaxel and Jevtana until July 23 ; Now on Pluvicto have 5 more treatments to
At age 52 I was diagnosed with stage 3 Multiple Myeloma ; after 2 bone marrow transplants in 2007 & 2009 I was able to continue my engineering job until age 65. At 66 my PSA was 3400 with Gleason score 4 ; started Docetaxel and Jevtana until July 23 ; Now on Pluvicto have 5 more treatments to
chipspesto
in
Advanced Prostate Cancer
1 year ago
SCT update
Hello everyone, I was admitted to hospital on Saturday 30 th July, & started my chemo. I had my picc line fitted the day before. Transplant day was Friday 4th August, which went well, it was amazing watching the stem cells go through the tube & into my body!! I feel sick & tired but knew it would
Hello everyone, I was admitted to hospital on Saturday 30 th July, & started my chemo. I had my picc line fitted the day before. Transplant day was Friday 4th August, which went well, it was amazing watching the stem cells go through the tube & into my body!! I feel sick & tired but knew it would
SRH55
in
MPN Voice
1 year ago
Is Xtandi Failing?
Background: Diagnosis in Jan/2020, PSA 577, Gleason 9, mets to lymph nodes and bones Started Firmagon immediately as well as chemo, 6 cycles of Docetaxel. Followed this by radiation to the prostate. PSA dropped pretty quick and eventually into the teens and single digits, lowest was 4.5 back in January
Background: Diagnosis in Jan/2020, PSA 577, Gleason 9, mets to lymph nodes and bones Started Firmagon immediately as well as chemo, 6 cycles of Docetaxel. Followed this by radiation to the prostate. PSA dropped pretty quick and eventually into the teens and single digits, lowest was 4.5 back in January
GTTown
in
Advanced Prostate Cancer
1 year ago
anyone suffering from frequent Nausea
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
Dannyboy48
in
Advanced Prostate Cancer
1 year ago
Muscular pain and sciatica
Hello, I have high grade serous OC 3c and i'm on my second round of chemo. My symptoms started at the beginning of April and was diagnosed with cancer in mid-May. By then I had started to develop muscular pains in my body, which have intensified. The second week after my first chemo I developed sciatica
Hello, I have high grade serous OC 3c and i'm on my second round of chemo. My symptoms started at the beginning of April and was diagnosed with cancer in mid-May. By then I had started to develop muscular pains in my body, which have intensified. The second week after my first chemo I developed sciatica
Alentejo
in
My Ovacome
1 year ago
NICE review of first-line olaparib - your comments needed
Hello All NICE are undertaking a Cancer Drugs Fund guidance review for olaparib. The name of the NICE consultation is: Olaparib for maintenance treatment of BRCA-mutated ovarian, fallopian tube and peritoneal cancer after response to first-line platinum-based chemotherapy (Review of TA598) ID6191
Hello All NICE are undertaking a Cancer Drugs Fund guidance review for olaparib. The name of the NICE consultation is: Olaparib for maintenance treatment of BRCA-mutated ovarian, fallopian tube and peritoneal cancer after response to first-line platinum-based chemotherapy (Review of TA598) ID6191
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
Feeling utterly helpless
Hi, my mum (early 60s) has been diagnosed with glioblastoma on her right side of her brain spreading to her corpus callosum. Surgery was considered too risky so we choose radiotherapy and chemo. However, the oncologist is now saying he thinks radiotherapy will do more harm than good. Her mobility
Hi, my mum (early 60s) has been diagnosed with glioblastoma on her right side of her brain spreading to her corpus callosum. Surgery was considered too risky so we choose radiotherapy and chemo. However, the oncologist is now saying he thinks radiotherapy will do more harm than good. Her mobility
Hidden
in
Glioblastoma Support
1 year ago
CEA Fluctuations
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
Believeit
in
Advanced Prostate Cancer
1 year ago
Abiraterone - alternatives
Only 3 months after completing 6 rounds of Docetaxel my husband was put on Abi as his onco felt the chemo had been unsuccessful. However the onco is now saying he will pull him off the Abi as his PSA has doubled for the each of the 2 months he’s been on it. In the UK once you’ve been on Abi for 3 months
Only 3 months after completing 6 rounds of Docetaxel my husband was put on Abi as his onco felt the chemo had been unsuccessful. However the onco is now saying he will pull him off the Abi as his PSA has doubled for the each of the 2 months he’s been on it. In the UK once you’ve been on Abi for 3 months
NLondon43
in
Advanced Prostate Cancer
1 year ago
Diuretics and maintenance daily potassium?
HiOn a high level of tabletted furosemide. Deep joy. Off and on my potassium has been low and is topped up by fizzy tablets and has always worked so far. The problem is the symptoms are quite similar to low bp and...heart failure...and beta blockers...so I tend to struggle on and this time it's 2.9 and
HiOn a high level of tabletted furosemide. Deep joy. Off and on my potassium has been low and is topped up by fizzy tablets and has always worked so far. The problem is the symptoms are quite similar to low bp and...heart failure...and beta blockers...so I tend to struggle on and this time it's 2.9 and
Penoir53
in
British Heart Foundation
1 year ago
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