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Still have shortness of breath from lobectomy in May
I had a left upper lobectomy in May 2023 followd by 4 sessions of chemo. I still have a little shortness of breath left over from my lobectomy. Is this fairly common?
I had a left upper lobectomy in May 2023 followd by 4 sessions of chemo. I still have a little shortness of breath left over from my lobectomy. Is this fairly common?
Babtino
in
The Roy Castle Lung Cancer Foundation
10 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
10 months ago
My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Jm954
Administrator
in
CLL Support
10 months ago
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What’s next after pirtoimbrutinib?
My husband has been on pirtobrutinib for one year in October. He was granted a compassionate use authorization by the FDA since it had not yet been approved by the FDA. His oncologist told him yesterday the efficacy of this drug is 12-18 months. His journey so far has been bundamustine chemo
My husband has been on pirtobrutinib for one year in October. He was granted a compassionate use authorization by the FDA since it had not yet been approved by the FDA. His oncologist told him yesterday the efficacy of this drug is 12-18 months. His journey so far has been bundamustine chemo
KLWC
in
CLL Support
10 months ago
1 year since my operation so celebrated on holiday's 🙌🌄 🇬🇷
Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis
Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis
Newbery3
in
My Ovacome
10 months ago
Has Anyone had a CGA CHROMOGRANIN A, EIA Test ? It’s tumor marker test.
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
Shorehousejam
in
Advanced Prostate Cancer
10 months ago
Day 2 Enhertu infusion
The first day the infusion protocols went very smoothly. Received saline fluids first, 3 premeds for nausea etc. then the Enhertu. No pain no side effects. My infusion nurse suggested a port for me. My vein in my arm is scarred. So port it is. I am drinking 💦 and eating light carrots 🥕 🍦 🥗! No nausea
The first day the infusion protocols went very smoothly. Received saline fluids first, 3 premeds for nausea etc. then the Enhertu. No pain no side effects. My infusion nurse suggested a port for me. My vein in my arm is scarred. So port it is. I am drinking 💦 and eating light carrots 🥕 🍦 🥗! No nausea
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
10 months ago
Recurrence in spleen
Had chemo and debulking surgery 2 years ago. Stage 3 HGS OC. 1st recurrence 3 months ago with lesions in spleen and peritoneum. Consultant advises watch and wait and does not advise splenectomy. CA125 76, no symptoms. Just wondering if anyone out there has lesions in their spleen and what treatment
Had chemo and debulking surgery 2 years ago. Stage 3 HGS OC. 1st recurrence 3 months ago with lesions in spleen and peritoneum. Consultant advises watch and wait and does not advise splenectomy. CA125 76, no symptoms. Just wondering if anyone out there has lesions in their spleen and what treatment
hilaryjane
in
My Ovacome
10 months ago
Battling!
Looking for some guidance. This group has been really helpful in shedding some light on my health issues. My story - 3 years ago was diagnosed with breast cancer right in the middle of the pandemic. 8 rounds of chemo (got Covid in round 4), surgery and lastly radiotherapy taking me to May 2021. Got
Looking for some guidance. This group has been really helpful in shedding some light on my health issues. My story - 3 years ago was diagnosed with breast cancer right in the middle of the pandemic. 8 rounds of chemo (got Covid in round 4), surgery and lastly radiotherapy taking me to May 2021. Got
Tiffin76
in
Thyroid UK
10 months ago
radiation whack-a-mole?
My stage IV prostate cancer has gone castrate resistant ... I've been taking androgen blockers (Eligard injections 90 days plus daily 1gm of abiraterone) for five years. The primary treatment in summer 2018 was external beam radiation. In 2021 I had cyberknife radiation to new lesions in spinal vertebrae
My stage IV prostate cancer has gone castrate resistant ... I've been taking androgen blockers (Eligard injections 90 days plus daily 1gm of abiraterone) for five years. The primary treatment in summer 2018 was external beam radiation. In 2021 I had cyberknife radiation to new lesions in spinal vertebrae
Johnkelsey
in
Advanced Prostate Cancer
10 months ago
Could this be the start of neuropathy?
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
CrocodileShoes
in
Advanced Prostate Cancer
10 months ago
Hair re growth!!
Apologies for asking a trivial question amongst all the more serious issues!! 2 yrs post chemo my hair is not recovering. Had growth but super thin. Don't have the money for trial and error re products and the recommendations from my hairdresser haven't worked. I take daily Biotin. Any tried and tested
Apologies for asking a trivial question amongst all the more serious issues!! 2 yrs post chemo my hair is not recovering. Had growth but super thin. Don't have the money for trial and error re products and the recommendations from my hairdresser haven't worked. I take daily Biotin. Any tried and tested
suzannebirch
in
My Ovacome
10 months ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
10 months ago
Help please!! Rucaparib to Letrozole.
Hi everyone. Hope all you warriors are doing well. I wondered if any of you have any words of wisdom for us? My mum was diagnosed in May 2019, had chemo and debulking surgery, which worked amazingly well. Sadly, reoccurred within 10months of being NED. Again, had Chemo and secondary debulking. Mum
Hi everyone. Hope all you warriors are doing well. I wondered if any of you have any words of wisdom for us? My mum was diagnosed in May 2019, had chemo and debulking surgery, which worked amazingly well. Sadly, reoccurred within 10months of being NED. Again, had Chemo and secondary debulking. Mum
Jayk26
in
My Ovacome
10 months ago
lymphocytes/neutrophils
Hello everyone, My name is Kim and I’m a 57 year old female with CLL. I was diagnosed 13 years ago and underwent aggressive chemo as a result. After 5 of 6 of fludarabine cyclophosphamide rituximab I went into semi remission and now after many hospitalizations with infection have IVIG once a month
Hello everyone, My name is Kim and I’m a 57 year old female with CLL. I was diagnosed 13 years ago and underwent aggressive chemo as a result. After 5 of 6 of fludarabine cyclophosphamide rituximab I went into semi remission and now after many hospitalizations with infection have IVIG once a month
Kimsome
in
CLL Support
10 months ago
Help me so anxious
Hi. I am 72 I have myasthenia gravis, rheumatoid arthritis, diabetes, breast cancer survivor. My husband of 54 years is in a alzheimer facility , he is not mobile at all. It all happened so suddenly . Started in November 2022. I am by myself my daughter is in alaska we just moved here July of
Hi. I am 72 I have myasthenia gravis, rheumatoid arthritis, diabetes, breast cancer survivor. My husband of 54 years is in a alzheimer facility , he is not mobile at all. It all happened so suddenly . Started in November 2022. I am by myself my daughter is in alaska we just moved here July of
Nervousnancy
in
Anxiety and Depression Support
10 months ago
Back Pain after Chemo?
My wife recently started IV Carboplatin and she’s experienced excruciating lower back and hip pain for the first few days after her treatment (AUC6 dosing, once every 3 weeks). She has numerous pelvic metastases as well as chronic stenosis in her lower back. We’re struggling to try to determine whether
My wife recently started IV Carboplatin and she’s experienced excruciating lower back and hip pain for the first few days after her treatment (AUC6 dosing, once every 3 weeks). She has numerous pelvic metastases as well as chronic stenosis in her lower back. We’re struggling to try to determine whether
Half-Full
in
SHARE Metastatic Breast Cancer
10 months ago
3B and falling fast
Good day: Age 68, farm wife. BMI 25. (about 20# overweight) Non-smoker. Stage 3B kidney disease, and GFR falling every month. Right now at 30 with creatinine at 1.81. Comorbidities are Polymyalgia Rheumatica , Giant Cell Arteritis, MGUS, resistant hypertension. This morning was 185/107
Good day: Age 68, farm wife. BMI 25. (about 20# overweight) Non-smoker. Stage 3B kidney disease, and GFR falling every month. Right now at 30 with creatinine at 1.81. Comorbidities are Polymyalgia Rheumatica , Giant Cell Arteritis, MGUS, resistant hypertension. This morning was 185/107
phebamom
in
Kidney Disease
10 months ago
Leaking eyes.
The chemo drug Taxotere, I was told causes it.
The chemo drug Taxotere, I was told causes it.
Burtie1
in
SHARE Metastatic Breast Cancer
10 months ago
Pluvicto side effects…
… are kicking my butt. I have my third round next week. I’m more fatigued than with chemo, bone pain, can’t eat, constipation — all the stuff. I’m even more concerned now because I was Rx-ed oxycodone and have increasingly been turning to that for temporary physical relief. I’m starting to think maybe
… are kicking my butt. I have my third round next week. I’m more fatigued than with chemo, bone pain, can’t eat, constipation — all the stuff. I’m even more concerned now because I was Rx-ed oxycodone and have increasingly been turning to that for temporary physical relief. I’m starting to think maybe
Arel8
in
Advanced Prostate Cancer
10 months ago
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