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Disappointing News from CT and Clinical Trial
Well folks, I went for my fourth dose in the Phase 1 clinical at Sarah Cannon Research this week and had first follow-up CT since treatment started. Met with Dr. prior to treatment and he shared the scan results which showed progression in liver and abdomen in general. He strongly advised I needed
Well folks, I went for my fourth dose in the Phase 1 clinical at Sarah Cannon Research this week and had first follow-up CT since treatment started. Met with Dr. prior to treatment and he shared the scan results which showed progression in liver and abdomen in general. He strongly advised I needed
Pmann
in
Advanced Prostate Cancer
3 months ago
Blood
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
ChillyAsh34
in
MPN Voice
3 months ago
Update - experiene so far.!
Hi All, Well I am now 7 weeks post my Ivor Lewis surgey in Broomfield (Chelmsford UK) which is a regional center for this type of operation as not done in my home county of Suffolk. Surgery went well , and was out in 7 days..I quite determnned type and was fit prior to my diagnosis of OC. Had 4 lots
Hi All, Well I am now 7 weeks post my Ivor Lewis surgey in Broomfield (Chelmsford UK) which is a regional center for this type of operation as not done in my home county of Suffolk. Surgery went well , and was out in 7 days..I quite determnned type and was fit prior to my diagnosis of OC. Had 4 lots
LarryLamb69
in
Oesophageal & Gastric Cancer
3 months ago
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repost - cancer progression - next steps?
I am reposting in the hope of receiving a response regarding best next steps. Please see my profile for history on my dad's condition. He went to the ER last weekend with severe flank pain and CT revealed left-sided hydronephrosis as likely cystic soft tissue mass obstructing the left ureter. An anterograde
I am reposting in the hope of receiving a response regarding best next steps. Please see my profile for history on my dad's condition. He went to the ER last weekend with severe flank pain and CT revealed left-sided hydronephrosis as likely cystic soft tissue mass obstructing the left ureter. An anterograde
Juju0713
in
Advanced Prostate Cancer
3 months ago
Bloods and Test Results - Patient Knowledge
Hi ladies Do you get copies of your blood test results and if so how are they given to you and from/ at what stage in your treatment? I am mid front line chemo. I had extra bloods done and 2 TV scans a few weeks ago due to pelvic pain. The doctor doing my 2nd one had my results in front of her and
Hi ladies Do you get copies of your blood test results and if so how are they given to you and from/ at what stage in your treatment? I am mid front line chemo. I had extra bloods done and 2 TV scans a few weeks ago due to pelvic pain. The doctor doing my 2nd one had my results in front of her and
Emcee71
in
My Ovacome
3 months ago
depression
It,s now five years since I had an oesphagectomy. I find that I,m suffering from flashbacks a lot of the time. It was eighteen months of continual tests before I was diagnosed then I had chemotherapy and radiotherapy followed by surgery. I,m used to my new normal now regarding diet etc however it’s this
It,s now five years since I had an oesphagectomy. I find that I,m suffering from flashbacks a lot of the time. It was eighteen months of continual tests before I was diagnosed then I had chemotherapy and radiotherapy followed by surgery. I,m used to my new normal now regarding diet etc however it’s this
Summerson
in
My Cancer Community
3 months ago
Does this sound like Lymphoedema?
Hi 👋 I'm worried that I'm getting lymphoedema.... I was treated for triple negative breast cancer in 2019 and had a horrible time with chemo, a lumpectomy with SLNB, a second op to clear the rest of the lymph nodes, and finished with 4 weeks of radiotherapy ending in Jan '20. After the clearance op
Hi 👋 I'm worried that I'm getting lymphoedema.... I was treated for triple negative breast cancer in 2019 and had a horrible time with chemo, a lumpectomy with SLNB, a second op to clear the rest of the lymph nodes, and finished with 4 weeks of radiotherapy ending in Jan '20. After the clearance op
LivvyCat
in
My Breast Cancer Community
3 months ago
Buprenorphine and constipation.
Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot about the nausea it causes but not that other side effect of all morphine drugs. Is it better or worse than other opioids? As it is supposed to be the best one for controlling RLS and my Neurologist is going to ask my GP to
Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot about the nausea it causes but not that other side effect of all morphine drugs. Is it better or worse than other opioids? As it is supposed to be the best one for controlling RLS and my Neurologist is going to ask my GP to
Ruffabug
in
Restless Legs Syndrome
3 months ago
Xofigo anyone?
So my PSA is rising after Chemo, Lupron and NUBEQA (Darolutamide). It rose from 0.04 in June 2023 to 0.84 at the end on April 2024 with latest time of doubling about 5 weeks, 2.3 years after diagnosis. I don't have organ on lymph node metastasis yet. My oncologists team suggests Xofigo/Ra-223 as a next
So my PSA is rising after Chemo, Lupron and NUBEQA (Darolutamide). It rose from 0.04 in June 2023 to 0.84 at the end on April 2024 with latest time of doubling about 5 weeks, 2.3 years after diagnosis. I don't have organ on lymph node metastasis yet. My oncologists team suggests Xofigo/Ra-223 as a next
Oldie68
in
Advanced Prostate Cancer
3 months ago
Is my sister repeating history?
I have a younger sister. Through the previous posts you would know that my younger brother is undergoing chemotherapy treatment for almost 7 months now. So this post is dedicated to my sister. I came across something shocking. She is around 12. And has been the life of the party. She is a jolly person
I have a younger sister. Through the previous posts you would know that my younger brother is undergoing chemotherapy treatment for almost 7 months now. So this post is dedicated to my sister. I came across something shocking. She is around 12. And has been the life of the party. She is a jolly person
Kaashi_Reads
in
Anxiety and Depression Support
3 months ago
Dizzy Spells
Not sure if Heart or Meds related.Do occasionally suffer from feeling a bit funny/dizzy if i move to quick after sitting etc (used to that as blood pressure drops when standing up, partly down to meds Bisoprolol-so learned how to deal) However previous week was out with wife in a shop, i looked at a
Not sure if Heart or Meds related.Do occasionally suffer from feeling a bit funny/dizzy if i move to quick after sitting etc (used to that as blood pressure drops when standing up, partly down to meds Bisoprolol-so learned how to deal) However previous week was out with wife in a shop, i looked at a
bobby1290
in
British Heart Foundation
3 months ago
What next? re maintenance for HGS recurrence
Would love to know if any ladies who has also been unsuccessful with Olaparib, what has been a successful maintenance for you? I’ve just got 2 cycles more of Carbo/Caelyx, min scan showed slight reduction not as good as hoped for. Only maintenance mentioned by oncologist is to go on Letrozole. I
Would love to know if any ladies who has also been unsuccessful with Olaparib, what has been a successful maintenance for you? I’ve just got 2 cycles more of Carbo/Caelyx, min scan showed slight reduction not as good as hoped for. Only maintenance mentioned by oncologist is to go on Letrozole. I
Towergirl
in
My Ovacome
3 months ago
Clarity Update: Complete response in first patient ever treated with 2 doses of Cu-67 SAR-bisPSMA at 8GBq
Highlights A complete response, based on Response Evaluation Criteria In Solid Tumours (RECIST v1.1) assessment, has been reported from the first patient with metastatic castrate-resistant prostate cancer (mCRPC) to ever receive two cycles of Clarity’s 67Cu-SAR-bisPSMA at the 8GBq dose level. The patient
Highlights A complete response, based on Response Evaluation Criteria In Solid Tumours (RECIST v1.1) assessment, has been reported from the first patient with metastatic castrate-resistant prostate cancer (mCRPC) to ever receive two cycles of Clarity’s 67Cu-SAR-bisPSMA at the 8GBq dose level. The patient
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
cancer progression
Hello, please see my profile for history on my dad's condition. He went to the ER this weekend with severe flank pain and CT revealed left-sided hydronephrosis as likely cystic soft tissue mass obstructing the left ureter. An anterograde stent was placed after failure of retrograde stent. The cancer
Hello, please see my profile for history on my dad's condition. He went to the ER this weekend with severe flank pain and CT revealed left-sided hydronephrosis as likely cystic soft tissue mass obstructing the left ureter. An anterograde stent was placed after failure of retrograde stent. The cancer
Juju0713
in
Advanced Prostate Cancer
3 months ago
After Four Cycles of Ra-223
After four cycles of Ra-223 sadly it seems not to be doing as well as we would of liked. I have numinous new uptakes (to numinous to mention) as well as an increase in size of some of the older sites while a few have decreased in size or disappeared the new activity is outweighing the overall success
After four cycles of Ra-223 sadly it seems not to be doing as well as we would of liked. I have numinous new uptakes (to numinous to mention) as well as an increase in size of some of the older sites while a few have decreased in size or disappeared the new activity is outweighing the overall success
TheWizardofWesley
in
Advanced Prostate Cancer
3 months ago
I feel like my life imploded
Life has been a rollercoaster. I have barely been able to get out of bed. My meds quit working months ago. My veins quit cooperating so they've been using the veins in my hands before they decide to put a port in me- Which I am not looking forward to. I have done everything they've said to avoid it,
Life has been a rollercoaster. I have barely been able to get out of bed. My meds quit working months ago. My veins quit cooperating so they've been using the veins in my hands before they decide to put a port in me- Which I am not looking forward to. I have done everything they've said to avoid it,
silentdreamer20
in
Anxiety and Depression Support
3 months ago
first recurrence
hi peeps , I started new rounds of chemo for floating cluster cells , detected after they drained 2.5 L of fluid from my belly. CA 125 820 I’m on Carboplatin / gemcitabine Did anyone had the same?
hi peeps , I started new rounds of chemo for floating cluster cells , detected after they drained 2.5 L of fluid from my belly. CA 125 820 I’m on Carboplatin / gemcitabine Did anyone had the same?
Vegana
in
My Ovacome
3 months ago
Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
3 months ago
Alimta - Fevers
My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5 years but unfortunately the beast returned in 2021 and since then she has been under constant treatment. Her last scan a few months back showed
My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5 years but unfortunately the beast returned in 2021 and since then she has been under constant treatment. Her last scan a few months back showed
ShamilaS
in
SHARE Ovarian Cancer Support
3 months ago
Fevers
My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5 years but unfortunately the beast returned in 2021 and since then she has been under constant treatment. Her last scan a few months back showed
My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5 years but unfortunately the beast returned in 2021 and since then she has been under constant treatment. Her last scan a few months back showed
ShamilaS
in
My Ovacome
3 months ago
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