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I need a doctor who will listen to me!
I am infuriated. I am experiencing augmentation after 4 years on ropinirole. I experience severe RLS at least every other night and consequently do not get any sleep at all. The RLS has even spread beyond my legs. I finally discovered (after some research on the RLS foundation website) that if I take
I am infuriated. I am experiencing augmentation after 4 years on ropinirole. I experience severe RLS at least every other night and consequently do not get any sleep at all. The RLS has even spread beyond my legs. I finally discovered (after some research on the RLS foundation website) that if I take
cjouelle
in
Restless Legs Syndrome
4 years ago
Sick of having to justify pain to GP
Another rubbish experience with GP today has left me feeling guilty and horrible. Had to ring to extend my sick note as I’m unable to sit or stand for very long due to stage 4 endometriosis and the damage it has caused to my nerves and bladder. After much explaining she agreed to extend the note but
Another rubbish experience with GP today has left me feeling guilty and horrible. Had to ring to extend my sick note as I’m unable to sit or stand for very long due to stage 4 endometriosis and the damage it has caused to my nerves and bladder. After much explaining she agreed to extend the note but
Lily1986
in
Endometriosis UK
4 years ago
Here's Dr Buchfuhrer's response to Temgesic use
I asked Dr B if he had any evidence or studies to support Mrs P's request to have Temgesic prescribed for refactory RLS in the UK. I'll try to add the pdf he talks about, later on. This is his reply: 'The use of buprenorphine for treating RLS is relatively new so there is no literature on the use of
I asked Dr B if he had any evidence or studies to support Mrs P's request to have Temgesic prescribed for refactory RLS in the UK. I'll try to add the pdf he talks about, later on. This is his reply: 'The use of buprenorphine for treating RLS is relatively new so there is no literature on the use of
puzzler1
in
Restless Legs Syndrome
4 years ago
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Temgesic - letter to the Consultant - raising the profile
If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write down their experiences and send it to their doctors. We sent this as an email together with the evidence for Temgesic success stories. I'm hoping
If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write down their experiences and send it to their doctors. We sent this as an email together with the evidence for Temgesic success stories. I'm hoping
puzzler1
in
Restless Legs Syndrome
4 years ago
Disappointment in the healthcare in the UK
Hi guys !!! I am here to rant Because I am really disappointed . A few months ago I had a very random incident where I woke up at 6am in the morning needing to vomit ( I rarely feel sick) so this was strange, this was accompanied by an excruciating stitch pain in my groin , it was so intense I could
Hi guys !!! I am here to rant Because I am really disappointed . A few months ago I had a very random incident where I woke up at 6am in the morning needing to vomit ( I rarely feel sick) so this was strange, this was accompanied by an excruciating stitch pain in my groin , it was so intense I could
Fooofs91
in
Endometriosis UK
4 years ago
Opioids
Trigger: Sucide and Death Okay for my mom for the the past five years has had trouble with Cigna. She might have kepl fel syndrome. Now the doctors are pushing and pushing opioids cause she might not be able to get surgery. An you see as proven opioids are addictive. I lost my cousin to overdose and
Trigger: Sucide and Death Okay for my mom for the the past five years has had trouble with Cigna. She might have kepl fel syndrome. Now the doctors are pushing and pushing opioids cause she might not be able to get surgery. An you see as proven opioids are addictive. I lost my cousin to overdose and
mcginnmx
in
Heal My PTSD
4 years ago
Depression Vs Chronic Pain
My whole life I have battled this demon of depression. And so many doctors, and so many different meds, which all would eventually just STOP. After I broke my neck 10 years ago, my life changed so dramatically that I was left with severe Chronic pain and post traumatic migraine syndrome (yes, apparently
My whole life I have battled this demon of depression. And so many doctors, and so many different meds, which all would eventually just STOP. After I broke my neck 10 years ago, my life changed so dramatically that I was left with severe Chronic pain and post traumatic migraine syndrome (yes, apparently
Womannchains
in
Anxiety and Depression Support
4 years ago
Why are benzos so vilified and how do I bring this up with a new doctor without sounding like a drug seeker?
I have an appointment with a new provider. He gave me an initial consult regarding what I was currently taking. He was cool with almost all my regimen except for the klonopin part (.5mgx2/day). I've expressed willingness to try other meds for anxiety, but at the same time, klonopin/benzos are the only
I have an appointment with a new provider. He gave me an initial consult regarding what I was currently taking. He was cool with almost all my regimen except for the klonopin part (.5mgx2/day). I've expressed willingness to try other meds for anxiety, but at the same time, klonopin/benzos are the only
jonghee
in
Anxiety Support
4 years ago
LDN
Has anyone tried or researched low dose naltrexone for pain symptoms? From what I’ve read is it works like opioids. I’ve tried opioids once and didn’t seem to help. Just wondered if it may work a little different also. Shows that it helps with MS and neuropathy so possible. The last increase in Gabapentin
Has anyone tried or researched low dose naltrexone for pain symptoms? From what I’ve read is it works like opioids. I’ve tried opioids once and didn’t seem to help. Just wondered if it may work a little different also. Shows that it helps with MS and neuropathy so possible. The last increase in Gabapentin
Equinney
in
AMN EASIER
4 years ago
Question
I a m.j confused about people asking for opiods for RLS. I AM CONFUSED. I have read several First time posts to see a doctor,and , hopefully you will GET opioids. ??? Sounds more like an addiction problem . RLS sucks. But, seriously, opioids?
I a m.j confused about people asking for opiods for RLS. I AM CONFUSED. I have read several First time posts to see a doctor,and , hopefully you will GET opioids. ??? Sounds more like an addiction problem . RLS sucks. But, seriously, opioids?
Meg123abc
in
Restless Legs Syndrome
4 years ago
Stopping anti coag before a biopsy and dental treatment
Hi has anyone had to have a liver biopsy and how long before did you have to stop your anti coag I'm on apixiban also for tooth extraction as I've had a run in with a hoover and loosened 4 teeth
Hi has anyone had to have a liver biopsy and how long before did you have to stop your anti coag I'm on apixiban also for tooth extraction as I've had a run in with a hoover and loosened 4 teeth
Ticktoc
in
AF Association
4 years ago
27 Things You Understand Only If You Live with Chronic Pain
‘People believe that they “understand chronic pain” because they have also felt pain but it's a completely different thing when it's day in and day out for years.’
Chronic Pain
If you’re reading this, you likely already know that there is a large — but largely silent — problem of chronic pain
‘People believe that they “understand chronic pain” because they have also felt pain but it's a completely different thing when it's day in and day out for years.’
Chronic Pain
If you’re reading this, you likely already know that there is a large — but largely silent — problem of chronic pain
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Antiviral treatment
Hello, Has anyone here tried an antiviral treatment for their MS? If yes, which drug and what was the outcome? A nice day to all!
Hello, Has anyone here tried an antiviral treatment for their MS? If yes, which drug and what was the outcome? A nice day to all!
Lara1
in
My MSAA Community
4 years ago
Dental question
I have to have two teeth extracted and have been told to stop Pred the day before and on the day of the treatment. I’m really confused with this instruction because I also had to have teeth extracted whilst I was on 30mg Pred and the same dentist told me not to change my dosage! Apart from wondering
I have to have two teeth extracted and have been told to stop Pred the day before and on the day of the treatment. I’m really confused with this instruction because I also had to have teeth extracted whilst I was on 30mg Pred and the same dentist told me not to change my dosage! Apart from wondering
Janann25
in
PMRGCAuk
4 years ago
Heart Failure effect Dental Infection and Extraction
I have had a tooth removed after my dentist diagnosed the toothache I had. I think I have read that invasive dental treatment effect heart failure, which I have stage 2/3 mitral regurgitation and aortic stenosis.
I have had a tooth removed after my dentist diagnosed the toothache I had. I think I have read that invasive dental treatment effect heart failure, which I have stage 2/3 mitral regurgitation and aortic stenosis.
woodbon
in
British Heart Foundation
4 years ago
My poor mum
My poor mum has fallen flat on her face and knocked her front teeth out 😢 I assumed her treatment would be free as she is 78 but my brother thinks you have to pay. Someone said they had a dental implant and it was £2,500 and my mum needs two. It happened yesterday early evening so they can’t speak
My poor mum has fallen flat on her face and knocked her front teeth out 😢 I assumed her treatment would be free as she is 78 but my brother thinks you have to pay. Someone said they had a dental implant and it was £2,500 and my mum needs two. It happened yesterday early evening so they can’t speak
Agoodenough
in
Positive Wellbeing During Self-Isolation
4 years ago
Neupro causing Augmentation
Could I please ask anyone who has experience of using opioids what is the preferred choice and minimum dose that is effective? In the recent warm weather due to physical work outdoors I have not been able to keep the patch on . The symptoms were 10 times worse than before I started. My GP has often suggested
Could I please ask anyone who has experience of using opioids what is the preferred choice and minimum dose that is effective? In the recent warm weather due to physical work outdoors I have not been able to keep the patch on . The symptoms were 10 times worse than before I started. My GP has often suggested
Poppip
in
Restless Legs Syndrome
4 years ago
Dr. Buchfuhrer Visit
Hello friends. I’ve just had the pleasure of traveling to California to see Dr. Buchfuhrer. What a caring and knowledgeable man. I wanted to share his treatment plan in the hopes that it can help others... I was taking Gabapentin 1200 mg every evening at the time of my visit. He prefers Horizant
Hello friends. I’ve just had the pleasure of traveling to California to see Dr. Buchfuhrer. What a caring and knowledgeable man. I wanted to share his treatment plan in the hopes that it can help others... I was taking Gabapentin 1200 mg every evening at the time of my visit. He prefers Horizant
Jimbo77
in
Restless Legs Syndrome
4 years ago
Give your views: UK Public consultation on Painkillers
Give your views on painkillers for low back pain, musculoskeletal pain under "Chronic pain: assessment and management". https://www.nice.org.uk/guidance/indevelopment/gid-ng10069/consultation/html-content-2 Newspaper article here: https://www.newsandstar.co.uk/news/national/18624677.painkillers-like-paracetamol-not-prescribed-chronic-pain
Give your views on painkillers for low back pain, musculoskeletal pain under "Chronic pain: assessment and management". https://www.nice.org.uk/guidance/indevelopment/gid-ng10069/consultation/html-content-2 Newspaper article here: https://www.newsandstar.co.uk/news/national/18624677.painkillers-like-paracetamol-not-prescribed-chronic-pain
RecoveringH
in
Headway
4 years ago
How can we decrease pain on bones?
After 23 of 35 days of radiotherapy I have met many people and have even made good friends. A friend of this new group has bone metastases and great pain, he is currently on opioids but his pain is not diminished. Does anyone have an idea how he could decrease this pain? Many thanks!
After 23 of 35 days of radiotherapy I have met many people and have even made good friends. A friend of this new group has bone metastases and great pain, he is currently on opioids but his pain is not diminished. Does anyone have an idea how he could decrease this pain? Many thanks!
juvety
in
Advanced Prostate Cancer
4 years ago
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