Post 636 Know what "YOU" are taking 23... - My MSAA Community

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Post 636 Know what "YOU" are taking 23 Apr 2020 2

RoyceNewton profile image
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The last time I checked everybody on this site has some form of ms. So this should be obvious to everybody. With ms, we take all sorts of medicines at different dosages and at different times. Make a list of your medicines. When “YOU” take them, how many and at what dosage, and most importantly WHY. A few years back I had a very long list of Trigeminal neuralgia medicines. When I overdosed, which I did. The paramedics and she who must be obeyed knew what I had taken and I could sometimes say how much. My overdoses were always from Opioids so emergency care was pretty easy. I could show what I was taking and why.

If drugs interacted negatively it was possible to tell. I knew what I was taking. Whenever I visited the doctor they could easily look at what I took and when and see if adjusting doses or times might help. I took a lot of medicines but I always knew why. If my Doctor did not explain well I talked to my chemist (pharmacist). I asked questions, sometimes multiple times. I had two stock reasons, I have ms and I forget, and your phrasing did not gel with me, say it again in a different way please. It does not make me stupid, words mean different things to different people. Something said one way can be completely different when phrased another way.

Because I always knew what I was taking I could learn online about side effects or possible negative interactions. We do not get a lot of time the doctors, and we do not remember every question to ask. Do your research and know what is going on. It will make “YOU” a much better patient and much better able to advocate for yourself.

Royce (your ms writer)

you must always matter the most to you, so know what and why you are taking medicines

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RoyceNewton
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twooldcrows profile image
twooldcrows

yes is very important ...

Violonchelo profile image
Violonchelo

The doctor never told me why I take Rebif. Since 2005 I take it. And

It works . MR is well.

carolek572 profile image
carolek572CommunityAmbassador

Good post, Royce and thank you for this reminder to be your own advocate, always. :-D

bxrmom profile image
bxrmom

I always print an updated list of meds I take, dose, number of pills as some I take multiple of them at a time, and what they are for before my dr appts. Always a good reminder :)

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