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Opioid substitution treatment
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Opioids, narcotics, benzos
Has anyone had issues recently with doctors in the USA (specifically Michigan) not wanting to prescribe opiods, narcotics, benzos. Had my pregabalin (narcotic) refilled and had to sign a ridiculous drug contract stating (and these are only a few) I would reframe from alcohol and cannabis. Cannot receive
Has anyone had issues recently with doctors in the USA (specifically Michigan) not wanting to prescribe opiods, narcotics, benzos. Had my pregabalin (narcotic) refilled and had to sign a ridiculous drug contract stating (and these are only a few) I would reframe from alcohol and cannabis. Cannot receive
charlie1234567890
in
Restless Legs Syndrome
2 years ago
Which iron supplement is the best and what dose?
Hi there, having found this forum two weeks ago, am fascinated by everything I am finding out about this damn RLS! But had a blood test this morning and my ferritin levels are 48ug/L, serum iron is 14.1 and serum TIBC 53.7 and the transferring sat index 26% When I talked to my doctor last week, having
Hi there, having found this forum two weeks ago, am fascinated by everything I am finding out about this damn RLS! But had a blood test this morning and my ferritin levels are 48ug/L, serum iron is 14.1 and serum TIBC 53.7 and the transferring sat index 26% When I talked to my doctor last week, having
Jukebox55
in
Restless Legs Syndrome
2 years ago
Am I at risk of having too much calcium in my blood?
diagnosed Sept. 21 now tapered to 2 mg. in the summer I was informed that I would require some dental treatment, possibly an implant. After speaking to my dentist about the risks involved, as I was taking Alandronic acid, which I have always disliked taking, I decided for better or worse (and especially
diagnosed Sept. 21 now tapered to 2 mg. in the summer I was informed that I would require some dental treatment, possibly an implant. After speaking to my dentist about the risks involved, as I was taking Alandronic acid, which I have always disliked taking, I decided for better or worse (and especially
Fetlar73
in
PMRGCAuk
2 years ago
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Medical Anxiety through the roof
Have always had some degree of medical anxiety but nothing too debilitating. Last few years though as a result of some bad experiences (panic attack when sent for MRI, horrendous treatment in hospital when admitted following a bout of mild pancreatitis after having my gall bladder removed, difficult
Have always had some degree of medical anxiety but nothing too debilitating. Last few years though as a result of some bad experiences (panic attack when sent for MRI, horrendous treatment in hospital when admitted following a bout of mild pancreatitis after having my gall bladder removed, difficult
Menno1525
in
Anxiety and Depression Support
2 years ago
Frustration with Pregabalin
My appointment with Prof. Walker at Queen Square for RLS is not until February next year, so moving to opioids is not an option until then. In the meantime, since around July (after having been on Ropinirole for 15 years), I moved to taking 300mg Pregabalin of an evening ... which I then have to top
My appointment with Prof. Walker at Queen Square for RLS is not until February next year, so moving to opioids is not an option until then. In the meantime, since around July (after having been on Ropinirole for 15 years), I moved to taking 300mg Pregabalin of an evening ... which I then have to top
67Waterman
in
Restless Legs Syndrome
2 years ago
NEURO LIFE NOW SURVEY UK
To raise awareness of the lack of medical training and the poor treatment of RLS in the UK, it would be very helpful if all UK RLS patients would complete this survey by Neuro Life Now. It's run by the Brain and Spine Foundation and they receive funding for research and treatment. Share it on other platforms
To raise awareness of the lack of medical training and the poor treatment of RLS in the UK, it would be very helpful if all UK RLS patients would complete this survey by Neuro Life Now. It's run by the Brain and Spine Foundation and they receive funding for research and treatment. Share it on other platforms
Joolsg
in
Restless Legs Syndrome
2 years ago
Vitamin D dosage
Thank you to all those who answered my question about taking a large dose of Vitamin D to avoid covid and other viruses during the winter. I have read them all very carefully and have decided to stick with the dose in my 2 Calcichew per day. I had Covid in August, felt ill, but not terrible for 2 days
Thank you to all those who answered my question about taking a large dose of Vitamin D to avoid covid and other viruses during the winter. I have read them all very carefully and have decided to stick with the dose in my 2 Calcichew per day. I had Covid in August, felt ill, but not terrible for 2 days
Booklist
in
PMRGCAuk
2 years ago
Alternative/Natural therapies for RLS
For those who want to manage their RLS without medication, there are recent science articles on Paeoniae Alba, a plant used in traditional Chinese medicine. It seems interesting. I'm too far down the medication route but for those newly diagnosed or with milder RLS or those who do not want to take Alpha2Delta
For those who want to manage their RLS without medication, there are recent science articles on Paeoniae Alba, a plant used in traditional Chinese medicine. It seems interesting. I'm too far down the medication route but for those newly diagnosed or with milder RLS or those who do not want to take Alpha2Delta
Joolsg
in
Restless Legs Syndrome
2 years ago
Help from those taking Methadone
I need a shoulder replacement and is scheduled soon. I have been taking methadone to control my RLS. When I told my surgeon that I was taking methadone, he told me that he could not manage my pain. He said that anything that he gave me wouldn’t control my pain. He suggested to ask my neurologist or go
I need a shoulder replacement and is scheduled soon. I have been taking methadone to control my RLS. When I told my surgeon that I was taking methadone, he told me that he could not manage my pain. He said that anything that he gave me wouldn’t control my pain. He suggested to ask my neurologist or go
Merny5
in
Restless Legs Syndrome
2 years ago
Insomnia from Temgesic - Drug Combination ?
I have tried most of the drugs available for RLS over the years- including different opioids. I have been taking .200mc Temgesic with 0.25 Zanax every night for over a year. This has been fairly successful- usually having one or two RLS episodes a night and some insomnia. I lie in bed with my heart
I have tried most of the drugs available for RLS over the years- including different opioids. I have been taking .200mc Temgesic with 0.25 Zanax every night for over a year. This has been fairly successful- usually having one or two RLS episodes a night and some insomnia. I lie in bed with my heart
2689
in
Restless Legs Syndrome
2 years ago
Attn US RLS Opioid patients
By now you have likely heard that new guidelines on prescribing opioids have been released. Unfortunately, RLS was not considered in the update. This change will fuel the RLS Foundation’s advocacy work to ensure a carve-out for RLS in the future. In the interim, please report any problems you face
By now you have likely heard that new guidelines on prescribing opioids have been released. Unfortunately, RLS was not considered in the update. This change will fuel the RLS Foundation’s advocacy work to ensure a carve-out for RLS in the future. In the interim, please report any problems you face
DataRN
in
Restless Legs Syndrome
2 years ago
Problems in U.S.A. Refilling Opioids/other controlled substances
All we RLS and PLMD’ers need is more stress right? I have 2 prescriptions for controlled substances. I use Walgreens Pharmacy. They’ve tightened up their policies re: opioids so much, it’s putting patients at risk. Last month, I submitted refill requests every day for 3 days prior (what I’ve always
All we RLS and PLMD’ers need is more stress right? I have 2 prescriptions for controlled substances. I use Walgreens Pharmacy. They’ve tightened up their policies re: opioids so much, it’s putting patients at risk. Last month, I submitted refill requests every day for 3 days prior (what I’ve always
ircam2112
in
Restless Legs Syndrome
2 years ago
Maybe now the cruelty can stop
The U.S. CDC, doctors and organizations who, directly or indirectly, inhumanely reduced and/or cut people off from opioids for pain or RLS now have a chance to redeem their cruel decisions based on new CDC guidelines (link below) released 11/03/22. It can be shown that the medical community’s response
The U.S. CDC, doctors and organizations who, directly or indirectly, inhumanely reduced and/or cut people off from opioids for pain or RLS now have a chance to redeem their cruel decisions based on new CDC guidelines (link below) released 11/03/22. It can be shown that the medical community’s response
ircam2112
in
Restless Legs Syndrome
2 years ago
Pregabalin + Ropinirole or Opioids
After a recent post from Amrob explaining that they add 0.125mg or 0.25mg Clonazepam to 300 mg Pregabalin when the Pregabalin does not cut ... I do the same with Ropinirole, adding 0.125mg nightly to 300 mg Pregabalin, because I will never get to sleep otherwise ..... I wonder what the thoughts are
After a recent post from Amrob explaining that they add 0.125mg or 0.25mg Clonazepam to 300 mg Pregabalin when the Pregabalin does not cut ... I do the same with Ropinirole, adding 0.125mg nightly to 300 mg Pregabalin, because I will never get to sleep otherwise ..... I wonder what the thoughts are
67Waterman
in
Restless Legs Syndrome
2 years ago
New US CDC Guidance for prescribing Opioids ( finally )
This is the first update since 2016 when they started abruptly stopping peoples Opioids without care factor or tapering. The new guidelines explicitly advises against abrupt discontinuation or rapid reductions of opioids. That is based on sessions learned over the last few years as well as science
This is the first update since 2016 when they started abruptly stopping peoples Opioids without care factor or tapering. The new guidelines explicitly advises against abrupt discontinuation or rapid reductions of opioids. That is based on sessions learned over the last few years as well as science
Shumbah
in
Restless Legs Syndrome
2 years ago
New CDC Guidelines on Opioids
The CDC has released new guidelines on prescribing opioids which are much less stringent and emphasize returning the focus to the caregiver and patient deciding on the best course of treatment, This should help make it more likely your doctor will be willing to prescribe opioids when needed. https:/
The CDC has released new guidelines on prescribing opioids which are much less stringent and emphasize returning the focus to the caregiver and patient deciding on the best course of treatment, This should help make it more likely your doctor will be willing to prescribe opioids when needed. https:/
SueJohnson
in
Restless Legs Syndrome
2 years ago
Shout at the Moon
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
pennygates
in
Restless Legs Syndrome
2 years ago
Covid without Rituximab - Any Similar Experiences
We’ll here’s a strange one! I was at the Hospital today having my 3 monthly bloods in prep for my Rituximab in November. Sat in the waiting area was a bloke who at the same times as me was starting his treatment of Rituximab, so general hit chat “how you getting on mate” that kind of thing and it just
We’ll here’s a strange one! I was at the Hospital today having my 3 monthly bloods in prep for my Rituximab in November. Sat in the waiting area was a bloke who at the same times as me was starting his treatment of Rituximab, so general hit chat “how you getting on mate” that kind of thing and it just
Investigator1
in
Vasculitis UK
2 years ago
Help! Horrible pregabalin side effects
I would like to describe my experience with pregabalin and ask for help. I wrote on a recent thread that LFIT started about my starting pregabalin and taking 25mg the first night, 50 the second and 75 the third. I had horrible mood swings, depression and anxiety. I was told by Sue and LFIT that
I would like to describe my experience with pregabalin and ask for help. I wrote on a recent thread that LFIT started about my starting pregabalin and taking 25mg the first night, 50 the second and 75 the third. I had horrible mood swings, depression and anxiety. I was told by Sue and LFIT that
Doctorplacebo
in
Restless Legs Syndrome
2 years ago
Holistic first consultation of RLS sufferers with their doctor and use of intravenous iron therapy
Check this out….. Hot off the press… ..After the recent survey by European Federation of Neurology Associations (EFNA) October 3rd 2022* (see below) highlighting the more-than-disappointing results on skills of medical personnel….. This is the 1-10 points (or very similar) required in the urgently
Check this out….. Hot off the press… ..After the recent survey by European Federation of Neurology Associations (EFNA) October 3rd 2022* (see below) highlighting the more-than-disappointing results on skills of medical personnel….. This is the 1-10 points (or very similar) required in the urgently
Kakally
in
Restless Legs Syndrome
2 years ago
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