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Zanubrutinib and hair loss?
Hello and Happy Holidays to all! After almost 5 years post captivate trial, I will likely start Zanubrutinib in February or March. My specialist suggested taking Simvastatin in combination with Celebrex experimentally for a couple of months to see if my numbers remain stable. If not, then I will begin
Hello and Happy Holidays to all! After almost 5 years post captivate trial, I will likely start Zanubrutinib in February or March. My specialist suggested taking Simvastatin in combination with Celebrex experimentally for a couple of months to see if my numbers remain stable. If not, then I will begin
fell
in
CLL Support
8 months ago
shift work
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Nitenurse63
in
NRAS
5 months ago
Christmas carols and earplugs -update
Hello all - happy new year to you. Following my post below unfortunately the new tinnitus sounds have not subsided. I have now got constant hissing and static in my ear and neck on my left which has tinnitus which then at times right across the head and into my good ear! I have tried to find information
Hello all - happy new year to you. Following my post below unfortunately the new tinnitus sounds have not subsided. I have now got constant hissing and static in my ear and neck on my left which has tinnitus which then at times right across the head and into my good ear! I have tried to find information
Jane2012
in
Tinnitus UK
8 months ago
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Trabeculectomy at 18
Hi I had a Trabeculectomy back in July and sadly my vision has never been the same. The first few weeks my surgeon was surprised because everything went well, my vision was the same and my eye pressure dropped to a good level (13) from what it was (57). But afterwards my eye pressure dropped too low
Hi I had a Trabeculectomy back in July and sadly my vision has never been the same. The first few weeks my surgeon was surprised because everything went well, my vision was the same and my eye pressure dropped to a good level (13) from what it was (57). But afterwards my eye pressure dropped too low
Madara786
in
Glaucoma UK
8 months ago
Horizant tapering
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
JustVisiting23
in
Restless Legs Syndrome
8 months ago
Whose advice should I follow?
I had a trabeculectomy 18 months ago. Last July I went to a Moorfields virtual clinic for monitoring. I received a letter from the doctor a few days later to say that my visual field on the operated eye was gradually worsening & that I would be seen at the Consultant led clinic four months later. I
I had a trabeculectomy 18 months ago. Last July I went to a Moorfields virtual clinic for monitoring. I received a letter from the doctor a few days later to say that my visual field on the operated eye was gradually worsening & that I would be seen at the Consultant led clinic four months later. I
YoungontheOutside
in
Glaucoma UK
8 months ago
Azithromycin
Does anyone else take Azithromycin 3 times a week prophylactic? Just wondering if you have to take your rescue antibiotics due to chest infection, do you stop the Azithromycin?
Does anyone else take Azithromycin 3 times a week prophylactic? Just wondering if you have to take your rescue antibiotics due to chest infection, do you stop the Azithromycin?
revcathfrog
in
Lung Conditions Community Forum
8 months ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Wewo01
in
MPN Voice
8 months ago
A question on 'high' dosage
So I'm currently on 150mcg of levo and 30mcg T3 and my latest results were still only 65% and 62% respectively. I've just started HRT so I may well continue to see improvements but I'm curious about my dosing. I'm 6'1" and roughly 65kg so I'm on the cusp of underweight. I know we need what we need
So I'm currently on 150mcg of levo and 30mcg T3 and my latest results were still only 65% and 62% respectively. I've just started HRT so I may well continue to see improvements but I'm curious about my dosing. I'm 6'1" and roughly 65kg so I'm on the cusp of underweight. I know we need what we need
WitchingHour2point0
in
Thyroid UK
8 months ago
Picking
My husband with PD has been picking at his skin. Especially his hands. Dermatologist recommended lotions for dry skin. Neurologist says it’s not due to PD. He thinks he is peeling skin, but I don’t see anything. Seems to me to be more like a habit, like biting nails. Has anyone else had this feeling?
My husband with PD has been picking at his skin. Especially his hands. Dermatologist recommended lotions for dry skin. Neurologist says it’s not due to PD. He thinks he is peeling skin, but I don’t see anything. Seems to me to be more like a habit, like biting nails. Has anyone else had this feeling?
Shirleyam
in
Cure Parkinson's
8 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
6 months ago
Lymphocytic infiltration
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
cartwheels
in
CLL Support
8 months ago
SIBO!!! But fearing taking antibiotics, especially Neomicyn… I’ve heard of terrible side effects ( tinnitus and hearing loss).
Hello, here is my doctor's report: ''The report of your hydrogen and methane breath test is positive, both for small intestinal bacterial overgrowth as well as excessive methane-producing bacteria in the large bowel. It may be sensible to consider treatment with non-absorbable antibiotics. If you would
Hello, here is my doctor's report: ''The report of your hydrogen and methane breath test is positive, both for small intestinal bacterial overgrowth as well as excessive methane-producing bacteria in the large bowel. It may be sensible to consider treatment with non-absorbable antibiotics. If you would
Clara62
in
IBS Network
8 months ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
5 months ago
Why does everyone seem to have permanent tinnitus here?
What is the cause of permanent tinnitus? This is so worrying, as my tinnitus started this month due to ear canal infection. Would this be permanent? I have been prescribed otomize. Would that be helpful?
What is the cause of permanent tinnitus? This is so worrying, as my tinnitus started this month due to ear canal infection. Would this be permanent? I have been prescribed otomize. Would that be helpful?
Kiitty
in
Tinnitus UK
8 months ago
Interesting Article (please read)
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
Padayn01
in
AF Association
8 months ago
Newbie 0
Hi, I've recently been diagnosed with Gilbert's syndrome/disease. It was picked up via blood tests. I'm waiting to have a liver scan but the GP hasn't come up with any other plan. My main question at the minute is does anyone suffer with itching. Its not put down as one of the main symptoms but it's
Hi, I've recently been diagnosed with Gilbert's syndrome/disease. It was picked up via blood tests. I'm waiting to have a liver scan but the GP hasn't come up with any other plan. My main question at the minute is does anyone suffer with itching. Its not put down as one of the main symptoms but it's
HomerJSimpson
in
British Liver Trust
8 months ago
BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
8 months ago
EYE HEALTH: RELATIONSHIP OF PMR, PRED & MTX TO GLAUCOMA, CATARACTS, & DRY EYE
Hello everyone. Vacillated on a title for this post. I'll bet I covered it all. I've been on my hard PMR journey for 4+ years. Currently on 4mg Pred daily & 20mg MTX weekly. PMR pain is under control. My eyes have wept for the past 2 yrs; at times, non stop. Eyedrops are the common advice from my Optometrist
Hello everyone. Vacillated on a title for this post. I'll bet I covered it all. I've been on my hard PMR journey for 4+ years. Currently on 4mg Pred daily & 20mg MTX weekly. PMR pain is under control. My eyes have wept for the past 2 yrs; at times, non stop. Eyedrops are the common advice from my Optometrist
DrRon
in
PMRGCAuk
8 months ago
Corneal transplant
Hi all. A very happy Christmas to you all. I apologise if this is not an acceptable question on here as it is not related to RA but it is a great platform to air the question. I am desparately worried about my brother who needs a corneal transplant. Has anyone on here had one or knows of anyone who has
Hi all. A very happy Christmas to you all. I apologise if this is not an acceptable question on here as it is not related to RA but it is a great platform to air the question. I am desparately worried about my brother who needs a corneal transplant. Has anyone on here had one or knows of anyone who has
Sheila_G
in
NRAS
8 months ago
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