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PA and Sjogren’s
I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who has AIG/PA and also sjogrens? I feel desperately in need of some hope and guidance…in particular I’m wondering if injections have helped with SS
I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who has AIG/PA and also sjogrens? I feel desperately in need of some hope and guidance…in particular I’m wondering if injections have helped with SS
Lhood08
in
Pernicious Anaemia Society
4 months ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Eliquis for Antiphospholipid syndrome?
I had a pulmonary embolism and was prescribed Eliquis 5 mg 2xday. Does anyone else take Eliquis for pulmonary embolism? Are you experiencing any side effects?
I had a pulmonary embolism and was prescribed Eliquis 5 mg 2xday. Does anyone else take Eliquis for pulmonary embolism? Are you experiencing any side effects?
LavenderLemonade
in
Hughes Syndrome APS Forum
4 months ago
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newbie
Hi all I’m new to this group. I was diagnosed 18 months ago with tinnitus after I went the to my local Boots for hearing test and they said I had a 60% loss in my left ear, I was rather surprised. I was referred to audiologist given a hearing aid and that was that. Had two sessions of tinnitus therapy
Hi all I’m new to this group. I was diagnosed 18 months ago with tinnitus after I went the to my local Boots for hearing test and they said I had a 60% loss in my left ear, I was rather surprised. I was referred to audiologist given a hearing aid and that was that. Had two sessions of tinnitus therapy
bmb64
in
Tinnitus UK
4 months ago
apixiban and tumeric
I stopped taking tumeric and related supplements when I started taking apixiban on advice of Anti-Coagulation clinic. As a result of stopping tumeric, i got really bad joint pains over past four years. Is there really a possibility that I can actually take tumeric while taking apixiban? I do
I stopped taking tumeric and related supplements when I started taking apixiban on advice of Anti-Coagulation clinic. As a result of stopping tumeric, i got really bad joint pains over past four years. Is there really a possibility that I can actually take tumeric while taking apixiban? I do
kayberry
in
Atrial Fibrillation Support
4 months ago
Another experience proving we are all different
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
Peacefulneedshelp
in
Atrial Fibrillation Support
4 months ago
Work on healing balance
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Urinary Issues
I have had urinary issues for a long time. Urgency, frequency, retention, pain. No "incontinence" if i can get to a toilet or get the dick out to pee on the ground fast enough. Every day is a different combination of the above and I have never been able to figure out what causes each symptom or how
I have had urinary issues for a long time. Urgency, frequency, retention, pain. No "incontinence" if i can get to a toilet or get the dick out to pee on the ground fast enough. Every day is a different combination of the above and I have never been able to figure out what causes each symptom or how
spencoid2
in
Advanced Prostate Cancer
4 months ago
safe antidepressants
hi All, I wish I could cheer you up but unfortunately this is not a particularly happy post. I recently started suffering from pulsatile, tonal tinnitus , aural fullness and sound distortion in very quick succession. While the hearing test doesn’t show much change from previous ones, I am sure there
hi All, I wish I could cheer you up but unfortunately this is not a particularly happy post. I recently started suffering from pulsatile, tonal tinnitus , aural fullness and sound distortion in very quick succession. While the hearing test doesn’t show much change from previous ones, I am sure there
DanielaHobbs_
in
Tinnitus UK
4 months ago
dry eyes and mouth?
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
Lhood08
in
Pernicious Anaemia Society
4 months ago
Strange, possibly hopeful realisation
This post mentions alternative remedies. Any evidence is anecdotal, based on my experience. Always check with your oncologist before using something they haven't prescribed. So, I am dealing with the second recurrence and looking at third line treatment. And wondering why my cancer (clear cell and
This post mentions alternative remedies. Any evidence is anecdotal, based on my experience. Always check with your oncologist before using something they haven't prescribed. So, I am dealing with the second recurrence and looking at third line treatment. And wondering why my cancer (clear cell and
candyapplegrey
in
My Ovacome
4 months ago
Diagnosed with Venous thromboembolism
End of last year I felt really bad and over Xmas time really struggling to breath at times. Wen to the doctor and was diagnosed with High Blood pressure. I was already on tablets so they gave me a higher doses of Candesartan. First week in January my leg really started to hurt and as I had Deep Vein
End of last year I felt really bad and over Xmas time really struggling to breath at times. Wen to the doctor and was diagnosed with High Blood pressure. I was already on tablets so they gave me a higher doses of Candesartan. First week in January my leg really started to hurt and as I had Deep Vein
esquin
in
Anticoagulation Support
4 months ago
Anticoagulant changes
I wonder if any of you can advise me please on anticoagulants. I have been on Apixaban for some years and recently when I have had my repeat prescription from the pharmacy the manufacturer of Apixaban has changed four times. With the last one I experienced light headedness and with all of them tiredness
I wonder if any of you can advise me please on anticoagulants. I have been on Apixaban for some years and recently when I have had my repeat prescription from the pharmacy the manufacturer of Apixaban has changed four times. With the last one I experienced light headedness and with all of them tiredness
Ashburton51
in
Atrial Fibrillation Support
4 months ago
Theraglass
Due to start Gemcitabine in June for 2nd recurrence since surgery. Finished 7 months of caylex/ carbo in November. Really enjoying past 5 months of no treatment ( first time with no treatment in 3yrs). Not feeling ready to start again! Anyone else going through gemcitabine on its own and what your symptoms
Due to start Gemcitabine in June for 2nd recurrence since surgery. Finished 7 months of caylex/ carbo in November. Really enjoying past 5 months of no treatment ( first time with no treatment in 3yrs). Not feeling ready to start again! Anyone else going through gemcitabine on its own and what your symptoms
Theraglass
in
My Ovacome
4 months ago
Ear pain
Hello, I keep getting ear pain both sides. I have just been seen at ENT . He was more concerned about my snoring and is sending me for tests for sleep apnoea. He just said its fibromyalgia in your ears! I feel rather dismissed again. As they see your records and spot fibro, it's like an easy get out
Hello, I keep getting ear pain both sides. I have just been seen at ENT . He was more concerned about my snoring and is sending me for tests for sleep apnoea. He just said its fibromyalgia in your ears! I feel rather dismissed again. As they see your records and spot fibro, it's like an easy get out
Fatball
in
Fibromyalgia Action UK
4 months ago
alcohol with permanent AF
I am in permanent AF controlled with apixoban and verapamil have never had more than Ihalf a glass of wine probably a week however since being diagnosed have not touched any as am paranoid about making things worse a a chemist told me I was being overcautious when I asked about garlic does any one
I am in permanent AF controlled with apixoban and verapamil have never had more than Ihalf a glass of wine probably a week however since being diagnosed have not touched any as am paranoid about making things worse a a chemist told me I was being overcautious when I asked about garlic does any one
KelliEAnniE
in
Atrial Fibrillation Support
4 months ago
microscopic haematuria
so about a month ago i was getting vaginal infections that cause soreness and itchyness as well as burning to wee. It was put down to a UTI and was given antibiotics.i also had pelvic pain on my right side that came and went like a stitch. It never cleared so I ended up have 3 lots of antibiotics. Every
so about a month ago i was getting vaginal infections that cause soreness and itchyness as well as burning to wee. It was put down to a UTI and was given antibiotics.i also had pelvic pain on my right side that came and went like a stitch. It never cleared so I ended up have 3 lots of antibiotics. Every
Jellycat123
in
Bladder Health UK
4 months ago
Treatment changes - Rituximab?
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
whitedog
in
NRAS
4 months ago
Dry eye following Trabeculectomy
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Mitziecat
in
Glaucoma UK
4 months ago
Clicking
Good morning All I have had tinnitus for a long time now which I have been able to manage. Is there anyone out there who suffers from clicks in their ears? The thing with clicks is they are not constant there intermittent and there for not easy to ignore, I have had clicks for just over a year now
Good morning All I have had tinnitus for a long time now which I have been able to manage. Is there anyone out there who suffers from clicks in their ears? The thing with clicks is they are not constant there intermittent and there for not easy to ignore, I have had clicks for just over a year now
Hodgy62
in
Tinnitus UK
4 months ago
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