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ocrevus
I just started
Ocrevus
in July. Would like to know if anyone else is taking it . if so have you noticed a change?
I just started
Ocrevus
in July. Would like to know if anyone else is taking it . if so have you noticed a change?
Hidden
in
My MSAA Community
7 years ago
Stress related exacerbations ..... arrggghhh...
. 😢 Let me first say I'm sure it has nothing to do with
Ocrevus
. It was Tuesday when it all started to plummet from the edge of the cliff. Tuesday was my 44th b-day. No jimeka I didn't let you know for the b day club. Ever since my 21st birthday I have not been much on celebrating it.
. 😢 Let me first say I'm sure it has nothing to do with
Ocrevus
. It was Tuesday when it all started to plummet from the edge of the cliff. Tuesday was my 44th b-day. No jimeka I didn't let you know for the b day club. Ever since my 21st birthday I have not been much on celebrating it.
Allen5280
in
My MSAA Community
7 years ago
Medicine info needed
Does anyone in this group have any experience with or info on the new infusion drug
Ocrevus
? This is the route my Dr would like for me to try.
Does anyone in this group have any experience with or info on the new infusion drug
Ocrevus
? This is the route my Dr would like for me to try.
lcrosby3
in
My MSAA Community
7 years ago
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OCREVUS (finally)
To briefly summarize some of my past posts about
Ocrevus
: I had a neuro. appt. in April (shortly after O's approval).
To briefly summarize some of my past posts about
Ocrevus
: I had a neuro. appt. in April (shortly after O's approval).
bavery207
in
My MSAA Community
7 years ago
Ocrevus
I don't know how much being off Tysabri for so long is having an effect on the
Ocrevus
. According to my doctor, I have a severe case of MS and I'm not sure how my body supposed to feel. I don't feel any different.
I don't know how much being off Tysabri for so long is having an effect on the
Ocrevus
. According to my doctor, I have a severe case of MS and I'm not sure how my body supposed to feel. I don't feel any different.
Shelly36
in
My MSAA Community
7 years ago
Ocrevus question
I was wondering if any of you that are receiving
Ocrevus
got very puffy eyelids as well as black eyes?
I was wondering if any of you that are receiving
Ocrevus
got very puffy eyelids as well as black eyes?
MichaelFleeger
in
My MSAA Community
7 years ago
2nd Ocrevus infusion.
Sitting in a chair getting second
Ocrevus
infusion. 1st one went well but weakened my legs more than they usually are. Hopefully this drug will help in the long run. God's Peace and Love to all. Keep fighting and stay as active as possible!!
Sitting in a chair getting second
Ocrevus
infusion. 1st one went well but weakened my legs more than they usually are. Hopefully this drug will help in the long run. God's Peace and Love to all. Keep fighting and stay as active as possible!!
Yooper
in
My MSAA Community
7 years ago
1st Ocrevus infusion done.
Had my 1st infusion of
Ocrevus
. Best part of 5 hours from start to finish. Went well and feeling okay the next day. Hope this is the way to go. Did Novantrone years ago. I will need to check with
Ocrevus
. Novantrone was 12 doses ever. I only had 4 in a one year span.
Had my 1st infusion of
Ocrevus
. Best part of 5 hours from start to finish. Went well and feeling okay the next day. Hope this is the way to go. Did Novantrone years ago. I will need to check with
Ocrevus
. Novantrone was 12 doses ever. I only had 4 in a one year span.
Yooper
in
My MSAA Community
7 years ago
Found this on you tube😊
His name is Damian Washington and he gives his thoughts of choosing
Ocrevus
. He is good at explaining MS and I like his comedy. I finished my 2nd
Ocrevus
Thursday and I had no problems. I was so ready to get out of there.
His name is Damian Washington and he gives his thoughts of choosing
Ocrevus
. He is good at explaining MS and I like his comedy. I finished my 2nd
Ocrevus
Thursday and I had no problems. I was so ready to get out of there.
Becky63
in
My MSAA Community
7 years ago
Neuro/MS specialist & Ocrevus update
My doctor is happy and I am happy, so all the negatives that have been floating around the whole
Ocrevus
deals.... for me.... the risks are defiantly worth the rewards. My life, over the last 7 years have been a downward plummet.
My doctor is happy and I am happy, so all the negatives that have been floating around the whole
Ocrevus
deals.... for me.... the risks are defiantly worth the rewards. My life, over the last 7 years have been a downward plummet.
Allen5280
in
My MSAA Community
7 years ago
New Ocrevus Findings Continue to Show Benefit
https://multiplesclerosisnewstoday.com/2017/07/07/new-
ocrevus
-findings-underscore-relevance-for-multiple-sclerosis-interview-with-hideki-garren-of-genentech/ Nice to see the research continuing to report positive findings in both RRMS and PPMS.
https://multiplesclerosisnewstoday.com/2017/07/07/new-
ocrevus
-findings-underscore-relevance-for-multiple-sclerosis-interview-with-hideki-garren-of-genentech/ Nice to see the research continuing to report positive findings in both RRMS and PPMS.
dianekjs
in
My MSAA Community
7 years ago
2nd half of Ocrevus done
Completed 2nd half, feel great. After infusion went to the dispensary to get some CBD oil and green apple flavored gummies. Hoping it works for pain and to be able to sleep. Keep laughing because I have only taken 2 puffs of marijuana in my life and now I have a medical marijuana card.
Completed 2nd half, feel great. After infusion went to the dispensary to get some CBD oil and green apple flavored gummies. Hoping it works for pain and to be able to sleep. Keep laughing because I have only taken 2 puffs of marijuana in my life and now I have a medical marijuana card.
cnichols
in
My MSAA Community
7 years ago
I forgot a possible key factor in my update.
I realized I had forgotten to mention about the diet changes I have also incorporated into fighting this monster as well as
Ocrevus
. Over the last 6 months or so I had been changing some of the foods I had once preferred from articles I had read about MS and nutrition. Less fat, less sodium, etc.
I realized I had forgotten to mention about the diet changes I have also incorporated into fighting this monster as well as
Ocrevus
. Over the last 6 months or so I had been changing some of the foods I had once preferred from articles I had read about MS and nutrition. Less fat, less sodium, etc.
Allen5280
in
My MSAA Community
7 years ago
First half Ocrevus Done!
Completed first half of
Ocrevus
today! Sailed right thru no issues!
Completed first half of
Ocrevus
today! Sailed right thru no issues!
cnichols
in
My MSAA Community
7 years ago
2nd half-dose Ocrevus Infusion Completed
As many of you following
Ocrevus
news and experiences are aware, the first 600 mg. dose of
Ocrevus
(ocrelizumab) is divided into two half-doses spaced two weeks apart.
As many of you following
Ocrevus
news and experiences are aware, the first 600 mg. dose of
Ocrevus
(ocrelizumab) is divided into two half-doses spaced two weeks apart.
dianekjs
in
My MSAA Community
7 years ago
Ocrevus
I am going to be starting
Ocrevus
in a couple of weeks. Too much generic information on it. Is it a type of chemo? How are you doing on it?
I am going to be starting
Ocrevus
in a couple of weeks. Too much generic information on it. Is it a type of chemo? How are you doing on it?
Yooper
in
My MSAA Community
7 years ago
It can happen to anyone...
On top of that waiting for the ever-elusive
Ocrevus
seems to be taking longer than I realized. Between it all I've come to realize I let myself basically stop fighting and give up to some degree. Well I'm here to tell you now that ends here!
On top of that waiting for the ever-elusive
Ocrevus
seems to be taking longer than I realized. Between it all I've come to realize I let myself basically stop fighting and give up to some degree. Well I'm here to tell you now that ends here!
Fancy1959
CommunityAmbassador
in
My MSAA Community
7 years ago
GOOD TO BE BACK
I asked about
Ocrevus
and he said that the one reported case of PML has been finally determined to be connected to the Tysabri that the patient had been on before switching to
Ocrevus
.
I asked about
Ocrevus
and he said that the one reported case of PML has been finally determined to be connected to the Tysabri that the patient had been on before switching to
Ocrevus
.
Sukie427
in
My MSAA Community
7 years ago
Waiting for Ocrevus Treatment to be approved for administering at Ochsner Hospital
I also have Sjogren's Syndrome, so my doctor and I agreed that
Ocrevus
would be the best treatment for both, as it targets the B cells.
I also have Sjogren's Syndrome, so my doctor and I agreed that
Ocrevus
would be the best treatment for both, as it targets the B cells.
Gods_Girl
in
My MSAA Community
7 years ago
Hello,
I've been on Copaxone but today will be my first infusion of
Ocrevus
. Wish me luck😳 Just a little nervous but excited too. When hope is involved you can't help but be excited for better results 😊 I'll keep you all posted. Take care new friends, Becky
I've been on Copaxone but today will be my first infusion of
Ocrevus
. Wish me luck😳 Just a little nervous but excited too. When hope is involved you can't help but be excited for better results 😊 I'll keep you all posted. Take care new friends, Becky
Becky63
in
My MSAA Community
7 years ago
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