First day of ocrevus

[ylimem]

First dose today. Only been diagnosed since April but have not yet recovered from my first episode and still in a wheelchair. Not excited about ocrevus but it is already my only option. Could use some positive thoughts today. Would love to feel like I can get a little bit of my future back.

[ms4n6rn]

ylimem, even though I'm new to the group, I am sure positive thoughts and prayers will be flowing your way today as you go through this scary experience. I am so sorry you have MS. You may not get the future you thought you'd have, but you have hope. Hope that the Ocrevus will do it's job of hopefully stopping this exacerbation and preventing any more relapses. Your future has been given a rearrangement just like all the rest of us with MS. You will learn how to manage your symptoms and be able to help others in this awesome group. It is not that your new future is bad, it just will be different. You will have good days and days that aren't so good. Focus your positive energy on living with MS day to day. Talk with your support systems about how you are feeling. It is ok to cry. Your world has been turned upside down and that's not bad, just different. I wish you the best of luck today and pray the medication will do it's job for you and your future. Jacque

[rlh1974 in reply to ms4n6rn]

Well said!

[Iona60]

ylimem So sorry that you have MS. It is very scary in the beginning. Hopefully, the Ocrevus will calm down this exacerbation and your neuro will be able to figure out which additional meds that you need to help with any remaining symptoms. It took about two years for my body to readjust. But, that was a while back and Ocrevus is far stronger than any choices that were available to me.

It's amazing that you were able to get put on Ocrevus so quickly. Keep looking forward and celebrate any little improvement that you see. My prayers are with you.

[Juleigh21]

ylimem I am assuming you've been diagnosed with progressive MS if your only option is ocrevus and you've already had your first dose. My cousin has that type. I have RRMS. My first 18 months were a roller coaster with this disease. My third DMT was the charm and I'm stable right now. I hope the ocrevus stabilizes your MS quickly and you can see a brighter future!! Good luck and please keep us posted on your progress.

[ylimem]

Thanks everyone! It's been a rough ride so far. My Neuro thinks I have PPMS but it's not definitive yet. I'm positive for the jc virus and gilenya has been damaging my liver already. The infusion was fine. Small allergic reaction treated with increased benadryl other than that pretty smooth sailing. Just resting now. Thanks again for the support it's incredibly helpful

[greaterexp]

ylimem , it always is saddening to hear of another going through the trials of MS.

We're all pulling for you to have great results from Ocrevus. Please do update us as you can about your progress.

[ssdw1958]

It sounds like your doctor is working with you which is a good thing. Think positive thoughts, good luck to you.