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Ocrevus
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My MRI
I think it's because i went 6 months without any meds to start the
Ocrevus
. My doctor wants me to up the dose to 5 months instead of the 6 months and get some steroids. I apparently have a severe case of ms and my doctor is trying to fix what she can.
I think it's because i went 6 months without any meds to start the
Ocrevus
. My doctor wants me to up the dose to 5 months instead of the 6 months and get some steroids. I apparently have a severe case of ms and my doctor is trying to fix what she can.
Shelly36
in
My MSAA Community
7 years ago
Ocrevus 1 month update!
I encourage everyone who have started
Ocrevus
share their
Ocrevus
story, both positive and negative, with the chat room to provide everyone with as much information on his new therapy as possible.
I encourage everyone who have started
Ocrevus
share their
Ocrevus
story, both positive and negative, with the chat room to provide everyone with as much information on his new therapy as possible.
Fancy1959
CommunityAmbassador
in
My MSAA Community
7 years ago
Ocrevus and PPMS
I'm new here and interested in others who have had their first
Ocrevus
infusion. I had my first infusion in May; my second is scheduled for November. My MS is one of pain: cognition & balance bad; pain in legs, hands, arms.
Ocrevus
seems to have made the pain less and balance a bit better.
I'm new here and interested in others who have had their first
Ocrevus
infusion. I had my first infusion in May; my second is scheduled for November. My MS is one of pain: cognition & balance bad; pain in legs, hands, arms.
Ocrevus
seems to have made the pain less and balance a bit better.
Ilia1392
in
My MSAA Community
7 years ago
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Oh well, Bad day
Well
Ocrevus
didn't help me today. Things happened today that even made my sister cry. She even said that I am beyond her understanding. She is going to have to find so
Well
Ocrevus
didn't help me today. Things happened today that even made my sister cry. She even said that I am beyond her understanding. She is going to have to find so
Sggmcswain
in
My MSAA Community
7 years ago
See the sun...
Ocrevus
time - please pray
Ocrevus
time - please pray
Sggmcswain
in
My MSAA Community
7 years ago
Ocrevus tomorrow
So tomorrow morning I start and I will update. Hope and pray all goes well
So tomorrow morning I start and I will update. Hope and pray all goes well
Sggmcswain
in
My MSAA Community
7 years ago
Opinions please...
I have been told that all
Ocrevus
will do is slow down progression. Will it not help with walking and other symptoms.
I have been told that all
Ocrevus
will do is slow down progression. Will it not help with walking and other symptoms.
Sggmcswain
in
My MSAA Community
7 years ago
Update with Ocrevus... (long)
I had first infusion, the person said I should have a gold star. No reactions! Upper body is great. Now the not so good, my legs would NOT get me up the steps when I got home. Took an hour to go up about 10 steps. My mother and sister were not happy. And the other fun, the place is going to have
I had first infusion, the person said I should have a gold star. No reactions! Upper body is great. Now the not so good, my legs would NOT get me up the steps when I got home. Took an hour to go up about 10 steps. My mother and sister were not happy. And the other fun, the place is going to have
Sggmcswain
in
My MSAA Community
7 years ago
Thank you for prayers for my son and family.
She says I could wait to see how others do on
OCREVUS
. I have bad days with high humidity and/or heat and days I just don’t know the reason. Now I know that I should exercise and eat better. I lost much weight with all the stress and my stamina to garden or play oboe is definite lacking.
She says I could wait to see how others do on
OCREVUS
. I have bad days with high humidity and/or heat and days I just don’t know the reason. Now I know that I should exercise and eat better. I lost much weight with all the stress and my stamina to garden or play oboe is definite lacking.
TonyiaR7
in
My MSAA Community
7 years ago
Second dose of Ocrevus is done.
Ok about the
Ocrevus
I had know problems in taking the medicine and I feel pretty good. My left foot that has foot drop I have been able to pick up my foot a lot YEAH.
Ok about the
Ocrevus
I had know problems in taking the medicine and I feel pretty good. My left foot that has foot drop I have been able to pick up my foot a lot YEAH.
ssdw1958
in
My MSAA Community
7 years ago
Legs...
Will the
Ocrevus
help with it? Do or don't know
Will the
Ocrevus
help with it? Do or don't know
Sggmcswain
in
My MSAA Community
7 years ago
Ovrevus
I had my second infusion of round one of
Ocrevus
on Tuesday and I'm soooo tired! Does this go away after a time? I think it's going to be worth it not having to have the Copaxone injections. At least I have six months before next infusion!
I had my second infusion of round one of
Ocrevus
on Tuesday and I'm soooo tired! Does this go away after a time? I think it's going to be worth it not having to have the Copaxone injections. At least I have six months before next infusion!
judymax
in
My MSAA Community
7 years ago
Approved for Ocrevus
Aetna finally approved
Ocrevus
after an appeal. Their reasons for denying it in the first place were stupid but that's kind of how it goes. But...because it took so long, I had to have another dose of Tysabri starting the 12 week counter all over again.
Aetna finally approved
Ocrevus
after an appeal. Their reasons for denying it in the first place were stupid but that's kind of how it goes. But...because it took so long, I had to have another dose of Tysabri starting the 12 week counter all over again.
Raingrrl
in
My MSAA Community
7 years ago
A Bump in the Road, Ocrevus Update (Long!)
Rituxan was already being used off-label to treat both MS and systemic sclerosis with encouraging results, and
Ocrevus
was about to be FDA approved.
Rituxan was already being used off-label to treat both MS and systemic sclerosis with encouraging results, and
Ocrevus
was about to be FDA approved.
dianekjs
in
My MSAA Community
7 years ago
Complications continue
Since I was first diagnosed in April I have been on two aggressive steroid treatments gilenya and received the first full dose of
ocrevus
. Felt good after the second dose of steroids but have been backsliding for a month or so.
Since I was first diagnosed in April I have been on two aggressive steroid treatments gilenya and received the first full dose of
ocrevus
. Felt good after the second dose of steroids but have been backsliding for a month or so.
ylimem
in
My MSAA Community
7 years ago
Relapse
Has anyone had a relapse since being on
Ocrevus
?
Has anyone had a relapse since being on
Ocrevus
?
judymax
in
My MSAA Community
7 years ago
Ocrevus
Just approved for
ocrevus
! I actually work full-time so I drop In from time to time at work. Not a lot of energy after I get home. Whoever has DONE these infusions please give me the good, the bad and the ugly.
Just approved for
ocrevus
! I actually work full-time so I drop In from time to time at work. Not a lot of energy after I get home. Whoever has DONE these infusions please give me the good, the bad and the ugly.
SometimesCrazy
in
My MSAA Community
7 years ago
My disabilities are weighing me down like a ton of rocks! Fancy1959
I've been on
ocrevus
for 4 weeks today. My spasticity comes and goes now but is does not plagues me each and every day like it used. So that's a very positive aspect. But over the summer my disabilities continue to grow weighing heavily upon me.
I've been on
ocrevus
for 4 weeks today. My spasticity comes and goes now but is does not plagues me each and every day like it used. So that's a very positive aspect. But over the summer my disabilities continue to grow weighing heavily upon me.
Fancy1959
CommunityAmbassador
in
My MSAA Community
7 years ago
Feeling lost
I know it's early, having just had my first full infusion of
Ocrevus
, but I feel I am still in a downward spiral, weaker every day. My husband and my children don't understand, and they tell me to stay positive. I am not a quitter, but maybe my body is. It's been 23 years.
I know it's early, having just had my first full infusion of
Ocrevus
, but I feel I am still in a downward spiral, weaker every day. My husband and my children don't understand, and they tell me to stay positive. I am not a quitter, but maybe my body is. It's been 23 years.
Debs5997
in
My MSAA Community
7 years ago
Week 1 update on Ocrevus.
I also wanted to know that I have had zero negative side effects from the
Ocrevus
infusion. No problem at the infusion sites and no other negative side effects at all.
I also wanted to know that I have had zero negative side effects from the
Ocrevus
infusion. No problem at the infusion sites and no other negative side effects at all.
Fancy1959
CommunityAmbassador
in
My MSAA Community
7 years ago
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