Search
Search
About
Log in
Join
Experiences with
Ocrevus
Posts
Communities
831 public posts
Filter results
how long between ocrevus
was up last month and they are 70 miles away.has anyone missed their
ocrevus
appt. and do I have to start over with 2- 1/2 appts. and how long between was it for you.planning in my head sooo busy thanks pam
was up last month and they are 70 miles away.has anyone missed their
ocrevus
appt. and do I have to start over with 2- 1/2 appts. and how long between was it for you.planning in my head sooo busy thanks pam
pamgarner
in
My MSAA Community
3 years ago
Post 750 NO need to be scared 21 Aug 2021
Pick your Disease-Modifying therapy (DMT), My suggestion is
Ocrevus
as it reduces relapses the most. I am NOT a paid spokesman, BUT if somebody wants to pay me I am okay with that:-) Talk to your doctor and find what is best for “YOU”. and do not be scared.
Pick your Disease-Modifying therapy (DMT), My suggestion is
Ocrevus
as it reduces relapses the most. I am NOT a paid spokesman, BUT if somebody wants to pay me I am okay with that:-) Talk to your doctor and find what is best for “YOU”. and do not be scared.
RoyceNewton
in
My MSAA Community
3 years ago
Neurologist Visit
After the MRI we will decide whether to stay on
Ocrevus
or change to something else. In the meantime, I just have to put up with all the little flares that are happening right now since I can no longer do steroids.
After the MRI we will decide whether to stay on
Ocrevus
or change to something else. In the meantime, I just have to put up with all the little flares that are happening right now since I can no longer do steroids.
hairbrain4
in
My MSAA Community
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
The CDC FINALLY talks about the problem of immunity in the immunocompromised. People on Ocrevus, Rituxan, Kesimpta and similar..take note.
If you are on DMT’s like
Ocrevus
, Rituxan and Kesimpta, please talk with your medical team and don’t assume that fully vaccinated gives you immunity. https://www.cnn.com/2021/07/16/health/cdc-warning-covid-19-vaccine-immunocompromised/index.html
If you are on DMT’s like
Ocrevus
, Rituxan and Kesimpta, please talk with your medical team and don’t assume that fully vaccinated gives you immunity. https://www.cnn.com/2021/07/16/health/cdc-warning-covid-19-vaccine-immunocompromised/index.html
Raingrrl
in
My MSAA Community
3 years ago
Covid vaccine timing?
Covid vaccine For anyone that had the covid vaccine and especially on
ocrevus
. How long after your infusion did you do the covid vaccine? I asked my neurologist because I am on
ocrevus
and he said 2-5 months after last infusion. Which tells me nothing.
Covid vaccine For anyone that had the covid vaccine and especially on
ocrevus
. How long after your infusion did you do the covid vaccine? I asked my neurologist because I am on
ocrevus
and he said 2-5 months after last infusion. Which tells me nothing.
jkdavid99
in
My MSAA Community
3 years ago
17 years and still searching
Tried
Ocrevus
a year ago and it made me worse, and just add the spinal tapAnd awaiting the results.
Tried
Ocrevus
a year ago and it made me worse, and just add the spinal tapAnd awaiting the results.
dallas343
in
My MSAA Community
3 years ago
I Have A Question
I'm on
Ocrevus
, which hasn't helped me at all since the last infusion, which had been very disappointing since it has worked so well for a year & a half. My last infusion was at the end of April. So the question is... Have any of you had this sort of thing happen to your eyes?
I'm on
Ocrevus
, which hasn't helped me at all since the last infusion, which had been very disappointing since it has worked so well for a year & a half. My last infusion was at the end of April. So the question is... Have any of you had this sort of thing happen to your eyes?
hairbrain4
in
My MSAA Community
3 years ago
New to the group
wondering how others who are on
Ocrevus
are doing? I have been doing the infusions for 2 years and having some side effects during and after infusions.
wondering how others who are on
Ocrevus
are doing? I have been doing the infusions for 2 years and having some side effects during and after infusions.
sailing42
in
My MSAA Community
3 years ago
Post 743 Ocrevus my reasoning 23 Jun 2021
With this being the goal, I recommend currently
Ocrevus
. I STRESS that I am NOT your doctor or a trained medical anything. This is MY OPINION. Take it for what it is worth, something or nothing, your choice.
With this being the goal, I recommend currently
Ocrevus
. I STRESS that I am NOT your doctor or a trained medical anything. This is MY OPINION. Take it for what it is worth, something or nothing, your choice.
RoyceNewton
in
My MSAA Community
3 years ago
Blood Test & Ocrevus B-cell repopulation & Covid immunity
I did the test yesterday so that it would show the maximum number of CD 20 expressing B-cells before
Ocrevus
starts killing them off again . The results are already back and aren’t pretty.
I did the test yesterday so that it would show the maximum number of CD 20 expressing B-cells before
Ocrevus
starts killing them off again . The results are already back and aren’t pretty.
Raingrrl
in
My MSAA Community
3 years ago
Unnumbered Post Dr Royce Newton 26 Jun 2021
In my opinion, today,
Ocrevus
. Everybody has an opinion, but if "YOU" are new and overwhelmed, this is what my 20+ years suggests. Keep searching as "YOU" wish but here might be an answer. Disease-Modifying Therapy (DMT) most certainly is and this might be your answer.
In my opinion, today,
Ocrevus
. Everybody has an opinion, but if "YOU" are new and overwhelmed, this is what my 20+ years suggests. Keep searching as "YOU" wish but here might be an answer. Disease-Modifying Therapy (DMT) most certainly is and this might be your answer.
RoyceNewton
in
My MSAA Community
3 years ago
Unnumbered post Keep the smile on your face 12 June 2021
Talk to your medical team, but
Ocrevus
is the drug "YOU" want to take it gives "YOU" the fewest relapses and that is what "YOU" want. There are many other things but they can come later, RELAX. Have a good cry but remember "YOU" are going to be okay.
Talk to your medical team, but
Ocrevus
is the drug "YOU" want to take it gives "YOU" the fewest relapses and that is what "YOU" want. There are many other things but they can come later, RELAX. Have a good cry but remember "YOU" are going to be okay.
RoyceNewton
in
My MSAA Community
3 years ago
Unnumbered Post Be Smart 13 Jun 2021
Nothing will stop it totally, not yet anyway, but
OCREVUS
slows it the most of the Disease-Modifying Therapies (DMT). Your choice but if I could, that is what I would look at first. I am too old to get it, besides I HATE needles.
Nothing will stop it totally, not yet anyway, but
OCREVUS
slows it the most of the Disease-Modifying Therapies (DMT). Your choice but if I could, that is what I would look at first. I am too old to get it, besides I HATE needles.
RoyceNewton
in
My MSAA Community
3 years ago
My son had his first treatment of Ocrevus yesterday. Anyone have any experience with this? I would love to hear. Thank you!
Ocrevus
experience?
Ocrevus
experience?
DebbyCorn
in
My MSAA Community
3 years ago
results of mri
No new or active lesions in my brain or spine.Happy days are here again,been on
ocrevus
for 5 1/2 years now,it is working!i got on it after my old. med stopped working,i guess my issues are exercise or lack of it! you know how hard it is to do anything,i figured i was already getting enough,wrong!
No new or active lesions in my brain or spine.Happy days are here again,been on
ocrevus
for 5 1/2 years now,it is working!i got on it after my old. med stopped working,i guess my issues are exercise or lack of it! you know how hard it is to do anything,i figured i was already getting enough,wrong!
pamgarner
in
My MSAA Community
3 years ago
Ocrevus
Anyone use
Ocrevus
and it didn’t work at all for them?
Anyone use
Ocrevus
and it didn’t work at all for them?
dallas343
in
My MSAA Community
3 years ago
Ocrevus without steroids
Eventually, I will get back to my "normal" as my thyroid is coming back up & I've had a good dose of
Ocrevus
!
Eventually, I will get back to my "normal" as my thyroid is coming back up & I've had a good dose of
Ocrevus
!
hairbrain4
in
My MSAA Community
3 years ago
Post 741 Do NOT just believe me research for yourself 9 Jun 2021
I believe
Ocrevus
is the strongest for Relapsing-Remitting ms (RRms) at the moment, so that is what I suggest. If somebody knows better tell me, I am open to new information. I hope I make myself clear. Trust what I say, BUT verify with your own resources and your own research.
I believe
Ocrevus
is the strongest for Relapsing-Remitting ms (RRms) at the moment, so that is what I suggest. If somebody knows better tell me, I am open to new information. I hope I make myself clear. Trust what I say, BUT verify with your own resources and your own research.
RoyceNewton
in
My MSAA Community
3 years ago
Another round of Ocrevus today - piece of cake
Just got my n-th infusion this morning. Drove myself to the facility and back. It went pretty fast as I'm only on a 1/2 dose. Benadryl put me to sleep, waiting for the steroid kick-in tomorrow. Glad that everything lined up - the vaccine, then waiting then infusion at 9 months after the previous one
Just got my n-th infusion this morning. Drove myself to the facility and back. It went pretty fast as I'm only on a 1/2 dose. Benadryl put me to sleep, waiting for the steroid kick-in tomorrow. Glad that everything lined up - the vaccine, then waiting then infusion at 9 months after the previous one
anaishunter
in
My MSAA Community
3 years ago
Changing from Ocrevus to Kesimpta
In summer I’m going to start on Kesimpta. Any opinion on this DMT? Is my fourth MS med since diagnosed in 2015 😱
In summer I’m going to start on Kesimpta. Any opinion on this DMT? Is my fourth MS med since diagnosed in 2015 😱
MScosquiyitas
in
My MSAA Community
3 years ago
1
...
9
10
11
...
42
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
My MSAA Community
819 results
MS Society
4 results
NRAS
3 results
View top 10 communities
Sort by
Most Relevant
Newest