I did it!: First Ocrevus infusion under my... - My MSAA Community

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I did it!

Debs5997 profile image
23 Replies

First Ocrevus infusion under my belt. A few hiccups, like four tries on the IV and my blood pressure dropping, but all in all, I think I can do this. Thanks everyone for your support. So glad I found you guys!

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Debs5997 profile image
Debs5997
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23 Replies
greaterexp profile image
greaterexp

Hurrah! Hurrah!

jimeka profile image
jimeka

Debs5997 oh well done, you brave girl. I hope and pray that it works for you. Blessings Jimeka 🦋 🌈 🤗 🤗

Debs5997 profile image
Debs5997 in reply to jimeka

Thank you!

ssdw1958 profile image
ssdw1958

Debs5997

Glad to hear yours when we'll at the end of September I have my first one to do. I've been nervous thinking about it you give me hope:)

Debs5997 profile image
Debs5997 in reply to ssdw1958

I know how you feel. I think the unknown is scary, but you'll be fine. They will keep close watch on you during your infusion, and virtually any side effect you might experience (none, I hope!), they have something to counteract it. Praying for a good experience for you.

ssdw1958 profile image
ssdw1958 in reply to Debs5997

😊 thank you

bxrmom profile image
bxrmom

Debs5997 Glad it went relatively smooth for you!! Hopefully next time it will go even smoother for you!

Jessie

kdali profile image
kdali

Congrats!! 🍾🎊🎈🎉

lcrosby3 profile image
lcrosby3

So glad to hear that for the most part it was good. Sounds like all of these infusions centers are very educated on this medication. Keep us posted.

WAshingtongirl profile image
WAshingtongirl

I still cringe at the thought of 4 IV sticks, Debs5997 , but I am relieved all went well in the end. Rest these next couple of days. Will continue to pray the drug helps you in the long run. 💕

Debs5997 profile image
Debs5997

Thank you so much.

mrsmike9 profile image
mrsmike9

So proud of you! We knew you could do it!

dianekjs profile image
dianekjs

Congratulations, Debs5997 , I hope you will respond great to Ocrevus. I started in June and also had some infusion "hiccups." Be aware that it is supposed to take a good while before effect can be gauged, I am focused on staying positive and patient. I will say that I seem to be less fatigued and just less "ill" overall, but at this (early) point I am still having considerable variability day to day. Good luck and keep us posted. :-)

WAshingtongirl profile image
WAshingtongirl in reply to dianekjs

Thanks for keeping us updated, dianekjs . With many here starting Ocrevus soon, it's great to hear how you and other 'veterans' of the new drug are faring while on it. Praying, with time, it provides great hope and meets and exceeds expectations. 💕

dianekjs profile image
dianekjs in reply to WAshingtongirl

Are you going to be starting Ocrevus, WAshingtongirl ?

WAshingtongirl profile image
WAshingtongirl in reply to dianekjs

No, dianekjs , I'm not. With my other autoimmune diseases, rituxan was considered, but I am on Imuran instead. I believe you took rituxan prior to Ocrevus? Anyway, I am encouraged by all you and others have shared here...the good, the bad, and the hope. 💕

dianekjs profile image
dianekjs in reply to WAshingtongirl

WAshingtongirl , I wasn't on Rituxan, but it was considered along with Ocrevus as they are very similar and Rituxan is used to treat connective tissue diseases, which I also have. My doctors said that they would expect Ocrevus to be "at least" as effective as Rituxan for both conditions, so let's hope!

WAshingtongirl profile image
WAshingtongirl in reply to dianekjs

Not surprised I messed that up! 🙄 I'm blaming it on MS. 😉 And yes, from what I've heard, and was explained to me, Ocrevus is the 'new' Rituxan. I hope you reap the benefits of it for your various conditions!

Debs5997 profile image
Debs5997 in reply to WAshingtongirl

Thanks!🌟

Debs5997 profile image
Debs5997 in reply to dianekjs

Thank you. I hope you get good results.

BigMar7 profile image
BigMar7

Hope all goes great for you. Keep us posted. 👏😀❤️

Nom_De_Plume profile image
Nom_De_Plume

@Debs5957

You did it!!! Yay! It's behind you now. Congratulations! 😁🎈🤸‍♀️

Nom_De_Plume profile image
Nom_De_Plume in reply to Nom_De_Plume

@Debs5997 (not Debs5957)

I did it again! Please see post above. 😑

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