Hi all I had my first infusion for Ocrevus th, first I was given two Tylenol tables , Benadryl thru I V then a dose of steroids. Then the Ocrevus I was I was told if I have any feelings of scratchy throat any itchy feelings to let them know.
Well when I was given the Tylenol the pills were large and I had difficulty swallowing them and while I was having the treatment I started to cough and a nurse not mine but another nurse was near me and Hurd me she immediately called my nurse and the treatment was stopped. I told her that I believe it was because of the Tylenol pills I took a few sips of water and then felt better and we started again. When you are given this infusion someone is always there to make sure you're alright. Time lapse I started every thing around 7am -7:30am it was all done by about 1:30pm-2pm during the procedure I slept most of the time but they do check your vitals so it's not really a great sleep. I will say I had no issues with the administration of the medicines. After we had had lunch and got home I took a nap. My legs felt a little week, then as the night progressed my legs were extremely weak. At one point I was unsure if I could be left alone the next day. Well I got up one time during the night which was not good my legs felt like jelly I went back to sleep and my husband woke me up at 6am to see how I was doing. I took a walk to the bathroom. Thank goodness I was so much better. I had my breakfast took my shower was a little slow but that was normal. The one thing that bothered my a few years ago I had followed on my right knee and now I could feel that more than usual. But I have some good news before the treatment the muscles above my knee would hurt so bad and be extremely cold and I would need to have the heating pad on them constantly. I have to say I only had the heating pad on them once during the day YEAH that is a good thing and on my right hand I can snap my fingers so much easier. So so far so good.
Next does in two weeks.
One more thing that hospital was so cold I needed to be wrapped up in blankets. I will let you know how things are going.