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Ocrevus
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Chronic cough?
Could this be an infection caused by
ocrevus
? Has this happened to anyone, just a terrible cough that makes people give you THE LOOK?
Could this be an infection caused by
ocrevus
? Has this happened to anyone, just a terrible cough that makes people give you THE LOOK?
jkdavid99
in
My MSAA Community
20 days ago
It's been a long time...
She wants to start
Ocrevus
ASAP. I'm nervous about the
Ocrevus
. But I'm more freaked out by new symptoms and difficulties. How do you all deal with progression of symptoms? Any advice about
Ocrevus
? I admit that I am scared at this point.
She wants to start
Ocrevus
ASAP. I'm nervous about the
Ocrevus
. But I'm more freaked out by new symptoms and difficulties. How do you all deal with progression of symptoms? Any advice about
Ocrevus
? I admit that I am scared at this point.
nexttothesalt
in
My MSAA Community
2 months ago
New Study for users of Ocrevus or Kesimpta
You may be eligible for this study if you: live in the United States have been diagnosed with relapsing MS, secondary progressive MS, or clinically isolated syndrome (CIS) are currently being treated with either Kesimpta or
Ocrevus
Kesimpta users: treatment start was at least 6 months ago
Ocrevus
You may be eligible for this study if you: live in the United States have been diagnosed with relapsing MS, secondary progressive MS, or clinically isolated syndrome (CIS) are currently being treated with either Kesimpta or
Ocrevus
Kesimpta users: treatment start was at least 6 months ago
Ocrevus
BettysMom
in
My MSAA Community
24 days ago
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MS infusion treatment
Has anyone here taken the 2 times per year
Ocrevus
? Or the monthly Tysabri? Which one did you find most effective? The Safety Consideration sheet sounds scary. I would love to hear the cons/pros to your reactions. Thank you all !!
Has anyone here taken the 2 times per year
Ocrevus
? Or the monthly Tysabri? Which one did you find most effective? The Safety Consideration sheet sounds scary. I would love to hear the cons/pros to your reactions. Thank you all !!
Haku949
in
My MSAA Community
1 month ago
Taking a big risk - 2 years in
I know itโs a risk but after what
Ocrevus
did to me, Iโm not willing to take any more of the B cell depleters. So that rules out most of the high efficacy drugs anyways. I have some B cells back so I am creating antibodies when I get a vaccine unlike what happened during my years in
Ocrevus
.
I know itโs a risk but after what
Ocrevus
did to me, Iโm not willing to take any more of the B cell depleters. So that rules out most of the high efficacy drugs anyways. I have some B cells back so I am creating antibodies when I get a vaccine unlike what happened during my years in
Ocrevus
.
Raingrrl
in
My MSAA Community
2 months ago
A Dmt someone posted about
Someone was having trouble with
Ocrevus
and switched to another DMT which I was unfamiliar with but which sounded interesting and haven't been able to find the post again, if this rings any bells would love to be enlightened, thanks all in advance for help and patience with a bear of very little brain
Someone was having trouble with
Ocrevus
and switched to another DMT which I was unfamiliar with but which sounded interesting and haven't been able to find the post again, if this rings any bells would love to be enlightened, thanks all in advance for help and patience with a bear of very little brain
Hidden
in
My MSAA Community
1 month ago
1st Ocrevus infusion today!
I haven't had any of the infusion reactions they list for
Ocrevus
! I feel so incredibly grateful that I can get this medicine. I hope all of you beautiful MS warriors out there are having a good day.
I haven't had any of the infusion reactions they list for
Ocrevus
! I feel so incredibly grateful that I can get this medicine. I hope all of you beautiful MS warriors out there are having a good day.
Szs3eb
in
My MSAA Community
5 months ago
Insurance question: UHC & Ocrevus?
Have you had a positive or negative experience with United Healthcare and getting
Ocrevus
treatment approved? (I was covered by UHC for 9 months in the past and they rejected the dr prescription several times, refused to have the infusion done at a hospital...).
Have you had a positive or negative experience with United Healthcare and getting
Ocrevus
treatment approved? (I was covered by UHC for 9 months in the past and they rejected the dr prescription several times, refused to have the infusion done at a hospital...).
anaishunter
in
My MSAA Community
2 months ago
Ocrevus?
Have you ended up with a fever or such well on
Ocrevus
? What happened? Regardless, I'm so grateful that I was able to be seen at a renowned MS Center.
Have you ended up with a fever or such well on
Ocrevus
? What happened? Regardless, I'm so grateful that I was able to be seen at a renowned MS Center.
Szs3eb
in
My MSAA Community
6 months ago
Ive been watching! ๐คฃ
I did talk to the one Dr. about the pain meds for
Ocrevus
. Im all set to pick them up the day of... I just hope they work! ๐ Now... l know there are a bunch of ppl that better pay up! ๐๐คฃ๐๐คฃ ๐ค๐๐
I did talk to the one Dr. about the pain meds for
Ocrevus
. Im all set to pick them up the day of... I just hope they work! ๐ Now... l know there are a bunch of ppl that better pay up! ๐๐คฃ๐๐คฃ ๐ค๐๐
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 months ago
This is a day of winning ๐ช
Promise I'm not proud of that ๐ ).For the MS, I was on copaxone, tried on tysabri (couldn't continue, high JCV titre), so back on copaxone until the 1st of my status epilepticus events, then
ocrevus
, and I'm now on kesimpta. I don't think the kesimpta is working well for me.
Promise I'm not proud of that ๐ ).For the MS, I was on copaxone, tried on tysabri (couldn't continue, high JCV titre), so back on copaxone until the 1st of my status epilepticus events, then
ocrevus
, and I'm now on kesimpta. I don't think the kesimpta is working well for me.
Cwright170994
in
My MSAA Community
2 months ago
Mid 60's and my MS is still active. So much for the theory that as you age your MS becomes inactive...
Due to my history of having a serious infection while on
Ocrevus
, my neurologist opted to put me on Mayzent. If I do experience symptoms of any type of infections, Mayzent is easier to get out of the body then
Ocrevus
. It seems
Ocrevus
can last in the blood for over a year.
Due to my history of having a serious infection while on
Ocrevus
, my neurologist opted to put me on Mayzent. If I do experience symptoms of any type of infections, Mayzent is easier to get out of the body then
Ocrevus
. It seems
Ocrevus
can last in the blood for over a year.
Fancy59
CommunityAmbassador
in
My MSAA Community
7 months ago
Ocrevus
I have been on
Ocrevus
for 6 years, after being on copaxone for 5 years. I use a walker and need to self cath. Two years ago I was diagnosed with microscopic colitis. Iโm not sure if this is a side effect from the infusions. I am debating about stopping the
Ocrevus
.
I have been on
Ocrevus
for 6 years, after being on copaxone for 5 years. I use a walker and need to self cath. Two years ago I was diagnosed with microscopic colitis. Iโm not sure if this is a side effect from the infusions. I am debating about stopping the
Ocrevus
.
Linda3579
in
My MSAA Community
7 months ago
Ocrevus approved!
My
ocrevus
infusion was approved AND I got into the co-pay assistance program. It will give me $20,000 a year for copay assistance and $1000-$1500 a year for infusion costs. My first infusion is scheduled November 1st. I feel like I can breathe for the first time in 2 months.
My
ocrevus
infusion was approved AND I got into the co-pay assistance program. It will give me $20,000 a year for copay assistance and $1000-$1500 a year for infusion costs. My first infusion is scheduled November 1st. I feel like I can breathe for the first time in 2 months.
Szs3eb
in
My MSAA Community
6 months ago
Vaccines
Has anyone receiving
Ocrevus
get a flu or covid vaccine? I have been advised to get them at the same time,, at least a month prior to my next infusion. Just curious.
Has anyone receiving
Ocrevus
get a flu or covid vaccine? I have been advised to get them at the same time,, at least a month prior to my next infusion. Just curious.
GoingCrazy_
in
My MSAA Community
6 months ago
Ocrevus/Hair Loss
Hello , I have recently been diagnosed with MS, I have just started
Ocrevus
infusion, first dose in August second dose in September. I am losing my hair like crazy. I have always had thick hair. I can't put it in a pony tail or clip. When I wash it, it comes out in clumps.
Hello , I have recently been diagnosed with MS, I have just started
Ocrevus
infusion, first dose in August second dose in September. I am losing my hair like crazy. I have always had thick hair. I can't put it in a pony tail or clip. When I wash it, it comes out in clumps.
Snickers1234
in
My MSAA Community
6 months ago
Cold for 3 weeks question
I am on
ocrevus
so i know infections might be a thing. I do pretty well on
ocrevus
so i don't want to change my meds for a dumb cold. My question to you all is Will a dose of solumedrol help this? I haven't called my neurologist yet i am just going to urgent care and my primary doctor.
I am on
ocrevus
so i know infections might be a thing. I do pretty well on
ocrevus
so i don't want to change my meds for a dumb cold. My question to you all is Will a dose of solumedrol help this? I haven't called my neurologist yet i am just going to urgent care and my primary doctor.
jkdavid99
in
My MSAA Community
5 months ago
Further delays in next Ocrevus infusion
Bottom line, be diligent about blood tests prior to
Ocrevus
infusion so that your immune system remains capable of protecting you from the nasty infections going around.
Bottom line, be diligent about blood tests prior to
Ocrevus
infusion so that your immune system remains capable of protecting you from the nasty infections going around.
anaishunter
in
My MSAA Community
6 months ago
Busy day today - O + show + interviews
-
Ocrevus
infusion went well as expected. This time around, they gave me the steroids 5-10 min before Benadryl and I did not feel any effect from the Benadryl. - then tonight my husband took me to see a Jerry Seinfeld show. So much laughing. He's so good. This was great.
-
Ocrevus
infusion went well as expected. This time around, they gave me the steroids 5-10 min before Benadryl and I did not feel any effect from the Benadryl. - then tonight my husband took me to see a Jerry Seinfeld show. So much laughing. He's so good. This was great.
anaishunter
in
My MSAA Community
5 months ago
let Genetech know if youโve had adverse immune effects from Ocrevus
And my concerns that
Ocrevus
dosing should be weight based. The universal 600mg dose may be overdosing for people with low body weight. I mentioned that there were others in this chat room that had similar immune issues and they would like to hear from you.
And my concerns that
Ocrevus
dosing should be weight based. The universal 600mg dose may be overdosing for people with low body weight. I mentioned that there were others in this chat room that had similar immune issues and they would like to hear from you.
erash
in
My MSAA Community
6 months ago
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