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Ocrevus - Tomorrow's the Day
Well, tomorrow morning (Thursday) I go in for my first infusion of
Ocrevus
. I am very nervous, but I think ready - this will be my first MS treatment. I'm diagnosed with PPMS, with about two dozen lesions on my brain and one on my spinal cord at C7.
Well, tomorrow morning (Thursday) I go in for my first infusion of
Ocrevus
. I am very nervous, but I think ready - this will be my first MS treatment. I'm diagnosed with PPMS, with about two dozen lesions on my brain and one on my spinal cord at C7.
dianekjs
in
My MSAA Community
7 years ago
After 30+ years...
Between this change in circumstance, my move into my new home next week and switching from Tysabri to
Ocrevus
in a few months, I think my plate is a little too full. Crazy, right? But...it all had to happen the way it did due to the situations outside of my control. Onward to new chapters!
Between this change in circumstance, my move into my new home next week and switching from Tysabri to
Ocrevus
in a few months, I think my plate is a little too full. Crazy, right? But...it all had to happen the way it did due to the situations outside of my control. Onward to new chapters!
Raingrrl
in
My MSAA Community
7 years ago
Experience with First Round of Ocrevus
I got my first
Ocrevus
infusion yesterday. They started out by giving me oral doses of Tylenol and Benadryl. Then, I got the IV started (took 4 tries!), and they gave me some steroids to help prevent an infusion reaction. After 30 minutes, they started the
Ocrevus
.
I got my first
Ocrevus
infusion yesterday. They started out by giving me oral doses of Tylenol and Benadryl. Then, I got the IV started (took 4 tries!), and they gave me some steroids to help prevent an infusion reaction. After 30 minutes, they started the
Ocrevus
.
JensterJ
in
My MSAA Community
7 years ago
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Curious about starting Ocrevus.
I was attracted to this site when someone had s Q&A with their MD about starting
Ocrevus
. I will be having this discussion in September and wondered about your experience. Gee I wish I had recorded a name!
I was attracted to this site when someone had s Q&A with their MD about starting
Ocrevus
. I will be having this discussion in September and wondered about your experience. Gee I wish I had recorded a name!
Gjs333
in
My MSAA Community
7 years ago
Pule
I have my Neurologist telling me that he is going to put me on this medication,
Ocrevus
. I was told it will not heal anything, but at least I will not get any worse. I am just happy with that. I do not want to get so bad that I would need to be bed ridden.
I have my Neurologist telling me that he is going to put me on this medication,
Ocrevus
. I was told it will not heal anything, but at least I will not get any worse. I am just happy with that. I do not want to get so bad that I would need to be bed ridden.
Pule
in
My MSAA Community
7 years ago
Ocrevus Talk with Neuro
Then fill out the
Ocrevus
paperwork at my neuro followup appointment in August. He wants me to wait 12 weeks from the July Tysabri dose so I'm looking at a first dose of
Ocrevus
in Sept.
Then fill out the
Ocrevus
paperwork at my neuro followup appointment in August. He wants me to wait 12 weeks from the July Tysabri dose so I'm looking at a first dose of
Ocrevus
in Sept.
Raingrrl
in
My MSAA Community
7 years ago
Ocrevus
Also, There is that other drug that
Ocrevus
is really an updated version of that drug that starts with an R. Sorry brain fog. I would rather get on that. It has a great success rate. Also seems to be much safer and has been on the market since the 90's. Has a success rate with PPMS also.
Also, There is that other drug that
Ocrevus
is really an updated version of that drug that starts with an R. Sorry brain fog. I would rather get on that. It has a great success rate. Also seems to be much safer and has been on the market since the 90's. Has a success rate with PPMS also.
rlh1974
in
My MSAA Community
7 years ago
Ocrevus news...this confirms my fears
https://multiplesclerosisnewstoday.com/2017/05/25/pml-detected-in-
ocrevus
-treated-patient-previously-treated-with-tysabri-for-3-years/ Yes...I realize that the patient in the article only had one dose of
Ocrevus
.
https://multiplesclerosisnewstoday.com/2017/05/25/pml-detected-in-
ocrevus
-treated-patient-previously-treated-with-tysabri-for-3-years/ Yes...I realize that the patient in the article only had one dose of
Ocrevus
.
Raingrrl
in
My MSAA Community
7 years ago
I'M SO EXCITED,I JUST CAN'T HIDE IT!ππππππ.....
Let's hope this
Ocrevus
is the miracle that so many of us have been waiting to find.ππππππ€
Let's hope this
Ocrevus
is the miracle that so many of us have been waiting to find.ππππππ€
Fancy1959
CommunityAmbassador
in
My MSAA Community
7 years ago
Genentech Reports PML Case with Ocrevus
This happened in a JC virus-positive patient who had stopped taking Tysabri in February after being on it for three years and switched to
Ocrevus
with a first dose given in April. Carry-over or not, it is something to think about before switching medications.
This happened in a JC virus-positive patient who had stopped taking Tysabri in February after being on it for three years and switched to
Ocrevus
with a first dose given in April. Carry-over or not, it is something to think about before switching medications.
postmanjim
in
My MSAA Community
7 years ago
Shingles vaccine (Zostavax)?
She recommended I get Zostavax 2 mos. before considering
Ocrevus
or any of the other newer meds. Yrs. ago, my neuro recommended against Zostavax because it's a live attenuated vaccine. I believe NMSS or MSSA now say it's up to you and your doc.
She recommended I get Zostavax 2 mos. before considering
Ocrevus
or any of the other newer meds. Yrs. ago, my neuro recommended against Zostavax because it's a live attenuated vaccine. I believe NMSS or MSSA now say it's up to you and your doc.
erash
in
My MSAA Community
7 years ago
Still waiting
I am still waiting for my insurance to approve
Ocrevus
. I have not had any txt since November. However, I am on natural herbs, taking PT and getting stronger everyday. I will have to wait for my next MRI to determine if my regiment is working. I live in Louisiana and it was 90 degrees today!!!
I am still waiting for my insurance to approve
Ocrevus
. I have not had any txt since November. However, I am on natural herbs, taking PT and getting stronger everyday. I will have to wait for my next MRI to determine if my regiment is working. I live in Louisiana and it was 90 degrees today!!!
lexsarset
in
My MSAA Community
7 years ago
Prescribing Info for Ocrevus
While doing my search I found the prescribing info for
Ocrevus
. Unlike the hype in the media, it has some facts from the studies about the incidence of cancer in the
Ocrevus
treated patients in the study.
While doing my search I found the prescribing info for
Ocrevus
. Unlike the hype in the media, it has some facts from the studies about the incidence of cancer in the
Ocrevus
treated patients in the study.
Raingrrl
in
My MSAA Community
7 years ago
Ocrevus
Have any of you taken
Ocrevus
besides Allen5280 ? I talked to my Dr yesterday. She said it could actually cure my PPMS. However, everything I read other than from the manufacturer or the news. Says this drug SUCKS! It makes things worse! I know Allen has only had does.
Have any of you taken
Ocrevus
besides Allen5280 ? I talked to my Dr yesterday. She said it could actually cure my PPMS. However, everything I read other than from the manufacturer or the news. Says this drug SUCKS! It makes things worse! I know Allen has only had does.
rlh1974
in
My MSAA Community
7 years ago
Very confused and very sick
Ocrevus
really scares me. I just don't know what to do. I keep telling myself, "This is my tx" , "This is my body we are messing with". Any thoughts, advice? Thank you ahead of time. And Happy Mother's Day to all!
Ocrevus
really scares me. I just don't know what to do. I keep telling myself, "This is my tx" , "This is my body we are messing with". Any thoughts, advice? Thank you ahead of time. And Happy Mother's Day to all!
Amore55
in
My MSAA Community
7 years ago
Ocrevus update
Ugggggghhhhh.... I feel awful....π’ let me start by saying I have a hypersensitivity to medication. That being said.... arrrggggggg π..... spasticity oh the agony.... 7 Charlie horses in my right shoulder, 3 in my right cheek, my shoulder blade ( which is always present) has migrated to my left shoulder
Ugggggghhhhh.... I feel awful....π’ let me start by saying I have a hypersensitivity to medication. That being said.... arrrggggggg π..... spasticity oh the agony.... 7 Charlie horses in my right shoulder, 3 in my right cheek, my shoulder blade ( which is always present) has migrated to my left shoulder
Allen5280
in
My MSAA Community
7 years ago
Update
After the first absolutely wonderful Friday following my first infusion of
Ocrevus
, things were a little tough. I will say that I have be3n feeling better in some aspects. I don't feel quite the extent of exhaustion I had been prior.
After the first absolutely wonderful Friday following my first infusion of
Ocrevus
, things were a little tough. I will say that I have be3n feeling better in some aspects. I don't feel quite the extent of exhaustion I had been prior.
Allen5280
in
My MSAA Community
7 years ago
HELLO AGAIN EVERYONE
Has anyone switched to the new
Ocrevus
from their prior DMT for RRMS?
Has anyone switched to the new
Ocrevus
from their prior DMT for RRMS?
Sukie427
in
My MSAA Community
7 years ago
Ocrevus controversies?
Although it identifies some concerns, I believe that there are no perfect drugs , certainly no perfect MS drugs, and perhaps
Ocrevus
has more critics with personal vested interests because everyone was eagerly awaiting it and it was touted as such a miracle addition to the MS arsenal.
Although it identifies some concerns, I believe that there are no perfect drugs , certainly no perfect MS drugs, and perhaps
Ocrevus
has more critics with personal vested interests because everyone was eagerly awaiting it and it was touted as such a miracle addition to the MS arsenal.
erash
in
My MSAA Community
7 years ago
Update
Well after taking longer than anticipated looks like the time is drawing near for the start of
Ocrevus
.
Well after taking longer than anticipated looks like the time is drawing near for the start of
Ocrevus
.
Allen5280
in
My MSAA Community
7 years ago
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