Hello everyone it's Fancy1959. I'm still dealing with multiple issues as many of you know my MS overwhelmed me this summer. Between having a couple infection that were severe, the Heat, and increase in disability probably do as much to the infections and heat is anything I went into a deep depression pit. I'm working my way back toward the top but I'm still not up where I was. But just to fill you in on a couple things it's going on here's what Transcended.
I started with a severe UTI infection back in June. It got so bad that when we call Tradition to a salmonella infection in my bladder. Go figure, I never do anything halfway. I was very sick for 3 weeks and as anytime many of us get inspections I had exacerbation in my disability got much much worse. My balance was pretty much gone. My speech was showing dramatic problems for the first time. Cognitive issues were also more apparent. I slept a lot , became very depressed because I couldn't do anything and my hands got very involved as well.
I finally put the infections behind me and started focusing on getting well and beating my disability back down. About 3 weeks ago my husband took us camping and horseback riding to try to keep me going in the right direction. As many of you know I've ridden my whoe life. It's one of my true joys and passions in life. Well guess what, within 15 or 20 minutes I found out I could not ride at all. My balance was so skewed I kept trying to fall off on the left side of the horse. It was just too much to bear. I started crying and did it most of that day and next. So much for improving my depression.
The good news is that I have continually beat the bushes to try to find financial assistance in my quest to get on Ocrevus. And it finally happened. The drug manufacturer agreed to help me with the cco-pay and I had a nonprofit organization agreed to help me with the high cost of the 5-Hour infusion. I went to my doctors and express my concern about my disability increasing and shared with them my letters about assistance with the medicine and infusion. Between everything they got me scheduled to have my first Ocrevus half infusion on Monday September 18th. I can't wait. I'll make sure I let everyone in the chat room keep up with what's happening to me step-by-step.
In the meantime I plan to be back and working in the chat room. I can't believe how much I've missed talking to everyone and I just need to kick myself in the back side and get busy again. I know it would be good for me and help me to get out of the depression hole I have dug myself into. Until we speak please take care of yourselves.
Written by
Fancy1959
To view profiles and participate in discussions please or .
It is so good to hear that you are coming back I am sorry to you had a ruff summit I don't know where you live, but here in New England it is in 63*F a bit chilly I have been scheduled for my Ocrevus at the end of September and the beginning of October. I am hoping all goes well.
I to went horse 🐴 back riding this passed week end. I have been on a horse in over 30 years.
It was a little scary especially when the horse was eating carrots that some child had spilled.
Fancy1959 gladvto see you back. You will have a lot of reading just to read your nitifications! You taught me to keep fighting. Would you believe I am still fighting for that bloodwork? Got the med in my cabinet but some people think it doesn't need bloodwork. My pharmacy nurse said hold out for bloodwork!!! I am so sorry you have lost the love of your life activity. I can only imagine. My backpack is in a closet drawing dust, and Silver still stands at Mandi's grave. But I am taking your asvice with the power I feel when reading daily devotion, and surging fed even it is "Two steps Foward, one step back." (Book by Charles Swindol! I pray for you daily.
Fancy1959 It's so good to hear from you! I'm so very sorry to hear that you have not been doing well lately. Have you talked to your doctor lately about increasing your depression medication? or changing it? Glad you were able to get the assistance you needed to start Ocrevus, that is GREAT to hear!! Please keep us updated.
Fancy1959 , everyone is cheering for you to get back on that horse soon. We really look forward to hearing about how well the Ocrevus works for you. It sounds very promising. Keep us informed!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Mid 60's and my MS is still active. So much for the theory that as you age your MS becomes inactive...
Back pain, still no answer 
Not going down without a fight. 
