Experiences with

Nurtec ODT

had first dose of IVIG yesterday, think it was 3 grams. Pre med with Zyrtec and Tylenol. Half way through infusion had allergic reaction, shaking chills itching, no fever no outward symptoms like hives. They stopped infusion, medicated me with IV Steroid 120mg and IV Benadryl 50mg, felt better after

hi all-haven’t been on here for a while dealing with things. Update on hubby: He is currently on 7.5 mg of methadone and .5 Xanax for sleep. He can’t sleep in bed or lying down because he can’t breathe well….mostly due to severe nasal congestion. He is only using saline nose drops now because the

This Forum is amazing and I depend on it. I'm interested in others who may have had something similar with auto-immune issues on Besremi. Apologies for the saga. Diagnosed with PV August 2021, AB 22%, put on Hydroxy for a year, then Besremi for the past 20 months, gradually increased from 50 to 450

I am convinced that for myself and possibly others like me, that my RLS is a mast cell activation problem. I never had RLS until my 60s when I was living in a house that had a hidden pipe leak and hidden mold. So I don't think mine is genetic. But recently as I have learned about MCAS (mast cell activation

Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct

Stress & anxiety & depression definitely without a doubt increase pain levels in fibromyalgia sufferer's.Not one known painkiller or SSRI treatment works on me.Saw my private sector pain consultant surgeon aweek ago & I asked him what happens if you were in a accident etc of any kind & pain killers won't

hello!! I was wondering if anyone has the same problems as me and can offer some advice! Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps! I am on Plaquenil, Gabapentin, Zyrtec,

Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets were just shy of 1.1M at the peak before starting Besremi in May 2023. At that time I was getting a phlebotomy about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong

Good morning from Brisbane, Australia 👋🏻 I’ve got ET JAK2 pos and have started to get the itchies 😆 I have read that it’s common with PV but I wondered about ET? I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye

Hi guys, I need your help as my doctors do not give me much information or to be precise been with two allergy doctors, both gave me different opinions so i don't know what to do. Long story short, i'm a runner and after flu a year ago I started having issues with chest tightness during some of my runs

I have ra and am taking rinvoq. only recently started having some ear problems fluid on ears and a full feeling causing me to have trouble sleeping. I haven't had any signs of cold or allergies either. the doctor said to use Zyrtec which did not help and I was wondering if anyone has had any ear issues

hi I started getting these symptoms about 2 weeks ago and they have gradually got worse and peaked today: nausea, night waking esp around 3-4am, weak legs, feeling of being hypoglycemic, needing to eat all the time including getting up to eat in the night, diarrhoea, brain fog, lack of concentration

I will be coming off Orgovyx in four to six months. My testosterone level is currently at 8. Erections and orgasms are nonexistent. PSA is <0.1. Age is 85. Can I consider testosterone replacement safely?

Hi there, I am looking for a private endo who understands NDT. Please can people PM me with details? Many thanks everyone

Currently on Orgovyx and Nubeqa after extensive radiation to my prostate and pelvic bone lesions. Here's a podcast I was recently on sharing some strategies for overcoming fatigue and some of the joint issues I've faced over the years. If you're struggling with joint pain--back, knee, shoulder, etc.-

Stats. 39, 3+4 Gleason, PSA 6.28, diagnosed 1 May. Duke didn't want to do radiation. Flat out told me they wouldn't radiate a 39 year old prostate. Thank you for wasting 7 months of my time and billing my insurance thousands of dollars and the 2nd unnecessary biopsy. Got referred from Duke to a regional

“Finally, after disease progression during enzalutamide, we decided to start a new line of hormone therapy. In fact, considering age, PS, and patient’s will, available therapeutic options were running out, but particularly we trusted a disease’s residual sensitivity to androgen receptor-targeted therapies

Recent studies by JAMA (https://news.cancerconnect.com/prostate-cancer/does-hormone-therapy-for-prostate-cancer-increase-alzheimer-s-dementia-risk?redir=1) indicate that Alzheimer's and Dementia risk can be increased by up to 28% with ADT......as if there weren't already enough negatives.... The article

Hi everyone, I have been invited to participate in a clinical trial to investigate the efficacy of Lutetium Lu177 for early stage patients. My PSA has been rising steadily the last few months from 0.02 ug/l and is currently 0.22 ug/l. The trial will divide patients into 2 groups- Group A will be given

Hi Everyone, I have just got off the phone to my Endocrinologist and I'm feeling pretty hopeless about things right now. I am hoping that sone of you will be able to give me some advice. I have hypothyroidism and have been taking 2 grains of natural dessicated thyroid for around 8 years and have felt