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Anyone using Dr. Scott Tagawa in NYC @ Cornell?
Hello everyone, Interested to find others that have been going to Dr. Scott Tagawa @ Cornell in NYC. My cancer is at a new turning point. My PSA has been on a slow rising for at least 10 months now, from undetectable to, as of last month 3.3. I was on Zytiga 2.5 years , Lupron since chemo (ended 11/
Hello everyone, Interested to find others that have been going to Dr. Scott Tagawa @ Cornell in NYC. My cancer is at a new turning point. My PSA has been on a slow rising for at least 10 months now, from undetectable to, as of last month 3.3. I was on Zytiga 2.5 years , Lupron since chemo (ended 11/
esmitee
in
Advanced Prostate Cancer
3 years ago
Under 50 - 3 Years out with M1b disease - an update!
It’s been a trip but I want to say thank you to all you guys out there for some really incredibly insightful and encouraging posts over the last 3 years I check in monthly and think this is a wonderful resource. My own story started with a relatively low PSA 3 years ago of bouncing around 3 with 3 bone
It’s been a trip but I want to say thank you to all you guys out there for some really incredibly insightful and encouraging posts over the last 3 years I check in monthly and think this is a wonderful resource. My own story started with a relatively low PSA 3 years ago of bouncing around 3 with 3 bone
AlooGobi
in
Advanced Prostate Cancer
3 years ago
Xofigo what are side effects?
Looking for feed back on Xofigo treatment! Been on Lupron & Exgeva. Zytiga with Predisone added after two years. PSA rising last several month now over 300! looking to treat with least side effects! Quality of life Diagnosis was 12/2016 PSA over 1,000. PSA has never gone below 40
Looking for feed back on Xofigo treatment! Been on Lupron & Exgeva. Zytiga with Predisone added after two years. PSA rising last several month now over 300! looking to treat with least side effects! Quality of life Diagnosis was 12/2016 PSA over 1,000. PSA has never gone below 40
Yorkielover2
in
Advanced Prostate Cancer
3 years ago
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PCa and now bladder cancer and kidney problems.
I was diagnosed with PCa over two years ago and I remain hormone sensitive with Lupron shots, and Zytiga + p. But the last month has been terrible. Passing urine became so difficult that Mayo urologist put in a Foley catheter 30+ days ago. I don’t like it but hey, I’m not getting up to pee 4-5 x / night
I was diagnosed with PCa over two years ago and I remain hormone sensitive with Lupron shots, and Zytiga + p. But the last month has been terrible. Passing urine became so difficult that Mayo urologist put in a Foley catheter 30+ days ago. I don’t like it but hey, I’m not getting up to pee 4-5 x / night
KJMinPhx
in
Prostate Cancer Network
3 years ago
Opinion on muscles
On the Lupron + Xtandi train. Wondering if increased exercise + weights can still build muscles? Anyone able to increase strength?
On the Lupron + Xtandi train. Wondering if increased exercise + weights can still build muscles? Anyone able to increase strength?
Fightinghard
in
Advanced Prostate Cancer
3 years ago
Should I have my testosterone levels checked?
I have been doing very well since DX in November 2018, on Lupron, 750mg of arbiraterone, and prednisone. My PSA seems stabilized at 0.3 and my other blood readings are well within limits. I keep reading about T levels on this forum, but my MO does not seem to think I need to know my T unless something
I have been doing very well since DX in November 2018, on Lupron, 750mg of arbiraterone, and prednisone. My PSA seems stabilized at 0.3 and my other blood readings are well within limits. I keep reading about T levels on this forum, but my MO does not seem to think I need to know my T unless something
JazzMan42
in
Advanced Prostate Cancer
3 years ago
Mets after 2yrs and .01 PSA? New cancer?
First off, I made this account for my dad but I am his daughter typing this. I am confused and looking to see if anyone had the same thing happen. Quick background...DX 2.5 years ago PSA 15 Stage 4 Gleason 8, all cores. He got radiation on his prostate and pelvic bone. Put on Lupron and Zytiga and Prednisone
First off, I made this account for my dad but I am his daughter typing this. I am confused and looking to see if anyone had the same thing happen. Quick background...DX 2.5 years ago PSA 15 Stage 4 Gleason 8, all cores. He got radiation on his prostate and pelvic bone. Put on Lupron and Zytiga and Prednisone
Hvacguy
in
Advanced Prostate Cancer
3 years ago
Has anyone had success re-starting medicine after Chemo?
I was thinking unless I am mistaken, people have said after Chemo, certain medicines work much better since I mentioned in a previous post, Xtandi stopped working after probably two months and since it shot up so high (about 1.9 points a day after doing the math) Doc wants me to start Chemo. He just
I was thinking unless I am mistaken, people have said after Chemo, certain medicines work much better since I mentioned in a previous post, Xtandi stopped working after probably two months and since it shot up so high (about 1.9 points a day after doing the math) Doc wants me to start Chemo. He just
FinalBossMatt
in
Advanced Prostate Cancer
3 years ago
Thank you!
I want to thank the members of this group, especially Tall_Allen, for the advice and support I've received the last couple of years. After a failed trial of HIFU, with a resultant steady increase in my PSA, I had another biopsy done June of last year. The report was 8x 3+4, 1x 4+3, and 1x 4+4 out of
I want to thank the members of this group, especially Tall_Allen, for the advice and support I've received the last couple of years. After a failed trial of HIFU, with a resultant steady increase in my PSA, I had another biopsy done June of last year. The report was 8x 3+4, 1x 4+3, and 1x 4+4 out of
Smallfall
in
Prostate Cancer Network
3 years ago
DEXA Scan - how often?
I'm looking for some research regarding how often DEXA scans should be scheduled to track bone health. My husband is 61, and 4.5 years from diagnosis. His treatments: Lupron, Taxotere (6 rounds when first diagnosed), Zytiga and prednisone, Provenge. PSA has remained at <.1. No pain, he's still working
I'm looking for some research regarding how often DEXA scans should be scheduled to track bone health. My husband is 61, and 4.5 years from diagnosis. His treatments: Lupron, Taxotere (6 rounds when first diagnosed), Zytiga and prednisone, Provenge. PSA has remained at <.1. No pain, he's still working
Union98
in
Advanced Prostate Cancer
3 years ago
I found out it is not sciatica that's bothering me... take a guess what it is...
No, I haven't turned black. Yes, that is a joke about the picture. Yup. PSA shot up again. It lowered down to 60 but shot up to 221. Fuck. I have been taking Xtandi. Since December. Doc wants to take an obvious biopsy of the hip. I'm also joining the Chemo club which is good because from what
No, I haven't turned black. Yes, that is a joke about the picture. Yup. PSA shot up again. It lowered down to 60 but shot up to 221. Fuck. I have been taking Xtandi. Since December. Doc wants to take an obvious biopsy of the hip. I'm also joining the Chemo club which is good because from what
FinalBossMatt
in
Advanced Prostate Cancer
3 years ago
PSMA PET/CT results
Prior to scan post RP, PSA's of 8.8, 3.9, 3.3 with T remaining at ~12-13.5 Results: * Radiotracer-avid lymphadenopathy involving the para aortic node at the level of L2, SUV5.2, 3mm in the short axis. * Bilateral common iliac e.g. on the left SUV 15.2, 13mm in the short axis and bilateral external iliac
Prior to scan post RP, PSA's of 8.8, 3.9, 3.3 with T remaining at ~12-13.5 Results: * Radiotracer-avid lymphadenopathy involving the para aortic node at the level of L2, SUV5.2, 3mm in the short axis. * Bilateral common iliac e.g. on the left SUV 15.2, 13mm in the short axis and bilateral external iliac
Hailwood
in
Advanced Prostate Cancer
3 years ago
Which is more effective -- Lupron or Diphereline? or which is better?
I used to have Lupron (a monthly shot), but the urologist at Taiwan National University said there are now limited supplies left for children use only. So, I am currently having the 3-month Diphereline shot. Which is better when it comes to efficacy?
I used to have Lupron (a monthly shot), but the urologist at Taiwan National University said there are now limited supplies left for children use only. So, I am currently having the 3-month Diphereline shot. Which is better when it comes to efficacy?
markoch26
in
Advanced Prostate Cancer
3 years ago
Diagnosis
After 3 years of trying (naturally, IVF, FET) with no luck. We finally figured out a probable cause for me not getting pregnant. It is that I have adenomyosis. I will have to go be on lupron for 3 months. For anyone else that has been diagnosed with this, what was your experience?
After 3 years of trying (naturally, IVF, FET) with no luck. We finally figured out a probable cause for me not getting pregnant. It is that I have adenomyosis. I will have to go be on lupron for 3 months. For anyone else that has been diagnosed with this, what was your experience?
Lass41
in
Fertility Network UK
3 years ago
Continue Lupron after continuing PSA rise?
We meet with my spouses oncologist on Tuesday. Bill has been on lupron solid for 6 years now. He has had Provenge, Xtandi, Dosetaxel, Cabazitaxel and all worked for a good time, but his PSA has been steadily and firmly rising and new bone Mets for the past few months. My question is that since the cancer
We meet with my spouses oncologist on Tuesday. Bill has been on lupron solid for 6 years now. He has had Provenge, Xtandi, Dosetaxel, Cabazitaxel and all worked for a good time, but his PSA has been steadily and firmly rising and new bone Mets for the past few months. My question is that since the cancer
NWLiving
in
Advanced Prostate Cancer
3 years ago
Has anyone done Radio Frequency Thermal Ablation of the nostril?
My nostrils started blocking and congested at nights for the past two months. The side I will be sleeping on, will be the nostril that will be blocked and congested. Then when I turn to sleep on the other side of my body, then that nostril will be blocked and congested. The nostril that was blocked
My nostrils started blocking and congested at nights for the past two months. The side I will be sleeping on, will be the nostril that will be blocked and congested. Then when I turn to sleep on the other side of my body, then that nostril will be blocked and congested. The nostril that was blocked
kcareer
in
Advanced Prostate Cancer
3 years ago
Phase 3
Hi all... Much love to you. I've taken so much advice from you. So much love. It helps, it truly does. Brian's 2nd oral medication Xtandi stopped working. PSA from the low of .2 to now over 40. Getting a port in next week to start IV chemotherapy again. Might be a good thing as this Xtandi
Hi all... Much love to you. I've taken so much advice from you. So much love. It helps, it truly does. Brian's 2nd oral medication Xtandi stopped working. PSA from the low of .2 to now over 40. Getting a port in next week to start IV chemotherapy again. Might be a good thing as this Xtandi
Brbnbrn
in
Advanced Prostate Cancer
3 years ago
Newbie. Good day to all!
Live from Austin,Texas, and some days I even feel alive. Others, not so much. New to this forum. I mostly listen. I give no advice unless it‘s asked for. Intermittent fasting is one part of my therapy, prescribed by me but some evidence out there of efficacy. Am also on Lupron and Xtandi. Had chemo five
Live from Austin,Texas, and some days I even feel alive. Others, not so much. New to this forum. I mostly listen. I give no advice unless it‘s asked for. Intermittent fasting is one part of my therapy, prescribed by me but some evidence out there of efficacy. Am also on Lupron and Xtandi. Had chemo five
Fastingguy
in
Advanced Prostate Cancer
3 years ago
Update and a question
Hi again team! Loving this group! Have a question- after speaking to another oncologist (will still get a more formal 2nd opinion at MD Anderson)- he suggested that my husband make sure he gets either a PMSA or an Azumin type of PET scan to properly evaluate his prostate cancer. Can anyone comment on
Hi again team! Loving this group! Have a question- after speaking to another oncologist (will still get a more formal 2nd opinion at MD Anderson)- he suggested that my husband make sure he gets either a PMSA or an Azumin type of PET scan to properly evaluate his prostate cancer. Can anyone comment on
acuphealing
in
Advanced Prostate Cancer
3 years ago
Lymph’s nodes relapse
Good morning I am writing on behalf of a friend who doesn’t speak English to get some advice. My friend has been diagnosed 4 years ago with agressive localisée prostate cancer . He first went through radical prostatectomy and since his nadir psa was 0,23 and pathological report was not good he got adjuvant
Good morning I am writing on behalf of a friend who doesn’t speak English to get some advice. My friend has been diagnosed 4 years ago with agressive localisée prostate cancer . He first went through radical prostatectomy and since his nadir psa was 0,23 and pathological report was not good he got adjuvant
Johnko
in
Advanced Prostate Cancer
3 years ago
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