Diagnosis

[Lass41]

After 3 years of trying (naturally, IVF, FET) with no luck. We finally figured out a probable cause for me not getting pregnant. It is that I have adenomyosis. I will have to go be on lupron for 3 months. For anyone else that has been diagnosed with this, what was your experience?

[Zeebee14]

I’m waiting for an official diagnosis but it’s suspected I have this too. I’d also love to hear about other peoples experiences. X

[slinky00]

Hi Lass41

I haven't got any advice to be honest as such I just thought I'd reply as I have also been trying for more than 5 years, with 3 miscarriages and am due to go for a MRI next week as they suspect I also might have adenomyosis. I changed consultant as my previous one is moving away and the new one I saw did and scan and boom thought he saw it straight away.

I have been told that if MRI confirms it is positive for adenomyosis then I will go through a couple of rounds of retrieval of eggs as I also have low AMH and nearly 40 yrs old and then be treated before having frozen transfer. I've been doing some reading and

depending on the severity of the condition I think think treatment for 2/3 months is normal, reducing the production of estrogen and allowing the endometrial tissue and inflammation to reduce in size, as implantation can be affected as well as carrying a higher chance of miscarriage with this condition.

Have they advised you to treat the adenomyosis initially and then start IVF cycles again? I think my age and AMH has an impact of them deciding it would be best for me to have eggs retrieved first and then treatment with frozen transfer later down the line.

all the best in your journey

[Lass41 in reply to slinky00]

Hi- thank you for sharing. I am 40, will be 41 in June. The plan they have for me is to be on Lupron May, June, & July and then I start an IVF cycle in August and do a fresh transfer and freeze any remaining embryos. I can give more details as I find out more

[slinky00 in reply to Lass41]

I will be 40 in August, once I've had MRI and got the results I'll know what they suggest re treatment specifically. I have always previously done short protocol with fresh transfer as never get enough embryos to freeze. Yes please do let me know how it goes for you and I will also do the same.

[Lass41 in reply to slinky00]

On the Lupron now- at times I feel nauseous (mostly in the morning), I feel tired most days, have headaches here and there(they don’t last long), gain of weight, specifically in my tummy area- libido is pretty much none existent. So yup!! It’s going great.

[Rol81]

Hi. I was diagnosed with adenemyosis on my last cycle. They haven’t suggested any treatment for it. When I asked if it affected me getting pregnant they said no. About to start next cycle on Tuesday, long protocol again but this time I’ve been told to take the pill from day 1 and stop on day 21 when I start Buserelin injections.

[joey81]

Hi Ladies, i dont have an answer but i have been suspected of having chronic endometritis (not endometriosis). It is inflammation of the uterus lining and doctor suspects this may have caused my miscarriages. She said ultimately you need a biopsy to check it is clear. Meanwhile i read up on how to cure it and you need 14 days of antibiotics doxycycline. If that doesnt clear it there is another course of another antibiotic, which is what i read from a study online. I read up on natural ways to cure it and now focusing on anti inflammatory foods eg tumeric, gut probiotic, probably also need to get a vaginal probiotic too. I start my cycle in 4 weeks and hoping yo empirically deal with this before hand incase it is an issue.

[joey81]

Hi Ladies, had the result back from my pelvic MRI and i have adenomyosis and endrometriosis which has not been diagnosed in the last 3 years! Feeling quite devastated. Doc said there isnt really any treatment for Adenomyosis. I did a quick google to see what foods to avoid and one of them was raspberry leaf tea. So ill stop drinking this now, amongst other things. Will do a google session on it tonight.