Thank you!: I want to thank the members... - Prostate Cancer N...

Prostate Cancer Network

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Thank you!

Smallfall profile image
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I want to thank the members of this group, especially Tall_Allen, for the advice and support I've received the last couple of years. After a failed trial of HIFU, with a resultant steady increase in my PSA, I had another biopsy done June of last year. The report was 8x 3+4, 1x 4+3, and 1x 4+4 out of 12 cores. My urologist recommended EBRT and 2 years of Lupron. Several members of this group offered suggestions; Tall_Allen recommended either SBRT or HDR brachy with EBRT. I followed his suggestion of using Dr. Hsu, at UCSF, for the HDR brachy, and I couldn't have been happier with this Dr. , facility, and procedure. After firing my first RO, I had IMRT done with Dr. Wahlen, at Enloe Cancer Center, Chico, Ca. He was willing to follow Dr. Hsu's treatment recommendations, including only 6 months of Lupron, and everything was finished by 12/21/20. I just got my first PSA, .05, and couldn't be happier. I know this isn't the end of it, but I'm feeling a great deal of relief...and gratitude. Thank you all!!

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Smallfall
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Justfor_ profile image
Justfor_

And your totalT (Testosterone) at the time of PSA was?

Smallfall profile image
Smallfall in reply to Justfor_

I only did PSA.

vanh profile image
vanh

Great post! Glad you are doing well. I have my appointment for Lupron on Monday 8/9/21 and 45 Radiation treatments 2 months after. I found out that my insurance may cover HIFU, reading your comments maybe HIFU is not the way to go, just wanted anything less invasive, my Gleason is 4+3=7 15 PSA. I am not sure if Lupron would go with HIFU if my Dr recomends it.

Smallfall profile image
Smallfall in reply to vanh

I suggest you check to see how much of HIFU your insurance covers; Medicare covered the surgery center only. Also, if I were going to get HIFU again, I would ablate the whole gland rather than just half. Good luck with whatever you do!

vanh profile image
vanh in reply to Smallfall

Thank you for the advise, it is greatly appreciated! it is hard to find some kind of chart about available treatments and how effective they are, I am just plain scared. I will post my experience with whatever treatment I get, just like you shared yours. Thank you again.

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