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The Game Plan
Oct. 3 Urologist puts in markers in my prostate and gel spacer with the University of Oklahoma Cancer Center. Oct. -date TBD- Bone scan/Pest scan to rule out that the cancer has not spread outside the prostate. Oct. -date TBD- MRI- needed before Proton treatments Oct/Nov.- dates TBD- 5 Proton radiation
Oct. 3 Urologist puts in markers in my prostate and gel spacer with the University of Oklahoma Cancer Center. Oct. -date TBD- Bone scan/Pest scan to rule out that the cancer has not spread outside the prostate. Oct. -date TBD- MRI- needed before Proton treatments Oct/Nov.- dates TBD- 5 Proton radiation
BB_1
in
Advanced Prostate Cancer
2 years ago
Dad has brain cancer, heart issues, and now PSA has increased. Concerned about medication complications..
Hello friends! It's been a long time since I've posted. It's hard to keep up with my dad's health on my end.. we've had so many close calls that his prostate cancer has felt like a bump on the head compared to all the rest of his concerns! So, to bring everyone up to speed as quickly as I can, dad
Hello friends! It's been a long time since I've posted. It's hard to keep up with my dad's health on my end.. we've had so many close calls that his prostate cancer has felt like a bump on the head compared to all the rest of his concerns! So, to bring everyone up to speed as quickly as I can, dad
Lynsi13
in
Advanced Prostate Cancer
2 years ago
Change seems inevitable
This is one of my very few posts. I've been reading these posts from my brothers (and sisters) for several years and think they've help me survive this weird affliction. History: In Dec 2018, diagnosed with CRPC after an MRI for a back problem showed signs of metastasized PC. Went for labs and had
This is one of my very few posts. I've been reading these posts from my brothers (and sisters) for several years and think they've help me survive this weird affliction. History: In Dec 2018, diagnosed with CRPC after an MRI for a back problem showed signs of metastasized PC. Went for labs and had
pdold
in
Advanced Prostate Cancer
2 years ago
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PSA bump
Morning warriors, I’m stage 4 with extensive metastatic in bones and lymph nodes. I completed my 6th chemo with docetaxel on Sept 19. I’m on lupron and started Zytiga but it impacted my liver so I stopped Zytiga for now until my liver gets better. My next lupron injection is next Tuesday Oct 4. My
Morning warriors, I’m stage 4 with extensive metastatic in bones and lymph nodes. I completed my 6th chemo with docetaxel on Sept 19. I’m on lupron and started Zytiga but it impacted my liver so I stopped Zytiga for now until my liver gets better. My next lupron injection is next Tuesday Oct 4. My
Lslal
in
Advanced Prostate Cancer
2 years ago
Pro biotics
I saw another feed a bit ago about taking pro biotics prior to and during radiation. Any details on this? I am waiting for my PSMA PET. Orders are in , just waiting the date to get scheduled, then tentatively, based on those results, Bicalutamide next day after PET, then Lupron, (I believe a couple
I saw another feed a bit ago about taking pro biotics prior to and during radiation. Any details on this? I am waiting for my PSMA PET. Orders are in , just waiting the date to get scheduled, then tentatively, based on those results, Bicalutamide next day after PET, then Lupron, (I believe a couple
runtrails
in
Advanced Prostate Cancer
2 years ago
Anyone over 60 still on Lupron shots to decrease estrogen production?
hi Ladies, I’m so enjoying my month visit to Nz seeing old friends! Also saw my old oncologist here in Nz who wants me to think about having my ovaries out to help my verzenio treatment work better even though I am 62! When chemo pushed me into menopause back when I was 44, it aprarently allowed
hi Ladies, I’m so enjoying my month visit to Nz seeing old friends! Also saw my old oncologist here in Nz who wants me to think about having my ovaries out to help my verzenio treatment work better even though I am 62! When chemo pushed me into menopause back when I was 44, it aprarently allowed
Bettybuckets
in
SHARE Metastatic Breast Cancer
2 years ago
PET results!
hi everyone! My dad was diagnosed with MBC in May of 2022 to bone. He is currently on Ibrance, letrozole, lupron, and xjeva. He just had his first pet scan after starting treatment and it shows that all of his previous lesions that lit up on the PET scan have resolved. (Primary breast tumor and bone
hi everyone! My dad was diagnosed with MBC in May of 2022 to bone. He is currently on Ibrance, letrozole, lupron, and xjeva. He just had his first pet scan after starting treatment and it shows that all of his previous lesions that lit up on the PET scan have resolved. (Primary breast tumor and bone
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
Anyone using Estrogel with success to relieve horrible hot flashes?
On ronrons advice and experience I decided to give estrogen replacement a try. I get horrible hot flashes every hour that leaves me drenched in sweat. I stopped taking lupron 6mo ago hoping that was the biggest culprit. Last blood test still showsT <12. I take 500mg of zytiga and 5mg of prednisone
On ronrons advice and experience I decided to give estrogen replacement a try. I get horrible hot flashes every hour that leaves me drenched in sweat. I stopped taking lupron 6mo ago hoping that was the biggest culprit. Last blood test still showsT <12. I take 500mg of zytiga and 5mg of prednisone
No_stone_unturned
in
Advanced Prostate Cancer
2 years ago
Second phase with Zytiga....then what?
Well hello again my friends. As mentioned before, I had previous PC 2010, Proton RT in 2016. In May my PSA went to 2.0. Recurrence in two obturator lymph nodes. Im 64 years of age. Started Lupron in May, Zytiga this month. Met with some radiologists and they are ready to "go nuclear" on my lymph
Well hello again my friends. As mentioned before, I had previous PC 2010, Proton RT in 2016. In May my PSA went to 2.0. Recurrence in two obturator lymph nodes. Im 64 years of age. Started Lupron in May, Zytiga this month. Met with some radiologists and they are ready to "go nuclear" on my lymph
icanwintwice
in
Advanced Prostate Cancer
2 years ago
Xtandi-Lupron Side Effect Questions
My husband is 81, diagnosed spring of 21 with metastatic PC. PSA of 89. By July 21 they had him on Lupron and Xtandi by September. His numbers went way, way down so they were able to cut him back to half the Xstandi to help with dizziness issues that Xstandi & Flomax were causing, that helped but numbers
My husband is 81, diagnosed spring of 21 with metastatic PC. PSA of 89. By July 21 they had him on Lupron and Xtandi by September. His numbers went way, way down so they were able to cut him back to half the Xstandi to help with dizziness issues that Xstandi & Flomax were causing, that helped but numbers
Cabin-Time
in
Advanced Prostate Cancer
2 years ago
lymph nodes
After prostate surgery 2007, radiation 2009 general area, PSA went up 4.6. Started on Lupron, hot flashes, very very tiredness, switched to Casodex. PSA went down back up and dow again, from .23 to .83 recently. Went in for nuclear scan, showed lymph nodes only area positive. What is the treatment now
After prostate surgery 2007, radiation 2009 general area, PSA went up 4.6. Started on Lupron, hot flashes, very very tiredness, switched to Casodex. PSA went down back up and dow again, from .23 to .83 recently. Went in for nuclear scan, showed lymph nodes only area positive. What is the treatment now
Papadave
in
Advanced Prostate Cancer
2 years ago
Ki scores
hello. Just wanted to reach out and see if anyone knows their Ki score and what their oncologists say about predictability in outcomes. My fathers Ki score is 67-70% which Google has informed me is high. I think this means that it is very Chemo sensitive. Does anyone else have a high Ki score and how
hello. Just wanted to reach out and see if anyone knows their Ki score and what their oncologists say about predictability in outcomes. My fathers Ki score is 67-70% which Google has informed me is high. I think this means that it is very Chemo sensitive. Does anyone else have a high Ki score and how
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
FL oncologist recommendations
hi! Does anyone have any good recommendations for a breast oncologist in FL? Specifically in the Delray Beach/ boca area? Willing to drive to Deerfield, Miami, boynton, etc. Thanks so much! This is for my father who was diagnosed with MBC to bone in May of 2022. Started on Ibrance letrozole lupron
hi! Does anyone have any good recommendations for a breast oncologist in FL? Specifically in the Delray Beach/ boca area? Willing to drive to Deerfield, Miami, boynton, etc. Thanks so much! This is for my father who was diagnosed with MBC to bone in May of 2022. Started on Ibrance letrozole lupron
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
Found his maxillary Osteonecrosis of the jaw has exposed and his 4th chemo. of Docetaxel is due in a few days. Chemo making worse to ONJ?
86-year-old advanced prostate cancer with dx 2018, while doing EBRT in 2020, developed Maxillary Osteonecorsis of the jaw that has been taking care with antibiotic and chlorohexidine. How long antibiotics could use? Life time? Discontinued after full 2 years. It's his 4th Chemo of Docetaxel is due in
86-year-old advanced prostate cancer with dx 2018, while doing EBRT in 2020, developed Maxillary Osteonecorsis of the jaw that has been taking care with antibiotic and chlorohexidine. How long antibiotics could use? Life time? Discontinued after full 2 years. It's his 4th Chemo of Docetaxel is due in
11redtomato_41
in
Advanced Prostate Cancer
2 years ago
Using Lupron for diagnostic tool????
Was wondering why you couldnt use a 1 month lupron injection for diagnostic testing for a guy who had a clean biopsy twice, had PSA going up and down over time around 10. I know its not SOC. but what is the harm in giving the injection and see if the PSA drops significantly? Would that not reveal
Was wondering why you couldnt use a 1 month lupron injection for diagnostic testing for a guy who had a clean biopsy twice, had PSA going up and down over time around 10. I know its not SOC. but what is the harm in giving the injection and see if the PSA drops significantly? Would that not reveal
Rocketman1960
in
Advanced Prostate Cancer
2 years ago
Will Medicare pay for ADT treatment?
I’m 62 and still working with good insurance. I recently started Lupron and Zytiga. I plan on retiring at 65. Will Medicare pick up the cost for that treatment? Thanks
I’m 62 and still working with good insurance. I recently started Lupron and Zytiga. I plan on retiring at 65. Will Medicare pick up the cost for that treatment? Thanks
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
CDC73 mutation?
hi all - quick summary. My husband has asymptomatic prostate cancer from pelvis to lungs to soft tissue in brain. Currently getting Docetaxal and Lupron, with Zytiga just added. Completed brain radiation. A Tempus test revealed a CDC73 mutation, normally associated with thyroid cancer (thyroid checks
hi all - quick summary. My husband has asymptomatic prostate cancer from pelvis to lungs to soft tissue in brain. Currently getting Docetaxal and Lupron, with Zytiga just added. Completed brain radiation. A Tempus test revealed a CDC73 mutation, normally associated with thyroid cancer (thyroid checks
Sewinggam
in
Advanced Prostate Cancer
2 years ago
actual castration instead of ADT
I’m just throwing this out for discussion. I’m 62 in good over shape and recently started Lupron and Zytiga. I am told I will be on these or some form of ADT for the rest of my life. Since the goal is to eliminate testosterone wouldn’t it make sense to remove the source of it? By doing so one could
I’m just throwing this out for discussion. I’m 62 in good over shape and recently started Lupron and Zytiga. I am told I will be on these or some form of ADT for the rest of my life. Since the goal is to eliminate testosterone wouldn’t it make sense to remove the source of it? By doing so one could
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
Short Term or Long(er) Term ADT With Salvage RT
Hi all, Need thoughts on whether my physician is on the right track recommending only 6 months of ADT (Lupron). I'm early 60s and very fit. Just completed salvage radiation to PB and PLN and 6-month Lupron shot. Radiation therapy began 6 months following RALP. Happy to get off ADT (usual side effects
Hi all, Need thoughts on whether my physician is on the right track recommending only 6 months of ADT (Lupron). I'm early 60s and very fit. Just completed salvage radiation to PB and PLN and 6-month Lupron shot. Radiation therapy began 6 months following RALP. Happy to get off ADT (usual side effects
C2H5OH
in
Advanced Prostate Cancer
2 years ago
Anyone have Physical Therapy for joint and bone pain do to ADT?
I am on Lupron and Xtaindi for about 2 years. Anyone have bone/joint pain? I am thinking about setting up an appointment with a physical therapist at Mt Sinai in NYC. I use an body vibrator that does help. Also I take some herbal anti-inflammatory. Any ideas?
I am on Lupron and Xtaindi for about 2 years. Anyone have bone/joint pain? I am thinking about setting up an appointment with a physical therapist at Mt Sinai in NYC. I use an body vibrator that does help. Also I take some herbal anti-inflammatory. Any ideas?
de-luke
in
Advanced Prostate Cancer
2 years ago
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