Search
Search
About
Log in
Join
Experiences with
Nuprin
Posts
Communities
4,099 public posts
Filter results
Finally makes sense
I started Firmagon about a year ago with great results for 5 months and then added Xtandi....Side effects from both were minimal due to weight training in gym 3x a week and aerobic running off days. I began researching the relatively newly FDA approved Orgovyx and it made sense to me to ask my MO to
I started Firmagon about a year ago with great results for 5 months and then added Xtandi....Side effects from both were minimal due to weight training in gym 3x a week and aerobic running off days. I began researching the relatively newly FDA approved Orgovyx and it made sense to me to ask my MO to
GSDF
in
Advanced Prostate Cancer
2 years ago
Second MRI - Likely extracapsular extension
I've been busy doing all the planning for my SBRT treatments, scheduled for Nov 29th, I am currently signed up for 5 SBRT + 18 months of lupron. We did a second MRI today as part of the planning session(s) and it looks like they found a "likely" extracapsular extension. I don't think that was in the
I've been busy doing all the planning for my SBRT treatments, scheduled for Nov 29th, I am currently signed up for 5 SBRT + 18 months of lupron. We did a second MRI today as part of the planning session(s) and it looks like they found a "likely" extracapsular extension. I don't think that was in the
SierraSix
in
Advanced Prostate Cancer
2 years ago
Lupron and High Dose Brachytherapy
I had a biopsy that shows recurrent cancer in both seminal vesicles. The recommended treatment from MSKCC is 4-6months on Lupron and High Dose Brachytherapy. I had Brachytherapy in 2012 and I’m concerned with more radiation to the area. The doctor who will do the procedure is Michael Zelefsky. I’m inclined
I had a biopsy that shows recurrent cancer in both seminal vesicles. The recommended treatment from MSKCC is 4-6months on Lupron and High Dose Brachytherapy. I had Brachytherapy in 2012 and I’m concerned with more radiation to the area. The doctor who will do the procedure is Michael Zelefsky. I’m inclined
Trying-Times
in
Advanced Prostate Cancer
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
casadex use
I HAVE BEEN ON 50 MG OF CASADEX DAILY SINCE APRIL 2020. MY PSA WENT FROM 119 TO 18 AND NOW IS 24. HAS ANYONE WHO USED CASADEX HAD PSA FLUCTUATE UP AND DOWN. i'M DEBATING GOING ON LUPRON BUT FEEL IT WILL MAKE MY HEALTH WORST. HAS ANYONE HAD LUCK ON CASADEX USE FOR PROSTATE CANCER. IF SO HOW IS IT WORKING
I HAVE BEEN ON 50 MG OF CASADEX DAILY SINCE APRIL 2020. MY PSA WENT FROM 119 TO 18 AND NOW IS 24. HAS ANYONE WHO USED CASADEX HAD PSA FLUCTUATE UP AND DOWN. i'M DEBATING GOING ON LUPRON BUT FEEL IT WILL MAKE MY HEALTH WORST. HAS ANYONE HAD LUCK ON CASADEX USE FOR PROSTATE CANCER. IF SO HOW IS IT WORKING
woppaginny
in
Advanced Prostate Cancer
2 years ago
Pleasant PSA surprise
I’m on the triple therapy. Lupron, Chemo and Zytiga. Got a pleasant surprise today as my blood numbers are all within suggested ranges, testosterone less then 1 and PSA of 0.09. Besides the meds, I’m hoping that my vegan diet and exercising are helping. Except for hot flashes, which I can manage,
I’m on the triple therapy. Lupron, Chemo and Zytiga. Got a pleasant surprise today as my blood numbers are all within suggested ranges, testosterone less then 1 and PSA of 0.09. Besides the meds, I’m hoping that my vegan diet and exercising are helping. Except for hot flashes, which I can manage,
Lslal
in
Advanced Prostate Cancer
2 years ago
PSA <0.04 to exactly 0.05
My husband was diagnosed with stage 4 PC in November 2019.(Gleason 9) He had 2 mets on his lower spine only. (thus the stage 4 diagnosis) He has been on Zytiga and Lupron since that time. He had radiation to the primary tumor and both mets in the summer of 2020. His PSA has been <0.04 since that time
My husband was diagnosed with stage 4 PC in November 2019.(Gleason 9) He had 2 mets on his lower spine only. (thus the stage 4 diagnosis) He has been on Zytiga and Lupron since that time. He had radiation to the primary tumor and both mets in the summer of 2020. His PSA has been <0.04 since that time
brzandme
in
Advanced Prostate Cancer
2 years ago
Slight Testosterone Increase While on Lupron/Zytiga
Hi all, I've been on Lupron/Zytiga for exactly 1 year. Testosterone went from 650 to <5ng/dl in that timeframe. Now, for the first time in 11 months my Testosterone went from <5 to <12ng/dl. I know that's not much of an increase but wondering if the ADT effectiveness is fading. Could be difference
Hi all, I've been on Lupron/Zytiga for exactly 1 year. Testosterone went from 650 to <5ng/dl in that timeframe. Now, for the first time in 11 months my Testosterone went from <5 to <12ng/dl. I know that's not much of an increase but wondering if the ADT effectiveness is fading. Could be difference
groth12345
in
Advanced Prostate Cancer
2 years ago
PSA ranges
I see many participants expressing concern over PSA management at levels less than 1.0. My journey began with a test result over 3,800 in late 2020 and never dropped below 6.0 with the various treatment regimens (docetaxel, then abiraterone, then cabazitaxel/carboplatin, lupron/zometa throughout, now
I see many participants expressing concern over PSA management at levels less than 1.0. My journey began with a test result over 3,800 in late 2020 and never dropped below 6.0 with the various treatment regimens (docetaxel, then abiraterone, then cabazitaxel/carboplatin, lupron/zometa throughout, now
21cakes
in
Advanced Prostate Cancer
2 years ago
https://news.utexas.edu/2017/06/06/starving-prostate-cancer-with-what-you-eat-for-dinner/. Any truth ? Countering glutamate ?
Link : https://news.utexas.edu/2017/06/06/starving-prostate-cancer-with-what-you-eat-for-dinner/ If anyone uses these supplements like circumin and resveratral and the acid me tioned please lmk specific brands or links to order . THIS IS NOT TELLING ANYoNE REPLACE YOUR MEDICAL CARE, JUST INTEGRATE IF
Link : https://news.utexas.edu/2017/06/06/starving-prostate-cancer-with-what-you-eat-for-dinner/ If anyone uses these supplements like circumin and resveratral and the acid me tioned please lmk specific brands or links to order . THIS IS NOT TELLING ANYoNE REPLACE YOUR MEDICAL CARE, JUST INTEGRATE IF
Daddyishealing
in
Advanced Prostate Cancer
2 years ago
Rise in testosterone
How concerned should we be if husband’s testosterone has risen from 3 to 34. (Diagnosed Stage 4/metastatic in Sept. 2017. Lupron/Zytiga/prednisone beginning in Jan.2018 and PSA has been undetectable since May 2018.) Last testosterone reading was November 2021. (It has been at 3 since 2019.) Test results
How concerned should we be if husband’s testosterone has risen from 3 to 34. (Diagnosed Stage 4/metastatic in Sept. 2017. Lupron/Zytiga/prednisone beginning in Jan.2018 and PSA has been undetectable since May 2018.) Last testosterone reading was November 2021. (It has been at 3 since 2019.) Test results
Jscjac
in
Advanced Prostate Cancer
2 years ago
How to interpret PSA results
Hi there, Happy Veterans’ Day. My husband and I have a question about interpreting his PSA results. When he was diagnosed in March 2022, his PSA was at 387, with mets throughout his lymph system. Since then he has been receiving Lupron, Zytiga (but discontinued a couple months in due to liver toxicity
Hi there, Happy Veterans’ Day. My husband and I have a question about interpreting his PSA results. When he was diagnosed in March 2022, his PSA was at 387, with mets throughout his lymph system. Since then he has been receiving Lupron, Zytiga (but discontinued a couple months in due to liver toxicity
DDCD
in
Advanced Prostate Cancer
2 years ago
Not so sure I should be on Erleada
I wrote a lengthy post about my second cancer you can read about here: https://healthunlocked.com/advanced-prostate-cancer/posts/148745973/hey-lucky-me-i-now-have-2-cancers?responses=148748970 This post is only addressing my Testosterone levels and PSA 5/1 I skipped my Lupron injection. 8/30 - mayo
I wrote a lengthy post about my second cancer you can read about here: https://healthunlocked.com/advanced-prostate-cancer/posts/148745973/hey-lucky-me-i-now-have-2-cancers?responses=148748970 This post is only addressing my Testosterone levels and PSA 5/1 I skipped my Lupron injection. 8/30 - mayo
swwags
in
Advanced Prostate Cancer
2 years ago
Supraclavicular Lymph node Metastasis and Imaging Issues
hey all, I have a couple questions and hoping for some input from the forum. My PSMA Pet scan showed psma avid nodes in my neck. There were three and are all around .6 cm. My MO is concerned that no other uptake was shown between my pelvic region up to my neck. Should I expect there are more areas to
hey all, I have a couple questions and hoping for some input from the forum. My PSMA Pet scan showed psma avid nodes in my neck. There were three and are all around .6 cm. My MO is concerned that no other uptake was shown between my pelvic region up to my neck. Should I expect there are more areas to
Linebacker75
in
Advanced Prostate Cancer
2 years ago
I know I'm lucky, but.....
I was diagnosed as Stage 4 three years ago with a PSA of 65 (after radiation treatments 7 years earlier). I've been on Erleada / Lupron since then and PSA dropped to 1.74 in one month and fell below .1 four months later and has held steady at .01 - .02 for two years. Minimal side effects. I got a
I was diagnosed as Stage 4 three years ago with a PSA of 65 (after radiation treatments 7 years earlier). I've been on Erleada / Lupron since then and PSA dropped to 1.74 in one month and fell below .1 four months later and has held steady at .01 - .02 for two years. Minimal side effects. I got a
NorYug
in
Advanced Prostate Cancer
2 years ago
Interaction Between Tamiflu and Lupron
Recently, I experienced somewhat serious side effects of interaction between Tamiflu and Lupron. I had a 3 month Lupron shot on October 17. Then I had a flu shot on October 24. And on October 26 I tested positive for flu. I was prescribed with Tamiflu by the doctor at the Urgent Care I visited. I completed
Recently, I experienced somewhat serious side effects of interaction between Tamiflu and Lupron. I had a 3 month Lupron shot on October 17. Then I had a flu shot on October 24. And on October 26 I tested positive for flu. I was prescribed with Tamiflu by the doctor at the Urgent Care I visited. I completed
dac500
in
Advanced Prostate Cancer
2 years ago
So Yet Another Follow Up - Starting I think 2020 - Bizzar,
Well those who know me will know not long ago I had scan including PET Scan for suspected Lung Cancer or TB. In the end was put down to new scarring. Many of you will know in 2020 I got Bladder Cancer symptoms - I was diagnosed with Bladder Cancer in site a year later and was treated with a TURBT to
Well those who know me will know not long ago I had scan including PET Scan for suspected Lung Cancer or TB. In the end was put down to new scarring. Many of you will know in 2020 I got Bladder Cancer symptoms - I was diagnosed with Bladder Cancer in site a year later and was treated with a TURBT to
Ern007
in
Lung Conditions Community Forum
1 year ago
Eligard vs Lupron
I can find no difference between the two other than method of delivery. Anyone else know of anything?
I can find no difference between the two other than method of delivery. Anyone else know of anything?
rfgh20
in
Advanced Prostate Cancer
2 years ago
Hey lucky me - I now have 2 cancers
I wrote about this 2 months ago and things have changed so I'm re-writing my post: It's important to note I skipped my May Lupron injection.
8/30 Mayo C11 Choline Pet scan:
1. New choline avid marrow occupying lesion in the mid right humerus likely represents metastaticdisease. Additional focus
I wrote about this 2 months ago and things have changed so I'm re-writing my post: It's important to note I skipped my May Lupron injection.
8/30 Mayo C11 Choline Pet scan:
1. New choline avid marrow occupying lesion in the mid right humerus likely represents metastaticdisease. Additional focus
swwags
in
Advanced Prostate Cancer
2 years ago
Relugolix
I'm interested in hearing about personal experiences using Relugolix, and how the severity of its side effects compares with side effects of Lupron.
I'm interested in hearing about personal experiences using Relugolix, and how the severity of its side effects compares with side effects of Lupron.
ron_bucher
in
Advanced Prostate Cancer
2 years ago
Help: Metastasized Castration Resistant Prostate Cancer!
Hi, I’m new here. — Yesterday my current doctor of the 5, given me in 16+ months, told me that I had castration-resistant prostate cancer and asked me in my second meeting with him if I had a living will. He told me that I may live a year or two at most. Those who live for ten years don’t have castration-resistant
Hi, I’m new here. — Yesterday my current doctor of the 5, given me in 16+ months, told me that I had castration-resistant prostate cancer and asked me in my second meeting with him if I had a living will. He told me that I may live a year or two at most. Those who live for ten years don’t have castration-resistant
Yin-Yin
in
Advanced Prostate Cancer
2 years ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3451 results
Prostate Cancer Network
187 results
Endometriosis UK
110 results
View top 10 communities
Sort by
Most Relevant
Newest