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BCG for babies
Hi all , my Granddaughter is having a BCG I think it’s a live vaccine? I was just wondering if I have to keep my distance for a couple of weeks ? I
Hi all , my Granddaughter is having a BCG I think it’s a live vaccine? I was just wondering if I have to keep my distance for a couple of weeks ? I
Pekingese
in
CLL Support
1 year ago
Vacation time?
I'm starting year 5. I started in 2018 with PC a surprise finding during an MRI for chronic but low grade low back pain. For past 4 years I've had stable PSA varying from 7 to 11 and back. Treatment is Lupron and Zytiga +Prednisone all at standard quantities. MO considers this level as probably
I'm starting year 5. I started in 2018 with PC a surprise finding during an MRI for chronic but low grade low back pain. For past 4 years I've had stable PSA varying from 7 to 11 and back. Treatment is Lupron and Zytiga +Prednisone all at standard quantities. MO considers this level as probably
pdold
in
Advanced Prostate Cancer
2 years ago
brain fog
I started Lupron and Zytiga about 5 months ago. Along with all of the other side effects, I have had a noticeable mental fog the has descended. Anyone else?
I started Lupron and Zytiga about 5 months ago. Along with all of the other side effects, I have had a noticeable mental fog the has descended. Anyone else?
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
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Starting relugolix / Orgovyx
My healthcare provider indicated they wouldn't prescribe Orgovyx and to use Lupron instead. Has anyone dealt with this? Are there ways to get the meds cheaper from Canada or elsewhere? Any insight would be great. My rationale is that Orgovyx may have fewer side effects, and concerned as I still go
My healthcare provider indicated they wouldn't prescribe Orgovyx and to use Lupron instead. Has anyone dealt with this? Are there ways to get the meds cheaper from Canada or elsewhere? Any insight would be great. My rationale is that Orgovyx may have fewer side effects, and concerned as I still go
plato123
in
Advanced Prostate Cancer
2 years ago
prostrate cancer
lupron. seems this drug kills testosterone and is supposed to starve cancer cells.. while radiation kills the cancer.. I was reading. Outsmart your cancer by Tanya Pierce.. The medical argument is that testosterone is the evil thing here but really is a lame argument.. As Dr White has said if this
lupron. seems this drug kills testosterone and is supposed to starve cancer cells.. while radiation kills the cancer.. I was reading. Outsmart your cancer by Tanya Pierce.. The medical argument is that testosterone is the evil thing here but really is a lame argument.. As Dr White has said if this
Terribleten
in
Men's Health Forum
2 years ago
How content should I be with my current treatment 🤷
Yay, I finally expanded my treatment history into a useful document! Just did the update. The dust seems to have settled into my current treatment of Lupron, Abiraterone, and Prednisone. And I have to admit I'm enjoying riding that path quietly for a while. On the other hand I'm still confused about
Yay, I finally expanded my treatment history into a useful document! Just did the update. The dust seems to have settled into my current treatment of Lupron, Abiraterone, and Prednisone. And I have to admit I'm enjoying riding that path quietly for a while. On the other hand I'm still confused about
Lewellen
in
Advanced Prostate Cancer
2 years ago
When ADT fails, we continue it anyway... why not Zytiga?
This question may be more theoretical than practical, but I am curious. We use ADT to lower T and get a PSA response and regression of PC (and get symptom relief). Eventually ADT "fails" and PSA rises. But ADT continues to "succeed" in keeping T low, so we stay on it, since low T continues to be important
This question may be more theoretical than practical, but I am curious. We use ADT to lower T and get a PSA response and regression of PC (and get symptom relief). Eventually ADT "fails" and PSA rises. But ADT continues to "succeed" in keeping T low, so we stay on it, since low T continues to be important
noahware
in
Advanced Prostate Cancer
2 years ago
What do these results mean
Hi, I need your help to understand the following results. I was diagnosed with stage 4 metastatic (throughout my body) PC last Feb with a PSA of 935. I was put on the triple therapy with Lupron, Zytiga and 6 rounds of taxotere. Today my PSA is 0.03 and I just received the following results from
Hi, I need your help to understand the following results. I was diagnosed with stage 4 metastatic (throughout my body) PC last Feb with a PSA of 935. I was put on the triple therapy with Lupron, Zytiga and 6 rounds of taxotere. Today my PSA is 0.03 and I just received the following results from
Lslal
in
Advanced Prostate Cancer
2 years ago
Four years of ADT, pros/cons
Four years of Lupron + abiraterone Pros: I'm still alive and castration sensitive, spine met not growing or painful Cons: Zero libido, muscle loss, fat gain, hot flashes, blueberry-size testicles, BP increase, body hair loss... and all the other side effects that many of you are all too familiar with
Four years of Lupron + abiraterone Pros: I'm still alive and castration sensitive, spine met not growing or painful Cons: Zero libido, muscle loss, fat gain, hot flashes, blueberry-size testicles, BP increase, body hair loss... and all the other side effects that many of you are all too familiar with
Gearhead
in
Advanced Prostate Cancer
2 years ago
Lupron or Firmagon after Orgovyx
I am finishing four months of Orgovyx, but have two more months to go in my “sentence”. I can pay $6000 out of pocket for the last two months. I’ve had only minor side effects and work out regularly. I’ve lost a lot of weight and feel in pretty good shape overall. I have lost some of the fear of
I am finishing four months of Orgovyx, but have two more months to go in my “sentence”. I can pay $6000 out of pocket for the last two months. I’ve had only minor side effects and work out regularly. I’ve lost a lot of weight and feel in pretty good shape overall. I have lost some of the fear of
Mike404
in
Prostate Cancer Network
2 years ago
QoL dinner cuz I got shishito peppers 😂
So, after Lupron shot I went to Trader Joe's, and saw Shishito Peppers. When I was in Spain with #1 son and wife on 5 day Camino Frances, we had pimientos de padron many times, blistered mild peppers. So, in the US you may use shishitos instead😉 I made a gambas, mejillones, calamares, y chorizo con
So, after Lupron shot I went to Trader Joe's, and saw Shishito Peppers. When I was in Spain with #1 son and wife on 5 day Camino Frances, we had pimientos de padron many times, blistered mild peppers. So, in the US you may use shishitos instead😉 I made a gambas, mejillones, calamares, y chorizo con
dockam
in
Advanced Prostate Cancer
2 years ago
psa increased to 16 doctor wants a bone scan
hi! My father had his appointment today and his psa is up to 16 (back to where he started 2 years ago). He is chemo naive. Started xtandi and Lupron in 2021. Switched to aberitone in November 2022. so he has to get a bone scan and do blood work again in two weeks to see his doctor I. A month. feeling
hi! My father had his appointment today and his psa is up to 16 (back to where he started 2 years ago). He is chemo naive. Started xtandi and Lupron in 2021. Switched to aberitone in November 2022. so he has to get a bone scan and do blood work again in two weeks to see his doctor I. A month. feeling
Hereformydad2022
in
Advanced Prostate Cancer
2 years ago
Still here today
I was diagnosed with prostate cancer in January 2017. Had my prostate removed in March 2017. PSA was ok for a while but started rising in March 2019. Had 35 radiation treatments April-May 2019. Again PSA was ok for a while but started rising in Spring of 2021. A Pet scan showed a spot on my sternum
I was diagnosed with prostate cancer in January 2017. Had my prostate removed in March 2017. PSA was ok for a while but started rising in March 2019. Had 35 radiation treatments April-May 2019. Again PSA was ok for a while but started rising in Spring of 2021. A Pet scan showed a spot on my sternum
stillheretoday
in
Advanced Prostate Cancer
2 years ago
Father’s MO now recommending adding Zytiga
Hi all, my dad is nearly three years from diagnosis of Gleason 9 with evidence of spread to local lymph nodes (see profile). Has had IMRT concurrent with 3 years of lupron. Latest PSA 0.03, <0.02 6 months prior. Original plan from MO was to do Lupron for 3 years which would end 2/23. His recent appointment
Hi all, my dad is nearly three years from diagnosis of Gleason 9 with evidence of spread to local lymph nodes (see profile). Has had IMRT concurrent with 3 years of lupron. Latest PSA 0.03, <0.02 6 months prior. Original plan from MO was to do Lupron for 3 years which would end 2/23. His recent appointment
mooman80
in
Advanced Prostate Cancer
2 years ago
possible to improve C Telopeptide Serum blood test for risk of osteonecrosis?
Hi, about 5 months ago I took myself off the Xgeva bone drug after being on it about 2 years or so. This was after learning I couldn’t be on it and also have the dental work done that I need to have done (cavitations etc). My personal feeling after doing research over the years is that I’m not able
Hi, about 5 months ago I took myself off the Xgeva bone drug after being on it about 2 years or so. This was after learning I couldn’t be on it and also have the dental work done that I need to have done (cavitations etc). My personal feeling after doing research over the years is that I’m not able
Verbena1
in
Bone Health and Osteoporosis UK
2 years ago
Sauna use good or bad?
In my August 3mo checkup, my psa was .12 . I get three month lupron injection, and on abiraterone since Feb 22. In my Nov checkup, PSA jump to .34 and so had one month follow-up showing that it jumped to .63. For background, I had PSMA PET scan in Jan 2022 that showed possible met in right anterior
In my August 3mo checkup, my psa was .12 . I get three month lupron injection, and on abiraterone since Feb 22. In my Nov checkup, PSA jump to .34 and so had one month follow-up showing that it jumped to .63. For background, I had PSMA PET scan in Jan 2022 that showed possible met in right anterior
DD50
in
Advanced Prostate Cancer
2 years ago
Xtandi after Zytega and then chemo
Hi all - my husband was diagnosed in May of 2020 with PSA 290, Gleason 9, extensive bone mets, and pain the only symptom. Started Lupron and Zytega, got PSA down to 0.2 in June of 2021, did radiation just to the prostate, and everything was good until November of 2021 when the PSA started doubling every
Hi all - my husband was diagnosed in May of 2020 with PSA 290, Gleason 9, extensive bone mets, and pain the only symptom. Started Lupron and Zytega, got PSA down to 0.2 in June of 2021, did radiation just to the prostate, and everything was good until November of 2021 when the PSA started doubling every
marchinda
in
Advanced Prostate Cancer
2 years ago
Attn: The QoL train is still heading down the Track. Next stop Willoughby, then Petticoat Junction😂
https://www.dailymotion.com/video/x7zpwnmhttps://youtu.be/XRhi8Tk9nNE Hey y'all, I climbed Diamond Head this am, and its such a beautiful vista. https://www.earthtrekkers.com/diamond-head-summit-trail-oahu/ Was more outta breath, probs 8 yrs on Lupron has zapped my stamina. So Blest to still be able
https://www.dailymotion.com/video/x7zpwnmhttps://youtu.be/XRhi8Tk9nNE Hey y'all, I climbed Diamond Head this am, and its such a beautiful vista. https://www.earthtrekkers.com/diamond-head-summit-trail-oahu/ Was more outta breath, probs 8 yrs on Lupron has zapped my stamina. So Blest to still be able
dockam
in
Advanced Prostate Cancer
2 years ago
Prognostication Requested
My current situation: PSMA scan found 2 hot nodes in the lower retroperitoneum/para-aortic region. This happened twice before and each time a 3-month or so Lupron shot and SBRT bought me 12-24 free months. So, once again,I was happy that no bone nor organs lit up (always a fear that my scan will light
My current situation: PSMA scan found 2 hot nodes in the lower retroperitoneum/para-aortic region. This happened twice before and each time a 3-month or so Lupron shot and SBRT bought me 12-24 free months. So, once again,I was happy that no bone nor organs lit up (always a fear that my scan will light
compiler
in
Advanced Prostate Cancer
2 years ago
Should I be doing more.
Diagnosed 11-9-21. PSA 1998, ALK PHOS 750, Gleason 4+5. Lots of mets mostly bone. 11-17-21 started treatment. 3 month Lupron injection followed 2 days later with 4 month Zometa and 1st of 6 cycles of docetaxel. At 2nd chemo PSA 301, ALK P 1730. At completion of chemo 4-8-22 PSA 2.45, ALK P 280. Today
Diagnosed 11-9-21. PSA 1998, ALK PHOS 750, Gleason 4+5. Lots of mets mostly bone. 11-17-21 started treatment. 3 month Lupron injection followed 2 days later with 4 month Zometa and 1st of 6 cycles of docetaxel. At 2nd chemo PSA 301, ALK P 1730. At completion of chemo 4-8-22 PSA 2.45, ALK P 280. Today
Letsfish
in
Advanced Prostate Cancer
2 years ago
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