Search
Search
About
Log in
Join
Experiences with
Nuprin
Posts
Communities
4,099 public posts
Filter results
No Bone Metastisis
I just completed the PSMA 68 scan that showed no more bone metastis. I'm being treated at UCSF. My doc said I have a choice of going off my meds of Erleada and Lupron. My concern is if I elect this option and the cancer reappears have I created a worse problem where restarting the meds may no longer
I just completed the PSMA 68 scan that showed no more bone metastis. I'm being treated at UCSF. My doc said I have a choice of going off my meds of Erleada and Lupron. My concern is if I elect this option and the cancer reappears have I created a worse problem where restarting the meds may no longer
Ldtyson
in
Advanced Prostate Cancer
2 years ago
Michael T Schweizer & BAT [Bipolar Androgen Therapy
I was looking at BAT-related studies involving Dr. Schweizer. The first was as lead author for Denmeade (2015). Most BAT research has been performed on men with CRPC [Castrate-Resistant Prostate Cancer]. The U.S. statistics for 2022 were 268,490 new cases, with 34,500 deaths. The deaths being largely
I was looking at BAT-related studies involving Dr. Schweizer. The first was as lead author for Denmeade (2015). Most BAT research has been performed on men with CRPC [Castrate-Resistant Prostate Cancer]. The U.S. statistics for 2022 were 268,490 new cases, with 34,500 deaths. The deaths being largely
pca2004
in
Fight Prostate Cancer
2 years ago
Brittle Bones
62 y/o aPC with Mets. I’ve been on the Lupron, Abiraterone, and Prednisone treatment for about 7 months. I just broke a rib leaning on a chair. Do these drugs cause your bones to become easier to break? Luckily I get an MRI and the PSMA PET Scan tomorrow. Should be interesting to see I hope. Thoughts
62 y/o aPC with Mets. I’ve been on the Lupron, Abiraterone, and Prednisone treatment for about 7 months. I just broke a rib leaning on a chair. Do these drugs cause your bones to become easier to break? Luckily I get an MRI and the PSMA PET Scan tomorrow. Should be interesting to see I hope. Thoughts
OFPF16
in
Advanced Prostate Cancer
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Should I worry about testosterone increase?
My father has been on Lupron for about a year. My father, who had oligometastatic prostate cancer, underwent robotic surgery in September. Before surgery,
PSA was 0.0311 and total testosterone was <0.025.
Two months after the surgery,
PSA was undetectable b
ut total
testosterone was 0.0707
My father has been on Lupron for about a year. My father, who had oligometastatic prostate cancer, underwent robotic surgery in September. Before surgery,
PSA was 0.0311 and total testosterone was <0.025.
Two months after the surgery,
PSA was undetectable b
ut total
testosterone was 0.0707
Alicee92
in
Advanced Prostate Cancer
2 years ago
Substitute Eplerenone for Prednisone with Zytiga?
I am taking Eligard + Zytiga + Prednisone (5mg). I would like to stop the prednisone and substitute eplerenone (Inspra), if that is viable. I found this exchange from earlier this year from Gearhead, with comments from Tango65 and T_A, among others. Has anyone stopped prednisone altogether in
I am taking Eligard + Zytiga + Prednisone (5mg). I would like to stop the prednisone and substitute eplerenone (Inspra), if that is viable. I found this exchange from earlier this year from Gearhead, with comments from Tango65 and T_A, among others. Has anyone stopped prednisone altogether in
garyjp9
in
Advanced Prostate Cancer
2 years ago
Radiation a second time? Recurrent PC
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
wat380bjw
in
Advanced Prostate Cancer
2 years ago
How long will "4 month" lupron injection "last"
I received a 4 month lupron injection on 8/15/22 with salvage radiation to prostate bed and pelvic lymph nodes. (see profile for more details) My question is how long will the lupron keep my testosterone at castrate levels (<50 ng). Note my pre lupron injection testosterone level was 906 on 7/22/22
I received a 4 month lupron injection on 8/15/22 with salvage radiation to prostate bed and pelvic lymph nodes. (see profile for more details) My question is how long will the lupron keep my testosterone at castrate levels (<50 ng). Note my pre lupron injection testosterone level was 906 on 7/22/22
FlyJ
in
Advanced Prostate Cancer
2 years ago
Vacation
Jim's doctors are going to talk to him about a treatment vacation. Is this from Lupron & Abiraterone, or just one of them? He's been <0.04 for over a year and ultra sensitive shows <0.02. He's very hesitant to stop something that's working. A vacation would be nice, but I'm with him. We are going
Jim's doctors are going to talk to him about a treatment vacation. Is this from Lupron & Abiraterone, or just one of them? He's been <0.04 for over a year and ultra sensitive shows <0.02. He's very hesitant to stop something that's working. A vacation would be nice, but I'm with him. We are going
JWPMP
in
Advanced Prostate Cancer
2 years ago
No SOC treatment. Metastatic lymph nodes by PSMA-PET. Rising PSA. Bone/CT scans neg. Waiting to die.
The title may seem over-dramatic. It does, however, present the present state of my PCa. I have written more than once about being Lupron ADT sensitive but stopped after first shot due to severe intolerable increase in depression. I am not eligible (SOC) for other therapies because they all require
The title may seem over-dramatic. It does, however, present the present state of my PCa. I have written more than once about being Lupron ADT sensitive but stopped after first shot due to severe intolerable increase in depression. I am not eligible (SOC) for other therapies because they all require
maggiedrum
in
Advanced Prostate Cancer
2 years ago
Skin rash / Lupron
In the last weeks I experience skin rash with itching. It started in body areas where I sweat while exercising and now is more or less all over. I read that rash is a SE of Lupron. Who else is/was experiencing this and what are potential detours? Any ideas?
In the last weeks I experience skin rash with itching. It started in body areas where I sweat while exercising and now is more or less all over. I read that rash is a SE of Lupron. Who else is/was experiencing this and what are potential detours? Any ideas?
Nusch
in
Advanced Prostate Cancer
2 years ago
End of treatment and worried
Good morning . I have been a member since 2020 , but I read more than I write. However, I would like some feedback on my situation. First a review: I had requested a PSA test from my GP for several years. His response after a non remarkable DRE was that PSA tests were useful if he felt any abnormalities
Good morning . I have been a member since 2020 , but I read more than I write. However, I would like some feedback on my situation. First a review: I had requested a PSA test from my GP for several years. His response after a non remarkable DRE was that PSA tests were useful if he felt any abnormalities
Guitarwolf
in
Advanced Prostate Cancer
2 years ago
question about Mets
hi everyone- I wrote in here a few days ago regarding my father with his Er+ PR+ MBC that he was diagnosed with in June of this year. He has been on letrozole lupron Ibrance and xjeva since June. His first PET scan 9/14 showed no evidence of active disease. my father is very active living in Florida
hi everyone- I wrote in here a few days ago regarding my father with his Er+ PR+ MBC that he was diagnosed with in June of this year. He has been on letrozole lupron Ibrance and xjeva since June. His first PET scan 9/14 showed no evidence of active disease. my father is very active living in Florida
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
Zytiga failure after 4 years what now
Hi Diagnosed in 2016 had SBRT . Life good 2 years and found 1 met in lung . Did Lupron/zytiga PSA drop to under .1 for 2 years. Requested a vacation . 15 months later PSA rises do PSMA . One met on vertibrae only . Did SBRT and doc said let’s do lung met at the same time even though it’s not showing
Hi Diagnosed in 2016 had SBRT . Life good 2 years and found 1 met in lung . Did Lupron/zytiga PSA drop to under .1 for 2 years. Requested a vacation . 15 months later PSA rises do PSMA . One met on vertibrae only . Did SBRT and doc said let’s do lung met at the same time even though it’s not showing
Db999
in
Advanced Prostate Cancer
2 years ago
Docetaxel/Taxotere. 2nd time in 3 years. It's a no go this time. No benefit after 3 infusions.
A cancer work around making a good treatment plan not workable. Good news is although PSA kept rising during infusions scans show no new growth but no shrinkage either. Same old diffuse bone mets I have always had. Current PSA at 80. Brief history PSA 11/2019--1,621. Bone mets diffuse from skull
A cancer work around making a good treatment plan not workable. Good news is although PSA kept rising during infusions scans show no new growth but no shrinkage either. Same old diffuse bone mets I have always had. Current PSA at 80. Brief history PSA 11/2019--1,621. Bone mets diffuse from skull
CAMPSOUPS
in
Advanced Prostate Cancer
2 years ago
Orgovyx Side Effects Query
In the past, Lupron SE seemed to start with hot flashes at about 4-6 weeks. I know Orgovyx drives the T down MUCH faster. Can I assume that the SE will also arise much faster? (Just started on it) Mel
In the past, Lupron SE seemed to start with hot flashes at about 4-6 weeks. I know Orgovyx drives the T down MUCH faster. Can I assume that the SE will also arise much faster? (Just started on it) Mel
compiler
in
Advanced Prostate Cancer
2 years ago
Does Casodex impact the results from PSMA PET Scan ?
Does Casodex impact the results from PSMA PET Scan ? My uncle who just got diagnosed gleason 9 was told by urologist to start casodex and then would do lupron shot in 1 month. The radiation oncologist the next week told him to stop taking Casodex and he had to wait 1 month for the casodex to "get
Does Casodex impact the results from PSMA PET Scan ? My uncle who just got diagnosed gleason 9 was told by urologist to start casodex and then would do lupron shot in 1 month. The radiation oncologist the next week told him to stop taking Casodex and he had to wait 1 month for the casodex to "get
sportsguyredsox
in
Advanced Prostate Cancer
2 years ago
ADT relief
I exercise often but still wrestle with muscle and joint aches and pains. On a 1 - 10 scale the aches and pains have been magnified 3 - 6X of what they were pre-Lupron. It seems like my low back aches have been consistent 2x-plus since the Lupron Any suggestions on ache and pain relief from adt? Does
I exercise often but still wrestle with muscle and joint aches and pains. On a 1 - 10 scale the aches and pains have been magnified 3 - 6X of what they were pre-Lupron. It seems like my low back aches have been consistent 2x-plus since the Lupron Any suggestions on ache and pain relief from adt? Does
Cyclingrealtor
in
Advanced Prostate Cancer
2 years ago
General Question
good afternoon everyone! I’ve written in here many times- just a recap my father was diagnosed with MBC in June of 2022 with Mets to the bone- he is currently on Ibrance, letrozole, xjeva, and lupron. He is a 64 year old and is super active playing 2-3 sports per day. His first pet scan after starting
good afternoon everyone! I’ve written in here many times- just a recap my father was diagnosed with MBC in June of 2022 with Mets to the bone- he is currently on Ibrance, letrozole, xjeva, and lupron. He is a 64 year old and is super active playing 2-3 sports per day. His first pet scan after starting
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
waiting but anxious
had prostatectomy on 9/22. They found cancer is the biopsy’s taken of a lymph node and other tissue taken out. Took a 6 month shot of lupron. Discontinued lupron. Too many side affects. I have not had a detectable psa score since surgery. Contrary to the advice to have radiation targeted to the area
had prostatectomy on 9/22. They found cancer is the biopsy’s taken of a lymph node and other tissue taken out. Took a 6 month shot of lupron. Discontinued lupron. Too many side affects. I have not had a detectable psa score since surgery. Contrary to the advice to have radiation targeted to the area
thansen535
in
Advanced Prostate Cancer
2 years ago
Hair loss
Happy holidays all! Age 45, Lupron and Xtandi for 5 months now. SE? Outer leg hair disappearing and facial hair much slower on the grow. Anyone else? Thanks. Crispy
Happy holidays all! Age 45, Lupron and Xtandi for 5 months now. SE? Outer leg hair disappearing and facial hair much slower on the grow. Anyone else? Thanks. Crispy
Mecrispy77
in
Advanced Prostate Cancer
2 years ago
1
...
45
46
47
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3451 results
Prostate Cancer Network
187 results
Endometriosis UK
110 results
View top 10 communities
Sort by
Most Relevant
Newest