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Q & A with my husband's MO
I'm posting this in case someone finds it helpful. The scans show visceral as well as bone mets. That plus a steep rise in his PSA and the start of chemo really soon have us in a sober state of mind. Continuing to lean on Jesus for strength. https://docs.google.com/document/d/1wXoa3LDjRUyZ4dE9wLJQAg32jRcEISF4v3KeSOT83gg
I'm posting this in case someone finds it helpful. The scans show visceral as well as bone mets. That plus a steep rise in his PSA and the start of chemo really soon have us in a sober state of mind. Continuing to lean on Jesus for strength. https://docs.google.com/document/d/1wXoa3LDjRUyZ4dE9wLJQAg32jRcEISF4v3KeSOT83gg
Tinuriel
in
Advanced Prostate Cancer
9 months ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
9 months ago
Clean PET/CT Scan - Why no treatment change?
I was diagnosed Stage 4 in 2019 and have been getting Lupron shots and taking Erleada ever since. My PSA went down to undetectable within about six months and has stayed there. I have very mild side effects (other than the loss of libido). I had bone scans in 2019 and 2020. The 2020 scan showed significant
I was diagnosed Stage 4 in 2019 and have been getting Lupron shots and taking Erleada ever since. My PSA went down to undetectable within about six months and has stayed there. I have very mild side effects (other than the loss of libido). I had bone scans in 2019 and 2020. The 2020 scan showed significant
NorYug
in
Advanced Prostate Cancer
9 months ago
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Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
9 months ago
Talzenna
Has anyone tried Talzenna ? My dad was just started and after 2 weeks his PSA spiked 47 points to 105. He’s been battling hard, Lynparza worked like a miracle for 7 months then had to decrease dose d/t low hemoglobin and low RBC, had to have transfusions twice. Then Lynparza stopped working after
Has anyone tried Talzenna ? My dad was just started and after 2 weeks his PSA spiked 47 points to 105. He’s been battling hard, Lynparza worked like a miracle for 7 months then had to decrease dose d/t low hemoglobin and low RBC, had to have transfusions twice. Then Lynparza stopped working after
Mikerest
in
Advanced Prostate Cancer
9 months ago
Breathless ,mucus
Hi its Alice I have been away from this comuity for a good while been dealing with rheaumatiod arthritis , polymyligia reaumatica ,and sciatica lick pain ,feel as though I've been in the wars ,what it is though since been on continual prednisalone (down to 11mgs now) and hydroxychloroquine given for
Hi its Alice I have been away from this comuity for a good while been dealing with rheaumatiod arthritis , polymyligia reaumatica ,and sciatica lick pain ,feel as though I've been in the wars ,what it is though since been on continual prednisalone (down to 11mgs now) and hydroxychloroquine given for
Alice70
in
Lung Conditions Community Forum
1 year ago
Tips on testing
Hi, I have a GP appointment next Monday to request that I be tested for arthritis. Can I please get an outline of the most comprehensive tests that I can hope to get from the GP? Also, thinking ahead to the blood draw, is there a particular protocol that I should follow? Many thanks 🙏
Hi, I have a GP appointment next Monday to request that I be tested for arthritis. Can I please get an outline of the most comprehensive tests that I can hope to get from the GP? Also, thinking ahead to the blood draw, is there a particular protocol that I should follow? Many thanks 🙏
J972
in
NRAS
1 year ago
Information overload and now decision time!
Okay, so I am at that stage of making a decision. Mind you I am about to embark on a 10 week overseas 45th anniversary trip. Dr says that should be fine. So whatever decision i come up with now could change by late November. So then a month ago, I had 42 biopsy samples taken and 8 of them were found
Okay, so I am at that stage of making a decision. Mind you I am about to embark on a 10 week overseas 45th anniversary trip. Dr says that should be fine. So whatever decision i come up with now could change by late November. So then a month ago, I had 42 biopsy samples taken and 8 of them were found
Mike58
in
Prostate Cancer Network
9 months ago
Prednisolone and osteoarthritis
As I posted recently, after more than a year of taking 2.5 mg of pred daily, at long last I had an appointment with a rheumatologist who advised me to reduce to 2 mg and then by 0.5 mg reductions at intervals to get down to zero pretty quickly. I'd experienced before that when I reduced my pred dose
As I posted recently, after more than a year of taking 2.5 mg of pred daily, at long last I had an appointment with a rheumatologist who advised me to reduce to 2 mg and then by 0.5 mg reductions at intervals to get down to zero pretty quickly. I'd experienced before that when I reduced my pred dose
Marijo1951
in
PMRGCAuk
1 year ago
Lupron injection with xtandi
Orgovyx stop working, PSA INCREASING. Just talked to my doc. He wants to stop orgovyx and start me on lupron injections once a month with xtandi. Anyone ever been on this combination. If so what are the side effects andnhow is it working for you?
Orgovyx stop working, PSA INCREASING. Just talked to my doc. He wants to stop orgovyx and start me on lupron injections once a month with xtandi. Anyone ever been on this combination. If so what are the side effects andnhow is it working for you?
woppaginny
in
Advanced Prostate Cancer
9 months ago
Orgovyx stopped woking.
Started orgovyx 2 months ago. PSA went from 35 to 5 in first month. Second month, PSA went from 5 to 8. This month PSA is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he
Started orgovyx 2 months ago. PSA went from 35 to 5 in first month. Second month, PSA went from 5 to 8. This month PSA is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he
woppaginny
in
Advanced Prostate Cancer
9 months ago
12-year post surgery PSA
Hi All, Hard to believe that it’s been 12 years since my prostatectomy. So many health issues since then that PCa has moved down my list of worries. My PSA for the prior 2 years was .008. This year’s result just back and it’s ticked up to .009. I don’t think it’s anything to worry about, but of
Hi All, Hard to believe that it’s been 12 years since my prostatectomy. So many health issues since then that PCa has moved down my list of worries. My PSA for the prior 2 years was .008. This year’s result just back and it’s ticked up to .009. I don’t think it’s anything to worry about, but of
jeff1257
in
Prostate Cancer Network
9 months ago
Switching from Abi to Enza?
Hi everyone, my father has been taking Abiraterone since 2.5 years now (along with prednisolone 5mg). It has nicely brought down his PSA from 500 to less than 1 and kept it steadily less than 1 since the past one year. He, of course, takes Lupron alongside. However, Abiraterone has resulted in some side
Hi everyone, my father has been taking Abiraterone since 2.5 years now (along with prednisolone 5mg). It has nicely brought down his PSA from 500 to less than 1 and kept it steadily less than 1 since the past one year. He, of course, takes Lupron alongside. However, Abiraterone has resulted in some side
Rodeoz15
in
Advanced Prostate Cancer
9 months ago
Anyone w Xofigo experience?
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
JDN0415
in
Advanced Prostate Cancer
9 months ago
Update on 8/4 post from alperk
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated, 35 grays in 5 fractions. PSA crept back up to 4.2 on 9/6 and scan showed again only one active site in nearly the same location
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated, 35 grays in 5 fractions. PSA crept back up to 4.2 on 9/6 and scan showed again only one active site in nearly the same location
alperk
in
Advanced Prostate Cancer
9 months ago
Has Anyone had a CGA CHROMOGRANIN A, EIA Test ? It’s tumor marker test.
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
After APCa treatment ends
A lot of folks will see their APCa treatment come to an end, hopefully due to good PSA levels and scans. But the end of treatment is the beginning of living with no net under you, with periodic checkups and scans, with emotional stress especially since LT SE's may continue, change or crop-up, and last
A lot of folks will see their APCa treatment come to an end, hopefully due to good PSA levels and scans. But the end of treatment is the beginning of living with no net under you, with periodic checkups and scans, with emotional stress especially since LT SE's may continue, change or crop-up, and last
Derf4223
in
Advanced Prostate Cancer
9 months ago
Now my cancer is now under control, my wife no longer wants to be with me.
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
Doseydoe
in
Advanced Prostate Cancer
9 months ago
Battling!
Looking for some guidance. This group has been really helpful in shedding some light on my health issues. My story - 3 years ago was diagnosed with breast cancer right in the middle of the pandemic. 8 rounds of chemo (got Covid in round 4), surgery and lastly radiotherapy taking me to May 2021. Got
Looking for some guidance. This group has been really helpful in shedding some light on my health issues. My story - 3 years ago was diagnosed with breast cancer right in the middle of the pandemic. 8 rounds of chemo (got Covid in round 4), surgery and lastly radiotherapy taking me to May 2021. Got
Tiffin76
in
Thyroid UK
9 months ago
radiation whack-a-mole?
My stage IV prostate cancer has gone castrate resistant ... I've been taking androgen blockers (Eligard injections 90 days plus daily 1gm of abiraterone) for five years. The primary treatment in summer 2018 was external beam radiation. In 2021 I had cyberknife radiation to new lesions in spinal vertebrae
My stage IV prostate cancer has gone castrate resistant ... I've been taking androgen blockers (Eligard injections 90 days plus daily 1gm of abiraterone) for five years. The primary treatment in summer 2018 was external beam radiation. In 2021 I had cyberknife radiation to new lesions in spinal vertebrae
Johnkelsey
in
Advanced Prostate Cancer
9 months ago
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