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Experiences with
Non-specific urethritis
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bladder stones
When my urologist did my biopsy he also removed bladder stones by breaking them in pieces and retrieving them thru my supra pubic catheter portal. Unfortunately all of them could not be be retrieved and they moved down my urethra to the point where the enlarged prostate pinched off urine flow. They
When my urologist did my biopsy he also removed bladder stones by breaking them in pieces and retrieving them thru my supra pubic catheter portal. Unfortunately all of them could not be be retrieved and they moved down my urethra to the point where the enlarged prostate pinched off urine flow. They
agnut
in
Fight Prostate Cancer
9 months ago
Question for my father
I haven’t posted in a couple of years but have been following along daily with this forum’s wealth of information. I had my prostate removed 2 years ago at MSK and have recovered well with a still undetectable PSA. I’m writing for advice on my 91 yo father. He was recently found to have bone metastases
I haven’t posted in a couple of years but have been following along daily with this forum’s wealth of information. I had my prostate removed 2 years ago at MSK and have recovered well with a still undetectable PSA. I’m writing for advice on my 91 yo father. He was recently found to have bone metastases
SpecialName
in
Prostate Cancer Network
9 months ago
My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
9 months ago
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seronegative arthritis
Hi everyone I feel very sad that for 5 years have been on steroids and now it looks like I have seronegative arthritis with massively damaged knee and had op to tidy up cartilage and remove bone spur but still having trouble with pain swelling and my other knee too has started to hurt- o It could be
Hi everyone I feel very sad that for 5 years have been on steroids and now it looks like I have seronegative arthritis with massively damaged knee and had op to tidy up cartilage and remove bone spur but still having trouble with pain swelling and my other knee too has started to hurt- o It could be
bakingD
in
PMRGCAuk
1 year ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
9 months ago
Laser
Hi I have osteoarthritis in both ankles and hands , I wondered if anyone has tried laser treatment ? The current treatment is injections or fusion, injections worked until l had a UTI then flared so looking at trying laser but not sure it it really will help? Thanks in advance
Hi I have osteoarthritis in both ankles and hands , I wondered if anyone has tried laser treatment ? The current treatment is injections or fusion, injections worked until l had a UTI then flared so looking at trying laser but not sure it it really will help? Thanks in advance
Hidden
in
Cure Arthritis Community
1 year ago
PMR or psoriatic arthritis
Hi everyone and thank you for the invaluable advice you have given over my journey of PMR After two years on pred I have only just managed to get down to 6.5mg continually using the DSNS method I saw my rheumy last week who believes I may not actually have PMR but psoriatic arthritis due to the fact
Hi everyone and thank you for the invaluable advice you have given over my journey of PMR After two years on pred I have only just managed to get down to 6.5mg continually using the DSNS method I saw my rheumy last week who believes I may not actually have PMR but psoriatic arthritis due to the fact
Storm-boy
in
PMRGCAuk
1 year ago
[b]HOW LONG TO GET YOUR TESTOSTERONE BACK TO NORMAL (4-500) AFTER 4 MOS Treatment WITH ORGOVYX. It is now 5 months post treatment with Orgovyx.[/b]
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
JWS13
in
Advanced Prostate Cancer
9 months ago
Single positive lymph node - experiences?
Hi, first post here. I had prostatectomy 2008, G3+4, ,pT2c, now updated to pT2cN1M0. Have postponed HT with rising PSA (now 8.9). Had SRT 2011 to prostate bed. Have had Axumin scan and then had 3rd PSMA PET scan recently (this month). All so far were negative until most recent, found single inguinal
Hi, first post here. I had prostatectomy 2008, G3+4, ,pT2c, now updated to pT2cN1M0. Have postponed HT with rising PSA (now 8.9). Had SRT 2011 to prostate bed. Have had Axumin scan and then had 3rd PSMA PET scan recently (this month). All so far were negative until most recent, found single inguinal
Jeff_Piano_Man
in
Advanced Prostate Cancer
9 months ago
Chemotherapy or Pluvicto
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
Islandboy2021
in
Advanced Prostate Cancer
9 months ago
Real Nervous about Genomic Resuits, What type of Physician do I go to in NY who Specializes in Mutations w/ Advanced Prostate Cancer?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 8/9 Stage 4 Grade 5 : 4+5=9 ypT3a Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones,
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 8/9 Stage 4 Grade 5 : 4+5=9 ypT3a Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones,
Shorehousejam
in
Fight Prostate Cancer
9 months ago
Doctor says husband's situation is rare
October 2022 my husband discovered a lump near his ear which turned out to be a tumor in his parotid gland. Grew very quickly in the 2 months before it was removed in December 2022. Biopsy proved it to be adenocarcinoma. Doctors said it was rare to find this type in the parotid gland. He had radiation
October 2022 my husband discovered a lump near his ear which turned out to be a tumor in his parotid gland. Grew very quickly in the 2 months before it was removed in December 2022. Biopsy proved it to be adenocarcinoma. Doctors said it was rare to find this type in the parotid gland. He had radiation
Hidden
in
Advanced Prostate Cancer
9 months ago
I’m nervous about my Genomic Results plus anyone want to share their experience?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Shorehousejam
in
Advanced Prostate Cancer
10 months ago
Osteoarthritis / Bone Edema / Injections / Hip Replacement
HI, I'm 45, I have been managing Osteoarthritis / Hip Bone Edema for 2.5 years. Pain has increased steadily over the past few months and I now can't walk more than 1mile / 6,000 steps a day without having to rest for 3/4 days after, another complication is if I do push it and do too much over a few
HI, I'm 45, I have been managing Osteoarthritis / Hip Bone Edema for 2.5 years. Pain has increased steadily over the past few months and I now can't walk more than 1mile / 6,000 steps a day without having to rest for 3/4 days after, another complication is if I do push it and do too much over a few
kjm_25
in
Pain Concern
1 year ago
Might blood be good news?
I'm now getting ready for my 3rd Docetaxel infusion. My symptoms and side effects have been very mild. Before chemo started, I was getting pains in the rectal wall, sharp bladder discomfort and pain on urination - along with blood in the urine. As of today, I'm waiting for definitive results from
I'm now getting ready for my 3rd Docetaxel infusion. My symptoms and side effects have been very mild. Before chemo started, I was getting pains in the rectal wall, sharp bladder discomfort and pain on urination - along with blood in the urine. As of today, I'm waiting for definitive results from
CrocodileShoes
in
Advanced Prostate Cancer
10 months ago
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
10 months ago
Scared looking for some advice
I found out ten months ago that I had a PSA of 6.4. It rose to 9.7 and recently has subsided to 8.3. I did a MRI and they said I PI-RADS 4 with a lesion in my transition zone. Seminal vesticles and Neuromuscular bundes are symmetric. However one of my lymph nodes is boderline enlarged at 1.0cm short
I found out ten months ago that I had a PSA of 6.4. It rose to 9.7 and recently has subsided to 8.3. I did a MRI and they said I PI-RADS 4 with a lesion in my transition zone. Seminal vesticles and Neuromuscular bundes are symmetric. However one of my lymph nodes is boderline enlarged at 1.0cm short
RocketTest60
in
Advanced Prostate Cancer
10 months ago
Sex before psa test
Forgot to refrain and had sex 36 hrs before my psa test. Results have increased from 4.2 to 4.8, could sex cause this increase
Forgot to refrain and had sex 36 hrs before my psa test. Results have increased from 4.2 to 4.8, could sex cause this increase
pd63
in
Prostate Cancer Network
10 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
10 months ago
Trying to get to retirement before HT
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
CJ1958
in
Prostate Cancer Network
10 months ago
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