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Non-specific urethritis
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Intense jaw pain (pt.2)
Three months ago my husband developed intense right jaw pain. After multiple scans showing "something" (thankfully no PSMA activity) he had a surgical bone biopsy 11/29. Two days ago we received the pathology report but have not been able to speak with the Dr. to help us understand it. The good news
Three months ago my husband developed intense right jaw pain. After multiple scans showing "something" (thankfully no PSMA activity) he had a surgical bone biopsy 11/29. Two days ago we received the pathology report but have not been able to speak with the Dr. to help us understand it. The good news
Decktime
in
Advanced Prostate Cancer
7 months ago
3,100 PSA!
After two (2) Pluvicto infusions, my PSA went from 2,000. to 3,000. I haven't had any hormone treatments for approximately six months, and was subsequently told my Dr. should have kept me on Standard of Care (SoC) right through Pluvicto. Q1: Anyone out there know of any options open to me in this
After two (2) Pluvicto infusions, my PSA went from 2,000. to 3,000. I haven't had any hormone treatments for approximately six months, and was subsequently told my Dr. should have kept me on Standard of Care (SoC) right through Pluvicto. Q1: Anyone out there know of any options open to me in this
fsiefert
in
Advanced Prostate Cancer
7 months ago
Testosterone issue.
I had a follow up visit with my PCP last month. Of course he knows about my advanced PC. He ordered a round of lab blood exams, as always. About a week later, I got a call from his office to tell me PCP is is concerned about low testosterone count<50 and wants to repeat lab exam, they told me come early
I had a follow up visit with my PCP last month. Of course he knows about my advanced PC. He ordered a round of lab blood exams, as always. About a week later, I got a call from his office to tell me PCP is is concerned about low testosterone count<50 and wants to repeat lab exam, they told me come early
Blueribbon63
in
Advanced Prostate Cancer
7 months ago
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New Here. Overwhelmed.
48 yrs old. PSA Blood test from a physical came back with a reading of 100. Biopsy results came back with 2 Gleason 4+4's and the rest 4+3's earlier this week. Appointment with urologist Monday to discuss these results. I'm feeling overwhelmed and scared. What is the next step for me? Also does anyone
48 yrs old. PSA Blood test from a physical came back with a reading of 100. Biopsy results came back with 2 Gleason 4+4's and the rest 4+3's earlier this week. Appointment with urologist Monday to discuss these results. I'm feeling overwhelmed and scared. What is the next step for me? Also does anyone
hiker75
in
Advanced Prostate Cancer
7 months ago
PSA of <0.1 undetectable?
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
pj1121
in
Advanced Prostate Cancer
7 months ago
steroid injection
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
bakingD
in
NRAS
1 year ago
PSA results After 5Cycles of pBAT
Everything looking good after 5 cycles of propionate BAT. Refresher: HSPC, did1 year ADT Lupron-->Orgovyx + Darolutamide before embarking on pBAT. Is this chart readable
Everything looking good after 5 cycles of propionate BAT. Refresher: HSPC, did1 year ADT Lupron-->Orgovyx + Darolutamide before embarking on pBAT. Is this chart readable
KocoPr
in
Fight Prostate Cancer
7 months ago
PSA Bounce 3 months after Cyberknife
I had an initial PSA score of 9. in March. went PSMA at end of June was clean 3+4 Clean PSMA on June 30 Went through Cyberknife finished 9/16. First PSA is 11.9. I never had another PSA after initial, so I don’t know PSA going in. MO said an initial bump was possible , but hopefully my results
I had an initial PSA score of 9. in March. went PSMA at end of June was clean 3+4 Clean PSMA on June 30 Went through Cyberknife finished 9/16. First PSA is 11.9. I never had another PSA after initial, so I don’t know PSA going in. MO said an initial bump was possible , but hopefully my results
Chasbearcat999
in
Prostate Cancer Network
7 months ago
Can i take vacation when already 5 years PSA < 0.01
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Vasili
in
Advanced Prostate Cancer
7 months ago
Chemo for an 86-year-old with stage 4 PC.
Started all this at 86, stage 4. 3 months on Orgovyx brought PSA from 72 to 1.8; next week I'm adding Zytiga, and if that helps and I can deal with this drug I'm going to press the MO to start me on Chemo. Do you think I'm setting myself up way too much?
Started all this at 86, stage 4. 3 months on Orgovyx brought PSA from 72 to 1.8; next week I'm adding Zytiga, and if that helps and I can deal with this drug I'm going to press the MO to start me on Chemo. Do you think I'm setting myself up way too much?
Poollover
in
Advanced Prostate Cancer
7 months ago
PMR 15 Years On
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Pred5
in
PMRGCAuk
1 year ago
Moved from Abi to Nubeqa and saw a PSA increase
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
Steel67
in
Advanced Prostate Cancer
7 months ago
PSA rising after my 4th chemo
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
Maxone73
in
Advanced Prostate Cancer
7 months ago
Slowly Rising PSA - Getting Nervous
It seems in the last 4 months it has been rising more. Doctors are waiting until in gets to the standard 0.2 before starting radiation. I do understand why they need to wait as the PSA isn't high enough yet for the risk/reward of treatment. 03/17/2023 0.029 04/22/2023 0.032 08/23/2023 0.046 12/07/2023
It seems in the last 4 months it has been rising more. Doctors are waiting until in gets to the standard 0.2 before starting radiation. I do understand why they need to wait as the PSA isn't high enough yet for the risk/reward of treatment. 03/17/2023 0.029 04/22/2023 0.032 08/23/2023 0.046 12/07/2023
raisin123
in
Advanced Prostate Cancer
7 months ago
6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Vasili
in
Advanced Prostate Cancer
7 months ago
Enhancing my urinating experience?
Guys, Several weeks ago I started experiencing slow and weak urine stream for first time since diagnosis almost 6 years ago. This, coupled with rise in PSA, triggered my oncologist to order both MRI and PSMA scan. Would appear things are progressing and got referrals to radiation oncologist and urologist
Guys, Several weeks ago I started experiencing slow and weak urine stream for first time since diagnosis almost 6 years ago. This, coupled with rise in PSA, triggered my oncologist to order both MRI and PSMA scan. Would appear things are progressing and got referrals to radiation oncologist and urologist
3putt
in
Advanced Prostate Cancer
7 months ago
When to do certain blood tests and why.
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Mgtd
in
Advanced Prostate Cancer
7 months ago
painful lower thumb
the lower thumb next to my forefinger is stiff and v painful, I am wearing an arthritis glove, is this appropriate pls? never had this problem in 5 years of R A am on MXT 20mgm weekly
the lower thumb next to my forefinger is stiff and v painful, I am wearing an arthritis glove, is this appropriate pls? never had this problem in 5 years of R A am on MXT 20mgm weekly
QAGS
in
NRAS
1 year ago
PSA slightly rose after 8 months undetectable
I am 57 and on ADT (Firmagon+Zytiga+Prednisone) after surgery in 2022 and 39 sessions of RT in 2023 (Jan Feb). Till now I has been undetectable but at November my bloodwork showed PSA risen to 0.04. Should I be concerned or could it be just random fluctuation? Thanks for your reactions.
I am 57 and on ADT (Firmagon+Zytiga+Prednisone) after surgery in 2022 and 39 sessions of RT in 2023 (Jan Feb). Till now I has been undetectable but at November my bloodwork showed PSA risen to 0.04. Should I be concerned or could it be just random fluctuation? Thanks for your reactions.
noasim
in
Advanced Prostate Cancer
7 months ago
0.04 PSA
Well after over a year of undetected my PSA has risen to 0.04. I will meet with oncology in a few weeks to discuss next steps. Perhaps a scan.
Well after over a year of undetected my PSA has risen to 0.04. I will meet with oncology in a few weeks to discuss next steps. Perhaps a scan.
Howard53545
in
Advanced Prostate Cancer
7 months ago
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