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Total Knee Replacement tips with RA
Hi I am wondering if I can get any tips or recovery advice from members with Rheumatoid Arthritis that have had total knee replacements. I have an upcoming knee replacement in November. I will have to stop my Humira I think, so any words of wisdom would be greatly appreciated. I know that I will be
Hi I am wondering if I can get any tips or recovery advice from members with Rheumatoid Arthritis that have had total knee replacements. I have an upcoming knee replacement in November. I will have to stop my Humira I think, so any words of wisdom would be greatly appreciated. I know that I will be
lala1958
in
NRAS
10 months ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
3 months ago
ADT effectiveness duration for 80 plus age ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
Tinkudi
in
Advanced Prostate Cancer
3 months ago
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Consult urologist or medical oncologist ?
My dad , 83 , was detected with prostate cancer with mets to bones and psa 18. Is it better to take treatment through a medical oncologist or a urologist ?
My dad , 83 , was detected with prostate cancer with mets to bones and psa 18. Is it better to take treatment through a medical oncologist or a urologist ?
Tinkudi
in
Advanced Prostate Cancer
3 months ago
PSA Testing Scandal Repost
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
JohnInTheMiddle
in
Advanced Prostate Cancer
3 months ago
Looking for medical oncologist at Memorial Sloan Kettering.
I was diagnosed one year ago with two very small tumors, one on each lobe. Gleason 6, grade group one. Less than 5% involvement in each tumor. Decipher of 0.28, which suggests low aggressiveness. PSA has remained 0.7 for a many years. Although I think Fox Chase Cancer center in Philadelphia is a fine
I was diagnosed one year ago with two very small tumors, one on each lobe. Gleason 6, grade group one. Less than 5% involvement in each tumor. Decipher of 0.28, which suggests low aggressiveness. PSA has remained 0.7 for a many years. Although I think Fox Chase Cancer center in Philadelphia is a fine
bubularich
in
Prostate Cancer Network
3 months ago
PCa doctors in Phoenix area?
My friend has PSA of 9.3. Last PSA was in mid 1's. Lives in Phoenix area. Was treated for frequent urination with Flomax in the past,, but hasn't been on it for a long time. Any recommendations for doctor for initial consultation? Thanks
My friend has PSA of 9.3. Last PSA was in mid 1's. Lives in Phoenix area. Was treated for frequent urination with Flomax in the past,, but hasn't been on it for a long time. Any recommendations for doctor for initial consultation? Thanks
Piano777
in
Prostate Cancer Network
3 months ago
new drugs
I was on Eligard and Zytiga plus prednisone for about 4 years with tolerable side effects. Mostly medium fatigue. Got my PSA down to undetectable and my Mets invisible in scans after 4 years. I took a two-year break. Wonderful to be clear of the side effects and infusion. Testosterone and PSA gradually
I was on Eligard and Zytiga plus prednisone for about 4 years with tolerable side effects. Mostly medium fatigue. Got my PSA down to undetectable and my Mets invisible in scans after 4 years. I took a two-year break. Wonderful to be clear of the side effects and infusion. Testosterone and PSA gradually
EchoII
in
Advanced Prostate Cancer
3 months ago
Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
3 months ago
My Scan Story
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
wharr
in
Prostate Cancer Network
3 months ago
Disappointed
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
JolleySprings
in
Advanced Prostate Cancer
3 months ago
Mikemike
Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on
Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on
Poppy1952
in
Advanced Prostate Cancer
3 months ago
Disgusted with Healthcare
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
Vangogh1961
in
Advanced Prostate Cancer
3 months ago
PSA is back
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
LBbeachbum
in
Prostate Cancer Network
3 months ago
Oncologist visit today
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
ppulatie
in
Advanced Prostate Cancer
3 months ago
Two week post SBRT update
Hello All, I completed my 5 SBRT sessions on 5/1/2024. My results have been very similar to ToolBeltZia so I have not posted repetitive daily entries. Here are some items that may be of interest. 1) Very similar issues with constipation as ToolBeltZia had following SBRT. That is just now improving
Hello All, I completed my 5 SBRT sessions on 5/1/2024. My results have been very similar to ToolBeltZia so I have not posted repetitive daily entries. Here are some items that may be of interest. 1) Very similar issues with constipation as ToolBeltZia had following SBRT. That is just now improving
Info_Search_JMA
in
Prostate Cancer Network
3 months ago
Stopping Orgovyx after six months
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
gsun
in
Advanced Prostate Cancer
3 months ago
Jevtana
Once again I am asking for any information that can be provided from this great group. Would appreciate any information for Jevtana treatment. At doctor's appt yesterday, my husband's hemoglobin had decreased to 7.6 and he had to have a blood transfusion. His Alkaline Phosphatase went up again. He
Once again I am asking for any information that can be provided from this great group. Would appreciate any information for Jevtana treatment. At doctor's appt yesterday, my husband's hemoglobin had decreased to 7.6 and he had to have a blood transfusion. His Alkaline Phosphatase went up again. He
MsHope
in
Advanced Prostate Cancer
3 months ago
Small psa rise
RP in 2021 followed by recurrence 12 months later. 37 x RT and 18 months of zolodex which the last 3 month injection was April 2023. PSA less 0.01 consistently until last week 0.03. Do I need to wait until PSA is 2.0 or is there anything I can do before then?
RP in 2021 followed by recurrence 12 months later. 37 x RT and 18 months of zolodex which the last 3 month injection was April 2023. PSA less 0.01 consistently until last week 0.03. Do I need to wait until PSA is 2.0 or is there anything I can do before then?
Runner1957
in
Prostate Cancer Network
3 months ago
Dad,83 - is biopsy necessary ?
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
Tinkudi
in
Advanced Prostate Cancer
3 months ago
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