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Lung transplant advice
Could anyone share with me their experience of having a lung transplant and what life is like afterwards?
Could anyone share with me their experience of having a lung transplant and what life is like afterwards?
Catefacey
in
Lung Conditions Community Forum
6 years ago
A Special Day Today
Good Morning to All of you HU Family, My Friend Gaynor is Celebrating Two Years Today of her Double Lung Transplant. We both where in QE Birmingham having our Assessments For Transplant. Luckily for my friend she received her Transplant on this very Day after 6 weeks on The Transplant List. I keep
Good Morning to All of you HU Family, My Friend Gaynor is Celebrating Two Years Today of her Double Lung Transplant. We both where in QE Birmingham having our Assessments For Transplant. Luckily for my friend she received her Transplant on this very Day after 6 weeks on The Transplant List. I keep
Hacienda
in
Lung Conditions Community Forum
6 years ago
SD last CXR
57 years old female. Diagnosed S4 with brain secondaries Feb 18 treated with Gamma Knife and ceritinib. Pneumonia so now just going onto Pem maintenance. Initial partial response now SD. ROS 1
57 years old female. Diagnosed S4 with brain secondaries Feb 18 treated with Gamma Knife and ceritinib. Pneumonia so now just going onto Pem maintenance. Initial partial response now SD. ROS 1
Stouens
in
The Roy Castle Lung Cancer Foundation
6 years ago
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CBD oil.
I'm writing this post in a daze .I had the results of my lung biopsy on Friday and it showed I have lung cancer caused only by asbestos.I start Chemotherapy in three weeks .My family are obviously devastated my daughter has been able to get hold of some high grade CBD.oil and is insisting I should try
I'm writing this post in a daze .I had the results of my lung biopsy on Friday and it showed I have lung cancer caused only by asbestos.I start Chemotherapy in three weeks .My family are obviously devastated my daughter has been able to get hold of some high grade CBD.oil and is insisting I should try
bobknob51
in
Lung Conditions Community Forum
6 years ago
MPN RESEARCH FOUNDATION LAUNCHES STEM CELL TRANSPLANT TIMING TOOL FOR MPN PATIENTS WITH MF
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
Mazcd
MPNVoice
in
MPN Voice
6 years ago
GCA and clinical trials
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
golf26
in
PMRGCAuk
6 years ago
Getting there,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Topteam
in
Leukaemia Support
6 years ago
Aml.
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
Islay55
in
Leukaemia Support
6 years ago
GCA and people not understanding
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
christine2715
in
PMRGCAuk
6 years ago
New here with a big hello!
Hey there Health Unlocked. I joined on behalf of my Mom, who was recently diagnosed with lung cancer. My fiance and I researched until we were blue in the face and have decided to move forward with treatment with CBD and THC. I really hope this stuff lives up to the hype. There seems to be so much
Hey there Health Unlocked. I joined on behalf of my Mom, who was recently diagnosed with lung cancer. My fiance and I researched until we were blue in the face and have decided to move forward with treatment with CBD and THC. I really hope this stuff lives up to the hype. There seems to be so much
couchfly
in
Lung Cancer Support
6 years ago
Sickle Cell trait pain
I am a 26 year old female. I was told that I carried the sickle cell trait and I’m anemic. I am in so much pain to where my body hurts. I take iron and B12 faithfully but I can’t get answers from anyone. I’m always exhausted and I have so much pain in my joints. My stomach hurts like hell. Is sickle
I am a 26 year old female. I was told that I carried the sickle cell trait and I’m anemic. I am in so much pain to where my body hurts. I take iron and B12 faithfully but I can’t get answers from anyone. I’m always exhausted and I have so much pain in my joints. My stomach hurts like hell. Is sickle
MrsReese
in
Sickle Cell Society
6 years ago
New here - advice needed please!
Hi, is a positive gastric parietal cell antibody test plus ongoing anaemia enough for a diagnosis of pernicious anaemia, even if serum B12 is in range?
Hi, is a positive gastric parietal cell antibody test plus ongoing anaemia enough for a diagnosis of pernicious anaemia, even if serum B12 is in range?
barton444
in
Pernicious Anaemia Society
6 years ago
MY DEAR SISTER'S STRUGGLE IS OVER
To all my dear Free to Breathe friends, It is with a heavy heart that I must report that my sister, Marta, has passed away. It was a very hard struggle since the end of this last February and we are deeply saddened by our loss. Her metastasized lung cancer, unfortunately, was discovered way too late
To all my dear Free to Breathe friends, It is with a heavy heart that I must report that my sister, Marta, has passed away. It was a very hard struggle since the end of this last February and we are deeply saddened by our loss. Her metastasized lung cancer, unfortunately, was discovered way too late
2020CURE
in
Lung Cancer Support
6 years ago
Stem Cell Transplants
https://mpnforum.com/nicrev Hope this link works. Interesting interview about Stem Cell Transplant risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by
https://mpnforum.com/nicrev Hope this link works. Interesting interview about Stem Cell Transplant risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by
Paul123456
in
MPN Voice
6 years ago
Intrinsic Factor vs Parietal Cell Antibodies
If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the stomach are not under attack, only the intrinsic factor that those cells produce? And would that mean that the stomach might be still producing acid
If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the stomach are not under attack, only the intrinsic factor that those cells produce? And would that mean that the stomach might be still producing acid
topher2018
in
Pernicious Anaemia Society
6 years ago
Recurrence of lung cancer after 3.5 years
I’m just posting because I’m looking for others in the same / similar situation who can share their experiences with me. My situation is described below but in short I have stage T2bN1M0 diagnosis and recurrence of the tumour next to the original site; am wondering if others have decided not to have
I’m just posting because I’m looking for others in the same / similar situation who can share their experiences with me. My situation is described below but in short I have stage T2bN1M0 diagnosis and recurrence of the tumour next to the original site; am wondering if others have decided not to have
Hidden
in
Lung Cancer Support
6 years ago
And the good news is . . .
It took just 10 minutes final assessment yesterday for Keith (hospital rheumatologist) to tell me that Giant Cell Arteritis (GCA) is over and the lack of headaches during the final months suggests there will not be any flares. It took 18 months tapering to wipe off the slate. He predicted this, saying
It took just 10 minutes final assessment yesterday for Keith (hospital rheumatologist) to tell me that Giant Cell Arteritis (GCA) is over and the lack of headaches during the final months suggests there will not be any flares. It took 18 months tapering to wipe off the slate. He predicted this, saying
sondya
in
PMRGCAuk
6 years ago
Waking after neurotoxicity
My dad suffered from neurotoxicity, pneumonia, and a fungal infection after Stem Cell Transplant. He had a unexpected and terrible reaction to anti-rejection medications and has been in a coma/ICU for 6 weeks. He recently emerged from coma is very weak and is still not able to speak or utter any sound
My dad suffered from neurotoxicity, pneumonia, and a fungal infection after Stem Cell Transplant. He had a unexpected and terrible reaction to anti-rejection medications and has been in a coma/ICU for 6 weeks. He recently emerged from coma is very weak and is still not able to speak or utter any sound
skatergirl
in
ICUsteps
6 years ago
Getting Listed on the Lung Transplant List
After almost one and a half years of referrals, tests, minor operations and consultations with surgeons I can confirm that I have now been finally listed to go on the list for a Double Lung Transplant at Wythenshawe Hospital in Manchester, UK. A new chapter of hope begins. I would like to say a huge
After almost one and a half years of referrals, tests, minor operations and consultations with surgeons I can confirm that I have now been finally listed to go on the list for a Double Lung Transplant at Wythenshawe Hospital in Manchester, UK. A new chapter of hope begins. I would like to say a huge
Joseph260268
in
Lung Conditions Community Forum
6 years ago
Interesting Question for the Psychiatrists and Geneticists Out There
I have always wanted to ask these two closely related questions; especially since my Psychiatrist told me that he had never heard of any situation even remotely close to mine and/or of any studies related at all to it. I am now a 54-year-old man with ADD. My symptoms are mainly "tactile" and "attention
I have always wanted to ask these two closely related questions; especially since my Psychiatrist told me that he had never heard of any situation even remotely close to mine and/or of any studies related at all to it. I am now a 54-year-old man with ADD. My symptoms are mainly "tactile" and "attention
strawbjt
in
CHADD's Adult ADHD Support
6 years ago
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