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Interested in being more involved in lung research?
University College London (UCL) has asked me to circulate details of an opportunity with their centre as they design and develop research at their cancer trials centre. They are looking to set up a group of 2-3 consumer/patient representatives to be involved in lung trials and have set 2 requirements
University College London (UCL) has asked me to circulate details of an opportunity with their centre as they design and develop research at their cancer trials centre. They are looking to set up a group of 2-3 consumer/patient representatives to be involved in lung trials and have set 2 requirements
JanetteR57
in
The Roy Castle Lung Cancer Foundation
6 years ago
Lung Removed
Hi I’m Colin, And I was diagnosed with lung cancer on the 25/04/18. Following tests I had my entire left lung removed on 04/07/18 . As you can see it’s early days for me and I now await information on my next treatments. I believe I can expect chemo in about five weeks now. I have a lot of pain at the
Hi I’m Colin, And I was diagnosed with lung cancer on the 25/04/18. Following tests I had my entire left lung removed on 04/07/18 . As you can see it’s early days for me and I now await information on my next treatments. I believe I can expect chemo in about five weeks now. I have a lot of pain at the
Colin57
in
The Roy Castle Lung Cancer Foundation
6 years ago
Pip assessment after lung transplant
My wife received her lung transplant in January this year. She is doing really well . It is such a wonderful thing they do now and can’t thank the harefeild hospital enough for all they have done for her . This is the thing thou the dreaded pip. She has had her assessment at home and is waiting for the
My wife received her lung transplant in January this year. She is doing really well . It is such a wonderful thing they do now and can’t thank the harefeild hospital enough for all they have done for her . This is the thing thou the dreaded pip. She has had her assessment at home and is waiting for the
Rebelracer
in
Lung Conditions Community Forum
6 years ago
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"9 out of 10 doctors on our payroll, recommend this product!" ~ Big Pharma : (
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1 clinical trial for BAT1806, a proposed tocilizumab (Actemra) biosimilar. Just what the world needs another Valsartan disaster! https://www.centerforbiosimilars.com
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1 clinical trial for BAT1806, a proposed tocilizumab (Actemra) biosimilar. Just what the world needs another Valsartan disaster! https://www.centerforbiosimilars.com
Hidden
in
PMRGCAuk
6 years ago
IVF with donor eggs, previous stem cell transplant and early menopause
Hi ladies Im not sure if you will be able to give any advice but 14 years ago i had leukaemia and my treatment involved chemo and total body radiation for stem cell transplant. My periods stopped straight away and i went into early menopause at 20! I went to see a fertility clinic years ago as i was
Hi ladies Im not sure if you will be able to give any advice but 14 years ago i had leukaemia and my treatment involved chemo and total body radiation for stem cell transplant. My periods stopped straight away and i went into early menopause at 20! I went to see a fertility clinic years ago as i was
Caitlyn84
in
Fertility Network UK
6 years ago
Questions for our expert
We are starting to put together the next edition of our "Inspire" lung cancer magazine. If you have any questions for our expert, Simon Bolton, a lung cancer nurse specialist, please write them here so we can perhaps include them to be answered in the magazine. These can be anything to do with lung cancer
We are starting to put together the next edition of our "Inspire" lung cancer magazine. If you have any questions for our expert, Simon Bolton, a lung cancer nurse specialist, please write them here so we can perhaps include them to be answered in the magazine. These can be anything to do with lung cancer
Hidden
in
The Roy Castle Lung Cancer Foundation
6 years ago
Sickle Cell News - July-September 2018 Edition
Major Stories: 1. Trailblazing Myth-Breaker: Police Sergeant Winston Mmagu lives with sickle cell anaemia – how, how does he cope?! 2. Canada Celebrates 1st official Sickle Cell Day. 3. Genetics Professor Cyril Otoikhian throws damper on World Sickle Cell Day celebrations in Nigeria. Universally
Major Stories: 1. Trailblazing Myth-Breaker: Police Sergeant Winston Mmagu lives with sickle cell anaemia – how, how does he cope?! 2. Canada Celebrates 1st official Sickle Cell Day. 3. Genetics Professor Cyril Otoikhian throws damper on World Sickle Cell Day celebrations in Nigeria. Universally
sicklecellnews
in
Sickle Cell Society
6 years ago
Mesothelioma
I am 66 and after a number of tests which included a PET scan, I have recently been diagnosed with Mesothelioma. My Consultant believes the best way forward is for me to now undertake a mix of both surgery and chemotherapy. I would be interested to hear from any other members who suffer from this disease
I am 66 and after a number of tests which included a PET scan, I have recently been diagnosed with Mesothelioma. My Consultant believes the best way forward is for me to now undertake a mix of both surgery and chemotherapy. I would be interested to hear from any other members who suffer from this disease
Grahsking
in
The Roy Castle Lung Cancer Foundation
6 years ago
Community Guidelines
Welcome to the Lung Cancer Support Community for support of people affected by lung cancer! We’re very glad you have chosen to be a part of our community. The Lung Cancer Support community - offered by the Bonnie J. Addario Lung Cancer Foundation (ALCF) and HealthUnlocked (HU) - supports individuals
Welcome to the Lung Cancer Support Community for support of people affected by lung cancer! We’re very glad you have chosen to be a part of our community. The Lung Cancer Support community - offered by the Bonnie J. Addario Lung Cancer Foundation (ALCF) and HealthUnlocked (HU) - supports individuals
MaddieHU
HealthUnlocked
in
Lung Cancer Support
6 years ago
Dad having severe SOB after 1 Alimta maintenance infusion
Hi, if anyone has any insight to this I would appreciate it! My dad has SVC syndrome with the mass pressing a bit on his right ventricle of the heart and some narrowing of the bronchus. He has stage IV NSCLC (one mass in upper right lung with some plueral effusion spread as well as spread to both adrenals
Hi, if anyone has any insight to this I would appreciate it! My dad has SVC syndrome with the mass pressing a bit on his right ventricle of the heart and some narrowing of the bronchus. He has stage IV NSCLC (one mass in upper right lung with some plueral effusion spread as well as spread to both adrenals
Lisam81
in
Lung Cancer Support
6 years ago
Lung transplant advice
Could anyone share with me their experience of having a lung transplant and what life is like afterwards?
Could anyone share with me their experience of having a lung transplant and what life is like afterwards?
Catefacey
in
Lung Conditions Community Forum
6 years ago
A Special Day Today
Good Morning to All of you HU Family, My Friend Gaynor is Celebrating Two Years Today of her Double Lung Transplant. We both where in QE Birmingham having our Assessments For Transplant. Luckily for my friend she received her Transplant on this very Day after 6 weeks on The Transplant List. I keep
Good Morning to All of you HU Family, My Friend Gaynor is Celebrating Two Years Today of her Double Lung Transplant. We both where in QE Birmingham having our Assessments For Transplant. Luckily for my friend she received her Transplant on this very Day after 6 weeks on The Transplant List. I keep
Hacienda
in
Lung Conditions Community Forum
6 years ago
SD last CXR
57 years old female. Diagnosed S4 with brain secondaries Feb 18 treated with Gamma Knife and ceritinib. Pneumonia so now just going onto Pem maintenance. Initial partial response now SD. ROS 1
57 years old female. Diagnosed S4 with brain secondaries Feb 18 treated with Gamma Knife and ceritinib. Pneumonia so now just going onto Pem maintenance. Initial partial response now SD. ROS 1
Stouens
in
The Roy Castle Lung Cancer Foundation
6 years ago
MPN RESEARCH FOUNDATION LAUNCHES STEM CELL TRANSPLANT TIMING TOOL FOR MPN PATIENTS WITH MF
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
Mazcd
MPNVoice
in
MPN Voice
6 years ago
CBD oil.
I'm writing this post in a daze .I had the results of my lung biopsy on Friday and it showed I have lung cancer caused only by asbestos.I start Chemotherapy in three weeks .My family are obviously devastated my daughter has been able to get hold of some high grade CBD.oil and is insisting I should try
I'm writing this post in a daze .I had the results of my lung biopsy on Friday and it showed I have lung cancer caused only by asbestos.I start Chemotherapy in three weeks .My family are obviously devastated my daughter has been able to get hold of some high grade CBD.oil and is insisting I should try
bobknob51
in
Lung Conditions Community Forum
6 years ago
GCA and clinical trials
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
golf26
in
PMRGCAuk
6 years ago
Getting there,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Topteam
in
Leukaemia CARE
6 years ago
Aml.
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
Islay55
in
Leukaemia CARE
6 years ago
GCA and people not understanding
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
christine2715
in
PMRGCAuk
6 years ago
New here with a big hello!
Hey there Health Unlocked. I joined on behalf of my Mom, who was recently diagnosed with lung cancer. My fiance and I researched until we were blue in the face and have decided to move forward with treatment with CBD and THC. I really hope this stuff lives up to the hype. There seems to be so much
Hey there Health Unlocked. I joined on behalf of my Mom, who was recently diagnosed with lung cancer. My fiance and I researched until we were blue in the face and have decided to move forward with treatment with CBD and THC. I really hope this stuff lives up to the hype. There seems to be so much
couchfly
in
Lung Cancer Support
6 years ago
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