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Stories From SickleCellNews Online
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
sicklecellnews
in
Sickle Cell Society
6 years ago
T Cell treatment
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Marilyn1959
in
Leukaemia Support
6 years ago
Advice if possible please
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Scully12
in
Thyroid UK
6 years ago
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Your Voices, Part 4: Your emotions and your diagnosis
A lung cancer diagnosis can trigger a range of emotions. These emotions are important to discuss, but it can be difficult to find people who understand. Finding the right support is a vital step in many people’s lung cancer journeys. Over the past few months, HealthUnlocked has been conducting research
A lung cancer diagnosis can trigger a range of emotions. These emotions are important to discuss, but it can be difficult to find people who understand. Finding the right support is a vital step in many people’s lung cancer journeys. Over the past few months, HealthUnlocked has been conducting research
MaddieHU
HealthUnlocked
in
Lung Cancer Support
6 years ago
Adding radiation to chemo or not?
Hi everyone, I’m hoping someone could offer some insight or even their own thoughts into my dad’s latest dilemma as I think it’s possibly a rare situation. You all have been so helpful in previous posts, thank you so much! I couldn’t do this alongside my dad without this forum. I can’t find much info
Hi everyone, I’m hoping someone could offer some insight or even their own thoughts into my dad’s latest dilemma as I think it’s possibly a rare situation. You all have been so helpful in previous posts, thank you so much! I couldn’t do this alongside my dad without this forum. I can’t find much info
Lisam81
in
Lung Cancer Support
6 years ago
Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
DriedSeaweed
in
CLL Support
6 years ago
IM THINKING ABOUT ASKING FOR IMMUNOTHERAPY
HAD SABR END OF MARCH DUE FOR A CHEST XRAY IN SEPT MY NON SMALL CELL TUMOUR HAS GONE FROM 8ML TO 6ML IF IT HAS NOT GOT ANY SMALLER IM THINKING OF ASKING FOR IMMUNOTHERAPY HAS ANY HAD GOOD RESULTS FROM THIS TREATMENT ARE THE HOSPITAL STAFF WILLING TO LET YOU TRY IT AS A FORM OF TREATMENT
HAD SABR END OF MARCH DUE FOR A CHEST XRAY IN SEPT MY NON SMALL CELL TUMOUR HAS GONE FROM 8ML TO 6ML IF IT HAS NOT GOT ANY SMALLER IM THINKING OF ASKING FOR IMMUNOTHERAPY HAS ANY HAD GOOD RESULTS FROM THIS TREATMENT ARE THE HOSPITAL STAFF WILLING TO LET YOU TRY IT AS A FORM OF TREATMENT
hollyboo
in
Lung Conditions Community Forum
6 years ago
Your Voices, Part 3: Managing the stress of treatment options
There are more lung cancer treatments today than ever before. Ensuring you have access to information on the variety of treatments available to you is a key step in becoming actively engaged in your health journey. Over the past few months, HealthUnlocked has been conducting research on the Lung Cancer
There are more lung cancer treatments today than ever before. Ensuring you have access to information on the variety of treatments available to you is a key step in becoming actively engaged in your health journey. Over the past few months, HealthUnlocked has been conducting research on the Lung Cancer
MaddieHU
HealthUnlocked
in
Lung Cancer Support
6 years ago
Lung needle biopsy
after 2 ct scans and a MRE SCAN and a pet scan ..was told that i needed a lung guided needle biopsy so I can kno for sure if cancer ,the person who was gonna do this takes the ct pics before and etc ..comes back out and tells me that this isn't measuring same as all the other test/ scans were showing
after 2 ct scans and a MRE SCAN and a pet scan ..was told that i needed a lung guided needle biopsy so I can kno for sure if cancer ,the person who was gonna do this takes the ct pics before and etc ..comes back out and tells me that this isn't measuring same as all the other test/ scans were showing
Likeastone1972
in
The Roy Castle Lung Cancer Foundation
6 years ago
It gets lonely and chemo curls suck!
People don't want to hear that you have lung cancer or about your lung cancer. My biggest beef, though, is still these darn chemo curls. I used to have beautiful hair and the darn cancer pills took my hair and turned it into a mess. I'm still alive and do 2 hours of exercises each and every day. I'm
People don't want to hear that you have lung cancer or about your lung cancer. My biggest beef, though, is still these darn chemo curls. I used to have beautiful hair and the darn cancer pills took my hair and turned it into a mess. I'm still alive and do 2 hours of exercises each and every day. I'm
AtoyotA
in
Lung Cancer Support
6 years ago
T4 MO N2 - Mother in law diagnosed with Lung cancer
Hi, First post here...... My mother in law has recently been diagnosed with lung cancer - She had the biopsy last week and we are currently waiting for the results. She has been released from hospital with oxygen, she was admitted with a infection which has since cleared up. but I saw the following
Hi, First post here...... My mother in law has recently been diagnosed with lung cancer - She had the biopsy last week and we are currently waiting for the results. She has been released from hospital with oxygen, she was admitted with a infection which has since cleared up. but I saw the following
Hay679
in
The Roy Castle Lung Cancer Foundation
6 years ago
Much better now , thanks for the community support
I'm so grateful for support and to know there are so many others like me with ACOS . All the investigation basically revealed a raised CRP with raised ESR. My ANA is negative . I'm on125 mg eltrox .So all my friends , hang on in there .
I'm so grateful for support and to know there are so many others like me with ACOS . All the investigation basically revealed a raised CRP with raised ESR. My ANA is negative . I'm on125 mg eltrox .So all my friends , hang on in there .
DavidLeena
in
Lung Conditions Community Forum
6 years ago
Very poorly newbie - Desperate for help
Hello everyone... I've been meaning to post on here for a long time but get extremely overwhelmed and have so much that has happened/is happening that I don't know where to start, trying to gather all the information and put it in to words with declining cognitive impairment and extreme fatigue is so
Hello everyone... I've been meaning to post on here for a long time but get extremely overwhelmed and have so much that has happened/is happening that I don't know where to start, trying to gather all the information and put it in to words with declining cognitive impairment and extreme fatigue is so
Flossles
in
Thyroid UK
6 years ago
Relapsed DLBCL
Hi everyone. I have been well since finishing my treatment for DLBCL in Sept 2016 which was 6 cycles of R chop. Pet/ct scan in November 2016 gave me the all clear. Now after having a lump removed from my shoulder it has shown traces of high grade Lymphoma although it has presented differently from the
Hi everyone. I have been well since finishing my treatment for DLBCL in Sept 2016 which was 6 cycles of R chop. Pet/ct scan in November 2016 gave me the all clear. Now after having a lump removed from my shoulder it has shown traces of high grade Lymphoma although it has presented differently from the
Clementslr
in
Non Hodgkin's Lymphoma Friends
6 years ago
Advice please
Has anyone had a heart and lung transplant and could tell me how your getting on? What is the life expectancy for this sort of transplant? I’ve been told I need one and will be priority. Very scared and was expecting this so soon. I am thinking what if I don’t have the transplant and the doctors are
Has anyone had a heart and lung transplant and could tell me how your getting on? What is the life expectancy for this sort of transplant? I’ve been told I need one and will be priority. Very scared and was expecting this so soon. I am thinking what if I don’t have the transplant and the doctors are
Sank28
in
British Heart Foundation
6 years ago
PA when IFA and PCA test results are negative
Hi All, I commented on a recent thread that I thought some people had PA even when Intrinsic Factor Antibody test and Parietal Cell Antibody test results were both negative. I speculated that this could be due to an immunoglobulin deficiency leading to inability to produce certain antibodies. I've now
Hi All, I commented on a recent thread that I thought some people had PA even when Intrinsic Factor Antibody test and Parietal Cell Antibody test results were both negative. I speculated that this could be due to an immunoglobulin deficiency leading to inability to produce certain antibodies. I've now
Sleepybunny
in
Pernicious Anaemia Society
6 years ago
Your Voices, Part 2: “Scanxiety; it really is true”
Scans can be a scary time for everyone. Being unsure of what your scan results may bring can cause anxiety for those awaiting results, and even for those who have not yet had their scan. Scanxiety is the term given to this anxiety felt by those who are undergoing a lung cancer scan. Over the past few
Scans can be a scary time for everyone. Being unsure of what your scan results may bring can cause anxiety for those awaiting results, and even for those who have not yet had their scan. Scanxiety is the term given to this anxiety felt by those who are undergoing a lung cancer scan. Over the past few
MaddieHU
HealthUnlocked
in
Lung Cancer Support
6 years ago
Palliative Care
Nothing more to do palliative care it is just trying to live my best life possible. So I went to immeadiate care cause I felt I needed antibiotics and I got them and prednisone but also chest X-ray. Chest X-ray showed an area that could possibly be a cancer but I would be unable to with stand surgery
Nothing more to do palliative care it is just trying to live my best life possible. So I went to immeadiate care cause I felt I needed antibiotics and I got them and prednisone but also chest X-ray. Chest X-ray showed an area that could possibly be a cancer but I would be unable to with stand surgery
docmel
in
Lung Conditions Community Forum
6 years ago
GCA and tocilizumab withdrawal
Has anyone given up taking tocilizumab (Actemra) and remained in remission or did you get GCA back. Is there a program to reduce injections in stages?
Has anyone given up taking tocilizumab (Actemra) and remained in remission or did you get GCA back. Is there a program to reduce injections in stages?
christine2715
in
PMRGCAuk
6 years ago
Post Lung Transplant & Dental Implant
Hi I had a lung transplant 6 years ago and am doing very well. My questions is: has anyone ever had a dental implant after a lung transplant and how do it go. I am trying to decide if I should have one. Need your help. Thanks everyone
Hi I had a lung transplant 6 years ago and am doing very well. My questions is: has anyone ever had a dental implant after a lung transplant and how do it go. I am trying to decide if I should have one. Need your help. Thanks everyone
crazy1050
in
Lung Conditions Community Forum
6 years ago
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