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Hi Guys
Sorry for not being in touch but I have been going through a hard time with my RA all the way through my Double Lung Transplant. my Consultant is going to recommend a treatment to my transplant team it's called Rubitax or something similar if anyone has heard of this please send the correct spelling
Sorry for not being in touch but I have been going through a hard time with my RA all the way through my Double Lung Transplant. my Consultant is going to recommend a treatment to my transplant team it's called Rubitax or something similar if anyone has heard of this please send the correct spelling
mattcass
in
NRAS
6 years ago
Coils
Looking for information on the coils for lung operation. Has anyone had them.
Looking for information on the coils for lung operation. Has anyone had them.
Spacecat1
in
Lung Conditions Community Forum
6 years ago
Stage 3B Lung Cancer. What kind of results to expect after chemo
Hello, My mom was diagnosed with stage 3B Lung cancer back in May. This cancer is a reoccurrence, she has had two partial lobectomy’s back in 2011/2012. She is has never smoked and was negative for all the genetic markers.She has finished three rounds of chemo and IV immunotherapy and recently had a
Hello, My mom was diagnosed with stage 3B Lung cancer back in May. This cancer is a reoccurrence, she has had two partial lobectomy’s back in 2011/2012. She is has never smoked and was negative for all the genetic markers.She has finished three rounds of chemo and IV immunotherapy and recently had a
Tuhtuhtina
in
The Roy Castle Lung Cancer Foundation
6 years ago
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David1968-CT results 😢
As you know I attended Hospital this morning for a CT scan. I have two masess of cancer in my right lung. Things moving quickly, been revered as an urgent case to a lung cancer specalist, hopefull see someone early next week and get these bad boys taken out. Xxxx
As you know I attended Hospital this morning for a CT scan. I have two masess of cancer in my right lung. Things moving quickly, been revered as an urgent case to a lung cancer specalist, hopefull see someone early next week and get these bad boys taken out. Xxxx
1968
in
Lung Conditions Community Forum
6 years ago
Please nominate your amazing caregiver
Nominate Your #1 Caregiver Today! --> https://bit.ly/2LCTw67 Behind every lung cancer patient stands a caregiver walking hand-in-hand throughout a patient’s journey. Your nominee could WIN a FREE trip to San Francisco, California and honored at the 13th ALCF Simply the Best Gala! --> https://bit.ly/2LCUCPh
Nominate Your #1 Caregiver Today! --> https://bit.ly/2LCTw67 Behind every lung cancer patient stands a caregiver walking hand-in-hand throughout a patient’s journey. Your nominee could WIN a FREE trip to San Francisco, California and honored at the 13th ALCF Simply the Best Gala! --> https://bit.ly/2LCUCPh
dleducALC
Administrator
in
Lung Cancer Support
6 years ago
Bone Marrow Transplant telephone conference call TODAY September 19, 2018
September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow Transplantation http://www.lls.org/events/blood-cancers-and-the-role-of-bone-marrow-transplantation?src1=22346&src2= This free telephone support program will focus on the role of transplantation in blood cancers, in
September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow Transplantation http://www.lls.org/events/blood-cancers-and-the-role-of-bone-marrow-transplantation?src1=22346&src2= This free telephone support program will focus on the role of transplantation in blood cancers, in
lankisterguy
Volunteer
in
CLL Support
6 years ago
Any positive transplant stories 60+?
I've got a CLL buddy who has just been diagnosed with myelodysplastic syndrome, which is basically bone marrow failure. I'm not clear if this is transformation of her CLL or a secondary malignancy. Either way, she is facing a decision about undergoing an autologous bone marrow transplant. She is in
I've got a CLL buddy who has just been diagnosed with myelodysplastic syndrome, which is basically bone marrow failure. I'm not clear if this is transformation of her CLL or a secondary malignancy. Either way, she is facing a decision about undergoing an autologous bone marrow transplant. She is in
Eagle5327
in
CLL Support
6 years ago
How CAN A Lung Specialist Write In Letter I Had CT Scan In 2018 When No Such THING Happened.
Unless it is to justify killing me ... talk about getting it so wrong YET when I question it’s me who is neurotic and one with problem. “Doctor Who S10E07 The Pyramid at the End of the World” Well finally FOUND out name of bacteria have causing Throat issues respiratory distress stomach issues. RAOULTELLA
Unless it is to justify killing me ... talk about getting it so wrong YET when I question it’s me who is neurotic and one with problem. “Doctor Who S10E07 The Pyramid at the End of the World” Well finally FOUND out name of bacteria have causing Throat issues respiratory distress stomach issues. RAOULTELLA
Hidden
in
Lung Conditions Community Forum
6 years ago
NIVI Mask and Facial Sores
Hi there, for the last 2 weeks I have now at night got to go on a NIVI machine for around 7 hours. I have been put on this as my C02 is very high while i awaite a lung transplant. I am getting use to it now although in the morning when i take it off i am sometimes left with red chaffing around the
Hi there, for the last 2 weeks I have now at night got to go on a NIVI machine for around 7 hours. I have been put on this as my C02 is very high while i awaite a lung transplant. I am getting use to it now although in the morning when i take it off i am sometimes left with red chaffing around the
Joseph260268
in
Lung Conditions Community Forum
6 years ago
Proton therapy
With the help of several people on here (you all are great!!) I urged my dad to push for proton therapy over the IMRT that was suggested for chest tumor. We did last week and tomorrow he is set to begin mapping for proton therapy to the chest tumor (4.9 cm) by his heart! I anticipated this would move
With the help of several people on here (you all are great!!) I urged my dad to push for proton therapy over the IMRT that was suggested for chest tumor. We did last week and tomorrow he is set to begin mapping for proton therapy to the chest tumor (4.9 cm) by his heart! I anticipated this would move
Lisam81
in
Lung Cancer Support
6 years ago
Cannabis Oils - Best Ones for T-Cell Relapse?
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone marrow transplant. His level's aren't balancing out enough to move on with any salvage treatment so we have looked into cannabis oils but finding
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone marrow transplant. His level's aren't balancing out enough to move on with any salvage treatment so we have looked into cannabis oils but finding
NHL-TCell
in
Non Hodgkin's Lymphoma Friends
6 years ago
A Milestone that Shouldn't Be!
Today is my 60th birthday. I have been thinking about all it has taken to get through to this day. In 2002 the prognosis was less than good that I would make it to the 5 year mark. It is 4 cancers later, and I am still kicking up my heels and fighting! While this is a big milestone, I would like to remind
Today is my 60th birthday. I have been thinking about all it has taken to get through to this day. In 2002 the prognosis was less than good that I would make it to the 5 year mark. It is 4 cancers later, and I am still kicking up my heels and fighting! While this is a big milestone, I would like to remind
anrean
in
Lung Cancer Support
6 years ago
Non specific lung nodule meaning ?
Good morning, I’ve received a letter from Guy’s hospital regarding a CT scan I’ve had few months ago .is written :”on her last appointment the Ct scan has not shown anything apart from a non specific nodule wich will require an interim CT in one year” What exactly means ? Should I be worried ? Thank
Good morning, I’ve received a letter from Guy’s hospital regarding a CT scan I’ve had few months ago .is written :”on her last appointment the Ct scan has not shown anything apart from a non specific nodule wich will require an interim CT in one year” What exactly means ? Should I be worried ? Thank
Memoc
in
Asthma Community Forum
6 years ago
Stories From SickleCellNews Online
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
sicklecellnews
in
Sickle Cell Society
6 years ago
T Cell treatment
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Marilyn1959
in
Leukaemia Support
6 years ago
Advice if possible please
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Scully12
in
Thyroid UK
6 years ago
Your Voices, Part 4: Your emotions and your diagnosis
A lung cancer diagnosis can trigger a range of emotions. These emotions are important to discuss, but it can be difficult to find people who understand. Finding the right support is a vital step in many people’s lung cancer journeys. Over the past few months, HealthUnlocked has been conducting research
A lung cancer diagnosis can trigger a range of emotions. These emotions are important to discuss, but it can be difficult to find people who understand. Finding the right support is a vital step in many people’s lung cancer journeys. Over the past few months, HealthUnlocked has been conducting research
MaddieHU
HealthUnlocked
in
Lung Cancer Support
6 years ago
Adding radiation to chemo or not?
Hi everyone, I’m hoping someone could offer some insight or even their own thoughts into my dad’s latest dilemma as I think it’s possibly a rare situation. You all have been so helpful in previous posts, thank you so much! I couldn’t do this alongside my dad without this forum. I can’t find much info
Hi everyone, I’m hoping someone could offer some insight or even their own thoughts into my dad’s latest dilemma as I think it’s possibly a rare situation. You all have been so helpful in previous posts, thank you so much! I couldn’t do this alongside my dad without this forum. I can’t find much info
Lisam81
in
Lung Cancer Support
6 years ago
Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
DriedSeaweed
in
CLL Support
6 years ago
IM THINKING ABOUT ASKING FOR IMMUNOTHERAPY
HAD SABR END OF MARCH DUE FOR A CHEST XRAY IN SEPT MY NON SMALL CELL TUMOUR HAS GONE FROM 8ML TO 6ML IF IT HAS NOT GOT ANY SMALLER IM THINKING OF ASKING FOR IMMUNOTHERAPY HAS ANY HAD GOOD RESULTS FROM THIS TREATMENT ARE THE HOSPITAL STAFF WILLING TO LET YOU TRY IT AS A FORM OF TREATMENT
HAD SABR END OF MARCH DUE FOR A CHEST XRAY IN SEPT MY NON SMALL CELL TUMOUR HAS GONE FROM 8ML TO 6ML IF IT HAS NOT GOT ANY SMALLER IM THINKING OF ASKING FOR IMMUNOTHERAPY HAS ANY HAD GOOD RESULTS FROM THIS TREATMENT ARE THE HOSPITAL STAFF WILLING TO LET YOU TRY IT AS A FORM OF TREATMENT
hollyboo
in
Lung Conditions Community Forum
6 years ago
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