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My wife has just been diagnosed with small cell lung cancer I realy dont know what to do or say so angry and very confused about it all she as just done her second cycle of chemotherapy I dont no how we will get through this any advice and help will be very much appreciated how people can see beyond
My wife has just been diagnosed with small cell lung cancer I realy dont know what to do or say so angry and very confused about it all she as just done her second cycle of chemotherapy I dont no how we will get through this any advice and help will be very much appreciated how people can see beyond
paul1960
in
Lung Cancer Support
4 years ago
Breathless
I am 5 weeks post right lung lobectomy and still getting out of breath . Has anyone else experience it . I have never been out of breath before so since the operation this is new . I also seem to be reaching when I cough and my stomach seems bloated also a new symptom . Any advice welcomed
I am 5 weeks post right lung lobectomy and still getting out of breath . Has anyone else experience it . I have never been out of breath before so since the operation this is new . I also seem to be reaching when I cough and my stomach seems bloated also a new symptom . Any advice welcomed
HenryEtta
in
The Roy Castle Lung Cancer Foundation
4 years ago
Lung nodule advice please?
I've been told over the phone today (by my gp because I wanted to know my results)that one of my three lung nodules has grown from 6mm to 7mm since my first scan three months ago. I'm really worried, I phoned the respiratory secretaries to ask what happens next, to be abruptly told that the consultant
I've been told over the phone today (by my gp because I wanted to know my results)that one of my three lung nodules has grown from 6mm to 7mm since my first scan three months ago. I'm really worried, I phoned the respiratory secretaries to ask what happens next, to be abruptly told that the consultant
Bunny12345678
in
Lung Conditions Community Forum
4 years ago
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Shielding before and after lung surgery
I am waiting to have lung surgery a lobectomy. Hoping to get a surgery date in next 2 weeks, as already cancelled once. I spoke to my doctor about shielding and she said I couldn’t get a shielding letter as this is only for people currently getting cancer treatment such as chemotherapy (I have a carcinoid
I am waiting to have lung surgery a lobectomy. Hoping to get a surgery date in next 2 weeks, as already cancelled once. I spoke to my doctor about shielding and she said I couldn’t get a shielding letter as this is only for people currently getting cancer treatment such as chemotherapy (I have a carcinoid
Becky130777
in
Lung Conditions Community Forum
4 years ago
Lung cancer in non-smokers likely to respond differently to treatment.
Lung cancer in non-smokers is a diverse and distinct disease from that in smokers, and is likely to respond differently to targeted treatments, a major new study shows. Scientists studied a population in Taiwan with high rates of lung cancer among non-smokers – and found a range of genetic changes which
Lung cancer in non-smokers is a diverse and distinct disease from that in smokers, and is likely to respond differently to targeted treatments, a major new study shows. Scientists studied a population in Taiwan with high rates of lung cancer among non-smokers – and found a range of genetic changes which
2greys
in
Lung Conditions Community Forum
4 years ago
MDS
Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the
Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
Anemia related to bone marrow
It's bone marrow problem as per doctors and test result, its been since radiation 3 yrs back and testicals removal, my father kept saying about hemoglobin declining but doctors never suggested bone marrow tests since then, it was gradually rising, it could have been easily cured. Now doctor said we got
It's bone marrow problem as per doctors and test result, its been since radiation 3 yrs back and testicals removal, my father kept saying about hemoglobin declining but doctors never suggested bone marrow tests since then, it was gradually rising, it could have been easily cured. Now doctor said we got
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
B12 injections
Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a lung
Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a lung
Whitch
in
Pernicious Anaemia Society
4 years ago
B12 injection
Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a
Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a
Whitch
in
Thyroid UK
4 years ago
Lung Transplant Survey Request
Hi Everyone Its been a while since I posted on this site - my mum had a very scary few months in hospital after receiving a lung transplant. Since then things have been progressing slowly in the right direction. As I come from a med-tech background and not working I would like to do something positive
Hi Everyone Its been a while since I posted on this site - my mum had a very scary few months in hospital after receiving a lung transplant. Since then things have been progressing slowly in the right direction. As I come from a med-tech background and not working I would like to do something positive
Queenbean
in
Lung Conditions Community Forum
4 years ago
Confused
Hi . I wonder if anyone can help me. I was diagnosed with lung cancer a couple of weeks ago the mutation was PDL1. I received my first immunotherapy treatment yesterday. So far so good. I got a letter today from the consultant it states the cancer then EGFR/Alk/Ros 1 negative. Does anyone know what
Hi . I wonder if anyone can help me. I was diagnosed with lung cancer a couple of weeks ago the mutation was PDL1. I received my first immunotherapy treatment yesterday. So far so good. I got a letter today from the consultant it states the cancer then EGFR/Alk/Ros 1 negative. Does anyone know what
Crafty57
in
The Roy Castle Lung Cancer Foundation
4 years ago
Stem Cell Transplant
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
lebowski42
in
MPN Voice
4 years ago
Broken my shielding
Well I haven’t seen family since lockdown and haven’t been out of the house since January but the last two days everyone has been. My husband collapsed and there was no way I can manage him on my own so my family as well as sorting out the medical side of it came and did all the practical things.
Well I haven’t seen family since lockdown and haven’t been out of the house since January but the last two days everyone has been. My husband collapsed and there was no way I can manage him on my own so my family as well as sorting out the medical side of it came and did all the practical things.
Grandmatojack
in
Lung Conditions Community Forum
4 years ago
Study finds drug beneficial for shrinking mesothelioma tumors.
A drug that is designed to boost the immune system against mesothelioma, when combined with immunotherapy, was found to be beneficial in a small study involving ten patients. The results, which appeared July 1, 2020, in Science Translational Medicine, suggest that the drug LMB-100 could prolong the life
A drug that is designed to boost the immune system against mesothelioma, when combined with immunotherapy, was found to be beneficial in a small study involving ten patients. The results, which appeared July 1, 2020, in Science Translational Medicine, suggest that the drug LMB-100 could prolong the life
2greys
in
Lung Conditions Community Forum
4 years ago
The combination of four drugs at low doses is more effective and less toxic in the treatment of a lung cancer type
Inhibit the specific activity of a protein affected by a mutation using high doses of a drug is the usual treatment for many cancers. Despite in the first instance this strategy is effective, leads to treatment resistance development by tumor cells through the appearance of secondary mutations, which
Inhibit the specific activity of a protein affected by a mutation using high doses of a drug is the usual treatment for many cancers. Despite in the first instance this strategy is effective, leads to treatment resistance development by tumor cells through the appearance of secondary mutations, which
2greys
in
Lung Conditions Community Forum
4 years ago
Lung surgery Bi-lobectomy
Hi everyone just to give you an update I went to see my consultant today who advised from the biopsy I had I have a benign tumour in my bronchial tube. As the blockage is now causing me to have infections. I was advised surgery is my best option. I was able to see the surgeon why I was at the hospital
Hi everyone just to give you an update I went to see my consultant today who advised from the biopsy I had I have a benign tumour in my bronchial tube. As the blockage is now causing me to have infections. I was advised surgery is my best option. I was able to see the surgeon why I was at the hospital
Becky130777
in
The Roy Castle Lung Cancer Foundation
4 years ago
New on here
Hi there, in February of this year my mum was diagnosed with stage 3B squamous cell non-small cell lung cancer. It's been an emotional roller coaster. The doctors have been very positive about my mum. She was given aggressive chemo and radiation which she completed 2 months ago and recently started on
Hi there, in February of this year my mum was diagnosed with stage 3B squamous cell non-small cell lung cancer. It's been an emotional roller coaster. The doctors have been very positive about my mum. She was given aggressive chemo and radiation which she completed 2 months ago and recently started on
monica91
in
The Roy Castle Lung Cancer Foundation
4 years ago
An update on my tocilizumab experience.
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
LemonZest11
in
PMRGCAuk
4 years ago
Staging lung cancer
Hi all, so I had my biopsy last week today they had an MDT meeting. My cancer nurse phoned and said I have T2B N3MO MUTATION PDL1 expression. Does anyone know what this means, please be gentle with me as I’m so scared. I have a phone call tomorrow from the oncologist. I have told them I don’t want
Hi all, so I had my biopsy last week today they had an MDT meeting. My cancer nurse phoned and said I have T2B N3MO MUTATION PDL1 expression. Does anyone know what this means, please be gentle with me as I’m so scared. I have a phone call tomorrow from the oncologist. I have told them I don’t want
Crafty57
in
The Roy Castle Lung Cancer Foundation
4 years ago
Shining light on a malignant lung cancer.
Treating a rare type of malignant lung cancer could improve, thanks to near-infrared irradiation and a cancer-targeting compound. Nagoya University oncologist Kazuhide Sato and colleagues tested the treatment and published their findings in the journal Cells. Malignant pleural mesothelioma (MPM) is
Treating a rare type of malignant lung cancer could improve, thanks to near-infrared irradiation and a cancer-targeting compound. Nagoya University oncologist Kazuhide Sato and colleagues tested the treatment and published their findings in the journal Cells. Malignant pleural mesothelioma (MPM) is
2greys
in
Lung Conditions Community Forum
4 years ago
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