Search
Search
About
Log in
Join
Experiences with
Non-small-cell lung carcinoma
Posts
Communities
2,780 public posts
Filter results
International Caregiver Survey
Calling all caregivers: Please help by completing this survey: https://www.connection.solutions.iqvia.com/Desktop/Portal/Signup?id=LungCancerRegistry&lang=en Anyone who has cared for a person with lung cancer, either now or in the past, is eligible to complete the survey, which is part of the global
Calling all caregivers: Please help by completing this survey: https://www.connection.solutions.iqvia.com/Desktop/Portal/Signup?id=LungCancerRegistry&lang=en Anyone who has cared for a person with lung cancer, either now or in the past, is eligible to complete the survey, which is part of the global
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Nintedanib offers new hope as transplant recommendation approaches
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Only 288 hours until my second opinion assessment at the Royal Papworth for my lung transplant.
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Please join me in meeting with Congress to ask for Lung Cancer Research Funding
The most important thing you can do as a participant is share your experience with your representative in DC. You put a face on lung cancer which is the most powerful tool we have. You will be matched with other people from your state and the state leader will make the ask for the funding. First
The most important thing you can do as a participant is share your experience with your representative in DC. You put a face on lung cancer which is the most powerful tool we have. You will be matched with other people from your state and the state leader will make the ask for the funding. First
Denzie
Volunteer
in
Lung Cancer Support
2 years ago
Newby here seeking advice please.
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Mrbojangles
in
Lung Cancer Support
2 years ago
Potassium’s use and Trigeminal Neuralgia Events
Hello this is my first time posting so be kind. I have MS and have been prescribed Klor-Con M20 potassium as a result of diarrhea. Now I am having Trigeminal Neuralgia (TN) events sometimes 3-times per day and as you know if you have had them they hurt. I read somewhere that a person said to avoid bananas
Hello this is my first time posting so be kind. I have MS and have been prescribed Klor-Con M20 potassium as a result of diarrhea. Now I am having Trigeminal Neuralgia (TN) events sometimes 3-times per day and as you know if you have had them they hurt. I read somewhere that a person said to avoid bananas
WasaGolfer
in
My MSAA Community
2 years ago
Thank you!
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Hidden
in
Lung Conditions Community Forum
2 years ago
Wellness poster for my stay at hospital
I am due to have a stem cell transplant and have prepared myself for my stay at the hospital. It’s been suggested that I can decorate my room and can use posters to put on the wall. I wonder if anyone could suggest somewhere online that they would know of that I could find any reasonably priced posters
I am due to have a stem cell transplant and have prepared myself for my stay at the hospital. It’s been suggested that I can decorate my room and can use posters to put on the wall. I wonder if anyone could suggest somewhere online that they would know of that I could find any reasonably priced posters
Kraskie1915
in
CLL Support
2 years ago
Treatments and Surviving Cancer
I am a stage 3 lung cancer survivor that was diagnosed in August of 2018, so I have now been in remission for 3 1/2 years. When I first found out that I had cancer it was very scary because I thought that I was going to die, so I began depressed and sad. I had a lot of prayer warriors, family members
I am a stage 3 lung cancer survivor that was diagnosed in August of 2018, so I have now been in remission for 3 1/2 years. When I first found out that I had cancer it was very scary because I thought that I was going to die, so I began depressed and sad. I had a lot of prayer warriors, family members
Linnie1430
in
Lung Cancer Support
2 years ago
Sct question
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Johan2021
in
MPN Voice
2 years ago
Refusing Lung Transplant
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
hillclimber1
in
Lung Conditions Community Forum
2 years ago
Encouraging Progress
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
redhawk1
in
Cure Parkinson's
2 years ago
Hello all
Hi everyone. I am new to this group only having been diagnosed last November with stage 4 lung cancer. I have a secondary in my brain but am lucky to have the EGFR Exon 19 mutation so now on targeted table therapy Osimertinib. Slowly working through the shock and trying to find informed and positive
Hi everyone. I am new to this group only having been diagnosed last November with stage 4 lung cancer. I have a secondary in my brain but am lucky to have the EGFR Exon 19 mutation so now on targeted table therapy Osimertinib. Slowly working through the shock and trying to find informed and positive
Musicgirl71
in
The Roy Castle Lung Cancer Foundation
2 years ago
Disassociated feeling
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
redhouts
in
PMRGCAuk
2 years ago
Lung Cancer
Was diagnosed with Lung cancer Feb 2021 small stem approx. 4cm Tumour in lower right Lobe and had imbedded itself in the lining and on main archery and other blood vessels and therefore inoperable. Had 3 sessions of chemo and 6. 1/2 weeks of radiotherapy treatment finishing on 9/5/21. Then 3 monthly
Was diagnosed with Lung cancer Feb 2021 small stem approx. 4cm Tumour in lower right Lobe and had imbedded itself in the lining and on main archery and other blood vessels and therefore inoperable. Had 3 sessions of chemo and 6. 1/2 weeks of radiotherapy treatment finishing on 9/5/21. Then 3 monthly
Lainey100
in
The Roy Castle Lung Cancer Foundation
2 years ago
World Blood Cancer Day May 28th
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Dovme
in
MPN Voice
2 years ago
Lung cancer
Hi, I was wondering if ya'll know how long it takes to start seeing results from being on Keytruda. My husband, who was diagnosed with lung cancer last year just recently started Keytruda and has had two treatments, but he doesn't feel any better. He's tired, has pain and nausea. Thank ya'll
Hi, I was wondering if ya'll know how long it takes to start seeing results from being on Keytruda. My husband, who was diagnosed with lung cancer last year just recently started Keytruda and has had two treatments, but he doesn't feel any better. He's tired, has pain and nausea. Thank ya'll
Orchid2583
in
Lung Cancer Support
2 years ago
Lower Abdominal pain and Tocilizumab
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
SheffieldJane
in
PMRGCAuk
2 years ago
Trikafta drug US Name - Kaftrio drug UK Name
Trikafta drug US Name - Kaftrio drug UK Name Can someone please tell me if the above drug is only offered to people who have Cystic Fibrosis in the UK? i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe
Trikafta drug US Name - Kaftrio drug UK Name Can someone please tell me if the above drug is only offered to people who have Cystic Fibrosis in the UK? i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe
Joseph260268
in
Lung Conditions Community Forum
2 years ago
Gathering HOPE- new Wellness focus social event!
Hello HealthUnlocked Community, We want your input! I am excited to invite you to a very special Gathering HOPE social hour on Tuesday, March 8th at 5pm PT/8pm ET to explore and discuss the needs of the lung cancer community beyond your diagnosis, and the way that wellness-specific activities can support
Hello HealthUnlocked Community, We want your input! I am excited to invite you to a very special Gathering HOPE social hour on Tuesday, March 8th at 5pm PT/8pm ET to explore and discuss the needs of the lung cancer community beyond your diagnosis, and the way that wellness-specific activities can support
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
1
...
20
21
22
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
831 results
The Roy Castle Lung Cancer Foundation
498 results
Lung Cancer Support
363 results
View top 10 communities
Sort by
Most Relevant
Newest