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Non-small-cell lung carcinoma
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Spring, and unusual weather
Think here in Midlands have early spring, my prunus cherry tree is in full bloom, pigeons eating flowers, hardy fuchsias in leaf, whilst snowdrops crocus etc still flowering beautifully. Lucky not to have had flooding where I live. Blue tits have been going into their box since before Christmas, can
Think here in Midlands have early spring, my prunus cherry tree is in full bloom, pigeons eating flowers, hardy fuchsias in leaf, whilst snowdrops crocus etc still flowering beautifully. Lucky not to have had flooding where I live. Blue tits have been going into their box since before Christmas, can
Morrison10
in
Lung Conditions Community Forum
2 years ago
Middle of the night gremlins
The past 5 weeks... Can't believe how our lives have changed.... My husband has been diagnosed with stage 4 non small cell cancer.... Its been a roller coaster.... He has bee n looked after well by shooting star wrexham. He is starting treatment on Monday... 2 x chemo plus immunotherapy...... I get
The past 5 weeks... Can't believe how our lives have changed.... My husband has been diagnosed with stage 4 non small cell cancer.... Its been a roller coaster.... He has bee n looked after well by shooting star wrexham. He is starting treatment on Monday... 2 x chemo plus immunotherapy...... I get
Ceibach
in
The Roy Castle Lung Cancer Foundation
2 years ago
CAR T vaccine
GeoVax is conducting two Phase II COVID-19 vaccine clinical trials with its GEO-CMO4S1 vaccine. One of the trials is among immunocompromised patients who have been treated with CAR T therapy or have undergone bone marrow transplants. https://www.biospace.com/article/geovax-s-novel-vaccine-platform-induces-both-antibody-and-t-cell-responses
GeoVax is conducting two Phase II COVID-19 vaccine clinical trials with its GEO-CMO4S1 vaccine. One of the trials is among immunocompromised patients who have been treated with CAR T therapy or have undergone bone marrow transplants. https://www.biospace.com/article/geovax-s-novel-vaccine-platform-induces-both-antibody-and-t-cell-responses
Scout4answers
in
Advanced Prostate Cancer
2 years ago
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Losing weight while on steroids
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hidden
in
Lung Conditions Community Forum
2 years ago
Please join us tomorrow Tuesday, February 8th for our monthly Gathering HOPE social hour!
Hello and happy February! I am looking forward to seeing you all at our Gathering HOPE social hour, one of our favorite new community programs. We’ve been having so much fun connecting and getting to know each other every month, and I would love for you to join us at our next event: Tuesday, February
Hello and happy February! I am looking forward to seeing you all at our Gathering HOPE social hour, one of our favorite new community programs. We’ve been having so much fun connecting and getting to know each other every month, and I would love for you to join us at our next event: Tuesday, February
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
What’s New in MS Research - March 2022
Thank you again to everyone who posted about and is discussing MSAA's latest edition of the "What's New in MS Research" report on our website! For those that don't know: this series of online articles is published periodically and features important information on topics ranging from highlights of major
Thank you again to everyone who posted about and is discussing MSAA's latest edition of the "What's New in MS Research" report on our website! For those that don't know: this series of online articles is published periodically and features important information on topics ranging from highlights of major
johnMSAA
Partner
in
My MSAA Community
2 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Normal blood levels mean anything?
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
Jjg42
in
Pernicious Anaemia Society
2 years ago
Menopause and Sickle Cell
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
Iyalode26
in
Sickle Cell Society
2 years ago
Oxygen user and covid antivirals
Hi hope you’re well. My parents are staying with me, dad tested positive with covid yesterday. He’s doing really well a little coughing now and again so pretty mild. So far my lft are negative however I’ve made enquiries and my consultant doesn’t think I’d be eligible for antivirals if I test positive
Hi hope you’re well. My parents are staying with me, dad tested positive with covid yesterday. He’s doing really well a little coughing now and again so pretty mild. So far my lft are negative however I’ve made enquiries and my consultant doesn’t think I’d be eligible for antivirals if I test positive
BreatheasyBe
in
Lung Conditions Community Forum
2 years ago
Transplant assessment delay - thanks for nothing PCR test!
Today I was expecting to be starting the process of thinking over whether I want to go ahead with a future lung transplant or not. Instead, I'm having to put everything on hold after falling at the final hurdle ahead of my lung transplant assessment which I was due to undergo today and yesterday. In
Today I was expecting to be starting the process of thinking over whether I want to go ahead with a future lung transplant or not. Instead, I'm having to put everything on hold after falling at the final hurdle ahead of my lung transplant assessment which I was due to undergo today and yesterday. In
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
What a week!
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
My precious baby lost her battle💔😪
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
Kcn3
in
Lung Conditions Community Forum
2 years ago
Treatment has stoped working - next steps
Hi, Mags here. Well, after 20 months of combination Pemetrexed and Pemulizimab my latest scan shows some further growth in the lymph nodes, although the primary tumour in the lung is fairly static. My oncologist has decided that as the current treatment - i.e. neither the immuno or chemo therapies, are
Hi, Mags here. Well, after 20 months of combination Pemetrexed and Pemulizimab my latest scan shows some further growth in the lymph nodes, although the primary tumour in the lung is fairly static. My oncologist has decided that as the current treatment - i.e. neither the immuno or chemo therapies, are
magstherunner
in
The Roy Castle Lung Cancer Foundation
2 years ago
Accessing second course of Immunotherapy
Hi all I'm posting on here in the hope to find someone who has been able to access a second course of immunotherapy treatment. My mum was diagnosed in 2015 with stage 4 lung cancer. She went straight onto chemotherapy which made her very poorly and didn't do much to her cancer at all. Her consultant
Hi all I'm posting on here in the hope to find someone who has been able to access a second course of immunotherapy treatment. My mum was diagnosed in 2015 with stage 4 lung cancer. She went straight onto chemotherapy which made her very poorly and didn't do much to her cancer at all. Her consultant
nlg1405
in
The Roy Castle Lung Cancer Foundation
2 years ago
Liver function tests with Tocilizumab.
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
SheffieldJane
in
PMRGCAuk
2 years ago
Extrapulmonary small cell cancer
Hi everyone, My wife was recently diagnosed with extrapulmonary small cell cancer which presented in the breast. After having PET scan and brain MRI the cancer was thankfully no where else in her body. This type of cancer is very rare and the treatment is typically the same as for small cell lung cancer
Hi everyone, My wife was recently diagnosed with extrapulmonary small cell cancer which presented in the breast. After having PET scan and brain MRI the cancer was thankfully no where else in her body. This type of cancer is very rare and the treatment is typically the same as for small cell lung cancer
Mitski
in
Lung Cancer Support
2 years ago
Pneumonia Recovery Issue
I just recovered from viral pneumonia after being diagnosed on 11-11-2022. Is it common, after all this time to have good and bad days (meaning feeling well then the next day feeling like a truck hit me) and also my breathing hasn't quite returned to normal either. It's not real bad, but it is noticeable
I just recovered from viral pneumonia after being diagnosed on 11-11-2022. Is it common, after all this time to have good and bad days (meaning feeling well then the next day feeling like a truck hit me) and also my breathing hasn't quite returned to normal either. It's not real bad, but it is noticeable
slram
in
Lung Conditions Community Forum
2 years ago
Looking for someone going through something similar to me! Metastatic lung cancer spread to lymph nodes and spine?
I’m 40 and have stage 4 lung cancer which has spread to my lymph nodes and spine. Anyone else in the same situation? I’m interested in what treatment you are getting or had that has proved successful? Thank you Kate
I’m 40 and have stage 4 lung cancer which has spread to my lymph nodes and spine. Anyone else in the same situation? I’m interested in what treatment you are getting or had that has proved successful? Thank you Kate
Guddamc
in
The Roy Castle Lung Cancer Foundation
2 years ago
Happy to be here!
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
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