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Non-small-cell lung carcinoma
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Gathering HOPE- new Wellness focus social event!
Hello HealthUnlocked Community, We want your input! I am excited to invite you to a very special Gathering HOPE social hour on Tuesday, March 8th at 5pm PT/8pm ET to explore and discuss the needs of the lung cancer community beyond your diagnosis, and the way that wellness-specific activities can support
Hello HealthUnlocked Community, We want your input! I am excited to invite you to a very special Gathering HOPE social hour on Tuesday, March 8th at 5pm PT/8pm ET to explore and discuss the needs of the lung cancer community beyond your diagnosis, and the way that wellness-specific activities can support
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
My brother has lung cancer
Few weeks ago my brother received information that he has lung cancer (no talks on staging yet). The information we received is that he has a small tumor on his right lung. Currently we are waiting for the result of the tumor sample they took and we should receive it this week. While waiting for the
Few weeks ago my brother received information that he has lung cancer (no talks on staging yet). The information we received is that he has a small tumor on his right lung. Currently we are waiting for the result of the tumor sample they took and we should receive it this week. While waiting for the
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
Removed from Transplant
Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect. My respiratory
Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect. My respiratory
mary1956
in
Lung Conditions Community Forum
2 years ago
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Pulmonary Hypertension
I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it. However today I needed a wheel chair
I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it. However today I needed a wheel chair
mary1956
in
Lung Conditions Community Forum
2 years ago
DO YOU HAVE THE MET EXON14 MUTATION, NSCLC? DRUG SUBMISSION TIME.
Tepotinib (Tetmeko) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, and we are invited to provide a Patient Group Submission for the medicine. The indication this new medicine will be assessed under is 'For use in adults to treat a type of lung cancer, called
Tepotinib (Tetmeko) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, and we are invited to provide a Patient Group Submission for the medicine. The indication this new medicine will be assessed under is 'For use in adults to treat a type of lung cancer, called
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 years ago
My husband has been recently diagnosed with small cell lung cancer
We live in Spain. My husband (74 years old) was diagnosed with small cell lung cancer in January 2022 - 7cm tumour in the right lung, and in the hilar lymph nodes plus bronchelei. He started chemotherapy on 31 Jan, then another on 1st and 2nd Feb. His next appointment is 23/24/25 Feb. At the moment,
We live in Spain. My husband (74 years old) was diagnosed with small cell lung cancer in January 2022 - 7cm tumour in the right lung, and in the hilar lymph nodes plus bronchelei. He started chemotherapy on 31 Jan, then another on 1st and 2nd Feb. His next appointment is 23/24/25 Feb. At the moment,
Texas22
in
The Roy Castle Lung Cancer Foundation
2 years ago
Bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
HenryW
in
AMN EASIER
2 years ago
Massive setback…😡😢😡😢😡😢
Just got word from the transplant team that they now consider me too high a risk for a double lung transplant. As some of you may remember the assessment work up flagged up a calcification build up in a heart vessel ( LAD) which needed sorting. I subsequently went to the Harefield for angioplasty and
Just got word from the transplant team that they now consider me too high a risk for a double lung transplant. As some of you may remember the assessment work up flagged up a calcification build up in a heart vessel ( LAD) which needed sorting. I subsequently went to the Harefield for angioplasty and
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Transplant Assessment over and out (almost)
After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my lung transplant assessment on Monday and Tuesday this week. Having read the booklet that they sent in advance, I had a fair idea of what was involved but still don't think I was fully prepared for the
After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my lung transplant assessment on Monday and Tuesday this week. Having read the booklet that they sent in advance, I had a fair idea of what was involved but still don't think I was fully prepared for the
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Map of Human Blood Stem Cell Development Created
ARTICLE https://www.insideprecisionmedicine.com/topics/precision-medicine-topic/stem-cells/map-of-human-blood-stem-cell-development-created/ : EXTRACTS Researchers at UCLA have created a detailed map of human blood cells and how they develop in an embryo, which could help improve treatments for blood-related
ARTICLE https://www.insideprecisionmedicine.com/topics/precision-medicine-topic/stem-cells/map-of-human-blood-stem-cell-development-created/ : EXTRACTS Researchers at UCLA have created a detailed map of human blood cells and how they develop in an embryo, which could help improve treatments for blood-related
bennevisplace
in
CLL Support
2 years ago
Spring, and unusual weather
Think here in Midlands have early spring, my prunus cherry tree is in full bloom, pigeons eating flowers, hardy fuchsias in leaf, whilst snowdrops crocus etc still flowering beautifully. Lucky not to have had flooding where I live. Blue tits have been going into their box since before Christmas, can
Think here in Midlands have early spring, my prunus cherry tree is in full bloom, pigeons eating flowers, hardy fuchsias in leaf, whilst snowdrops crocus etc still flowering beautifully. Lucky not to have had flooding where I live. Blue tits have been going into their box since before Christmas, can
Morrison10
in
Lung Conditions Community Forum
2 years ago
Middle of the night gremlins
The past 5 weeks... Can't believe how our lives have changed.... My husband has been diagnosed with stage 4 non small cell cancer.... Its been a roller coaster.... He has bee n looked after well by shooting star wrexham. He is starting treatment on Monday... 2 x chemo plus immunotherapy...... I get
The past 5 weeks... Can't believe how our lives have changed.... My husband has been diagnosed with stage 4 non small cell cancer.... Its been a roller coaster.... He has bee n looked after well by shooting star wrexham. He is starting treatment on Monday... 2 x chemo plus immunotherapy...... I get
Ceibach
in
The Roy Castle Lung Cancer Foundation
2 years ago
CAR T vaccine
GeoVax is conducting two Phase II COVID-19 vaccine clinical trials with its GEO-CMO4S1 vaccine. One of the trials is among immunocompromised patients who have been treated with CAR T therapy or have undergone bone marrow transplants. https://www.biospace.com/article/geovax-s-novel-vaccine-platform-induces-both-antibody-and-t-cell-responses
GeoVax is conducting two Phase II COVID-19 vaccine clinical trials with its GEO-CMO4S1 vaccine. One of the trials is among immunocompromised patients who have been treated with CAR T therapy or have undergone bone marrow transplants. https://www.biospace.com/article/geovax-s-novel-vaccine-platform-induces-both-antibody-and-t-cell-responses
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Losing weight while on steroids
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hidden
in
Lung Conditions Community Forum
2 years ago
Please join us tomorrow Tuesday, February 8th for our monthly Gathering HOPE social hour!
Hello and happy February! I am looking forward to seeing you all at our Gathering HOPE social hour, one of our favorite new community programs. We’ve been having so much fun connecting and getting to know each other every month, and I would love for you to join us at our next event: Tuesday, February
Hello and happy February! I am looking forward to seeing you all at our Gathering HOPE social hour, one of our favorite new community programs. We’ve been having so much fun connecting and getting to know each other every month, and I would love for you to join us at our next event: Tuesday, February
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
What’s New in MS Research - March 2022
Thank you again to everyone who posted about and is discussing MSAA's latest edition of the "What's New in MS Research" report on our website! For those that don't know: this series of online articles is published periodically and features important information on topics ranging from highlights of major
Thank you again to everyone who posted about and is discussing MSAA's latest edition of the "What's New in MS Research" report on our website! For those that don't know: this series of online articles is published periodically and features important information on topics ranging from highlights of major
johnMSAA
Partner
in
My MSAA Community
2 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Normal blood levels mean anything?
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
Jjg42
in
Pernicious Anaemia Society
2 years ago
Menopause and Sickle Cell
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
Iyalode26
in
Sickle Cell Society
2 years ago
Oxygen user and covid antivirals
Hi hope you’re well. My parents are staying with me, dad tested positive with covid yesterday. He’s doing really well a little coughing now and again so pretty mild. So far my lft are negative however I’ve made enquiries and my consultant doesn’t think I’d be eligible for antivirals if I test positive
Hi hope you’re well. My parents are staying with me, dad tested positive with covid yesterday. He’s doing really well a little coughing now and again so pretty mild. So far my lft are negative however I’ve made enquiries and my consultant doesn’t think I’d be eligible for antivirals if I test positive
BreatheasyBe
in
Lung Conditions Community Forum
2 years ago
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