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Surgery feeling very sudden...
So. I saw the consultant last Tuesday and admitted defeat. Coil and Zoladex both unsuccessful, and oopherectomy ruled out by me. He warned that I had multiple stages of endo in the nodule and even if I declined excision surgery then I'd be monitored very closely with MRIs etc to check growth. I gave
So. I saw the consultant last Tuesday and admitted defeat. Coil and Zoladex both unsuccessful, and oopherectomy ruled out by me. He warned that I had multiple stages of endo in the nodule and even if I declined excision surgery then I'd be monitored very closely with MRIs etc to check growth. I gave
Starry
in
Endometriosis UK
7 years ago
Newbie - recent unexpected diagnosis!
Hi everyone, I've already learnt a lot from this site that I had no idea about! Had problems with pain and heavy bleeding for years at least 10, but last few years have been awful, periods felt like labour and couldn't leave the house for 2 or 3 days every month due to amount of bleeding. Docs gave me
Hi everyone, I've already learnt a lot from this site that I had no idea about! Had problems with pain and heavy bleeding for years at least 10, but last few years have been awful, periods felt like labour and couldn't leave the house for 2 or 3 days every month due to amount of bleeding. Docs gave me
Hidden
in
Endometriosis UK
7 years ago
Saw consultant today. It's the bowel excision surgery
Ive been worrying and worrying for months about whether surgery was the right thing . a Tried the coil and then zoladex. Side effects were so bad I stopped it all a month ago. So I've been back to square one. Been feeling like I had my brain back but bloating returned and fatigue persisted. Sex stopped
Ive been worrying and worrying for months about whether surgery was the right thing . a Tried the coil and then zoladex. Side effects were so bad I stopped it all a month ago. So I've been back to square one. Been feeling like I had my brain back but bloating returned and fatigue persisted. Sex stopped
Starry
in
Endometriosis UK
7 years ago
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Endo confirmed after laparoscopy yesterday
I had a lap (excision) yesterday morning and from my muddled memory (anesthetic) endo was found ovaries, uterus, bowel and pouch of douglas (may be other areas but I need to confirm that again with my gyane). I was allowed home late last night, feeling ok just a little sore on the right side and have
I had a lap (excision) yesterday morning and from my muddled memory (anesthetic) endo was found ovaries, uterus, bowel and pouch of douglas (may be other areas but I need to confirm that again with my gyane). I was allowed home late last night, feeling ok just a little sore on the right side and have
KarenJJ
in
Endometriosis UK
7 years ago
Help 😢
I was 16 (now 27) when i started with endo symptoms and didnt get diagnosed till i was 21 did any one else suffer or suffering with it this long and still no where in finding anything that helps with the side affects and pain ?? Ive now been told i could also have andomeosis after have my 8 ovarian cyst
I was 16 (now 27) when i started with endo symptoms and didnt get diagnosed till i was 21 did any one else suffer or suffering with it this long and still no where in finding anything that helps with the side affects and pain ?? Ive now been told i could also have andomeosis after have my 8 ovarian cyst
Chelclittleonesmith
in
Endometriosis UK
7 years ago
Zoladex and heart palpertations
Hi I had my first zoladex injection on Monday I haven't experienced any terrible side effects, apart from a flare up in my endometriosis pain, however I have started having heart palpertations that are quite extreme and haven't stopped. I noticed them start yesterday and have carried on. I thought
Hi I had my first zoladex injection on Monday I haven't experienced any terrible side effects, apart from a flare up in my endometriosis pain, however I have started having heart palpertations that are quite extreme and haven't stopped. I noticed them start yesterday and have carried on. I thought
Joannavh
in
Endometriosis UK
7 years ago
Confused.com
Hi all. Been a long time since I have been on here. Been plodding on for a little while following my laparoscopy 2 years ago, which diagnosed endo. Since then I have tried the contraceptive pill, the Mirena coil, zoladex injections along with painkillers. I have still had irregular bleeding (can bleed
Hi all. Been a long time since I have been on here. Been plodding on for a little while following my laparoscopy 2 years ago, which diagnosed endo. Since then I have tried the contraceptive pill, the Mirena coil, zoladex injections along with painkillers. I have still had irregular bleeding (can bleed
rach3110
in
Endometriosis UK
7 years ago
TERF ALERT: I've not had a good experience accessing help and support.
My endo and fibroids surgery is in 3 weeks from today, and I am very scared. I am crying a lot at little things no doubt because of this underlying fear and have tried to access the central London support group. However, when I responded to the email that was addressed "Hi Ladies" saying that I don't
My endo and fibroids surgery is in 3 weeks from today, and I am very scared. I am crying a lot at little things no doubt because of this underlying fear and have tried to access the central London support group. However, when I responded to the email that was addressed "Hi Ladies" saying that I don't
sclptrss
in
Endometriosis UK
7 years ago
New member 3 months into treatment
Hi everyone, I'm 59 years old and have prostate cancer. Following some occasions having trouble passing urine I noticed blood spots in the loo, so off to the GP. Back in March my first PSA was 232!! After 2 months on Zoladex implant it has come down to 49 so going the right way. The hormone treatment
Hi everyone, I'm 59 years old and have prostate cancer. Following some occasions having trouble passing urine I noticed blood spots in the loo, so off to the GP. Back in March my first PSA was 232!! After 2 months on Zoladex implant it has come down to 49 so going the right way. The hormone treatment
Muzzman
in
Fight Prostate Cancer
7 years ago
How long did it take your period to return after finishing Zoladex?
I had three 12 week zoladex injections. I had my last one 7.5 weeks ago and although the pain has amped up there is no sign of my period. Just wondering if anyone has an experience of how long it took their period to return after Zoladex? Thank you x
I had three 12 week zoladex injections. I had my last one 7.5 weeks ago and although the pain has amped up there is no sign of my period. Just wondering if anyone has an experience of how long it took their period to return after Zoladex? Thank you x
Reen_Bean
in
Endometriosis UK
7 years ago
Meds change
Hi everyone, Hope you are all having an enjoyable bank holiday Monday. I have now had 5 weeks off the meds, and my Oncologist has changed them for Tamoxifen, due to the severe side effects from the Zoladex and Letrozole. I am under no illusions that there won't be any side effects with Tamoxifen, I
Hi everyone, Hope you are all having an enjoyable bank holiday Monday. I have now had 5 weeks off the meds, and my Oncologist has changed them for Tamoxifen, due to the severe side effects from the Zoladex and Letrozole. I am under no illusions that there won't be any side effects with Tamoxifen, I
Louisejr
in
My Breast Cancer Community
7 years ago
Prostate cancer history
I was given biopsy of the prostate in 2005 with positive result Gleason score of 7 with PSA of 8 .Started 3 monthly injections of zoladex then 32 treatments of radiotherapy .Then follow up assessment afterwards at 3months. With Psa down to 0.1 I then had assessment every 6 months Psa remained low for
I was given biopsy of the prostate in 2005 with positive result Gleason score of 7 with PSA of 8 .Started 3 monthly injections of zoladex then 32 treatments of radiotherapy .Then follow up assessment afterwards at 3months. With Psa down to 0.1 I then had assessment every 6 months Psa remained low for
bobhicks
in
Advanced Prostate Cancer
7 years ago
Zoladex then what?
I have been having monthly zoladex injections for 18months now. It seems the last few months I have had pain creeping back. Can this happen? I'm looking at coming off it as I've been on it such a long time plus the side effects are not very pleasant. I must admit I'm scared of coming off it as I know
I have been having monthly zoladex injections for 18months now. It seems the last few months I have had pain creeping back. Can this happen? I'm looking at coming off it as I've been on it such a long time plus the side effects are not very pleasant. I must admit I'm scared of coming off it as I know
kellymarie26
in
Endometriosis UK
7 years ago
Feeling deflated.
So today i had my fourth post op appointment with my BSGE specialist. Endo has been a right pain for me. First off i got messed about via NHS, my surgeons went in blind, my surgery was upped to major during surgery and well ive been left worse off. Ive tried the mini pill, it lead to constant spotting
So today i had my fourth post op appointment with my BSGE specialist. Endo has been a right pain for me. First off i got messed about via NHS, my surgeons went in blind, my surgery was upped to major during surgery and well ive been left worse off. Ive tried the mini pill, it lead to constant spotting
Heloo85
in
Endometriosis UK
7 years ago
Zoladex and estrogen
Hi all, I am new here and in need of a bit of advice! I am 26 and have been on zoladex for around 18 months now. I was told to take estrogen tablets alongside this but they made me bleed so badly that I stopped taking them. Time has rather escaped me and I have been so busy with work etc. that I haven't
Hi all, I am new here and in need of a bit of advice! I am 26 and have been on zoladex for around 18 months now. I was told to take estrogen tablets alongside this but they made me bleed so badly that I stopped taking them. Time has rather escaped me and I have been so busy with work etc. that I haven't
Emjo4
in
Endometriosis UK
7 years ago
To take early retirement or not?
Prepare for a little ramble. I am wondering how many of the people who post here have remained (or managed to remain) in employment. I am 57, with 8 years to go until I officially retire from my job as an academic. My PSA has been as high as 432, though I have no bone mets (the mets are apparently
Prepare for a little ramble. I am wondering how many of the people who post here have remained (or managed to remain) in employment. I am 57, with 8 years to go until I officially retire from my job as an academic. My PSA has been as high as 432, though I have no bone mets (the mets are apparently
BrentW
in
Advanced Prostate Cancer
7 years ago
Advice of what to do next?
Hello I am new and have been reading everyone's posts and finding them very helpful. I got diagnosed last July after laparoscopy but unfortunately they only removed one endo spot. I was told it was through my blood vessels in my womb ovaries and tubes and it couldn't be removed without taking the organs
Hello I am new and have been reading everyone's posts and finding them very helpful. I got diagnosed last July after laparoscopy but unfortunately they only removed one endo spot. I was told it was through my blood vessels in my womb ovaries and tubes and it couldn't be removed without taking the organs
Rach1701
in
Endometriosis UK
7 years ago
Query about zoladex/pros tap and ca125
Hi, I'm new here. Severe endo diagnosed two years ago, plus right ovary removed with large dermoid cyst and endometrioma drained on left ovary as too stuck to organs to remove safely). I'm just finishing my 2nd 6 month treatment with zoladex. I have a question about ca125 and this treatment. When
Hi, I'm new here. Severe endo diagnosed two years ago, plus right ovary removed with large dermoid cyst and endometrioma drained on left ovary as too stuck to organs to remove safely). I'm just finishing my 2nd 6 month treatment with zoladex. I have a question about ca125 and this treatment. When
girli1111
in
Endometriosis UK
7 years ago
Zoladex - 6 months done... what are the possible aftermath effects of the zoladex leaving my system
Hi, I was diagnosed in 2006 following laparoscopy. The laparoscopy identified large areas of endometriosis with large amounts attaching the uterus to the bowel. So have done every treatment, and then 6 months of zoladex. The consultant had said they would generally hold off the hysterectomy until I
Hi, I was diagnosed in 2006 following laparoscopy. The laparoscopy identified large areas of endometriosis with large amounts attaching the uterus to the bowel. So have done every treatment, and then 6 months of zoladex. The consultant had said they would generally hold off the hysterectomy until I
EmW1978
in
Endometriosis UK
7 years ago
Fed up 😩
Hi girls. So I'm so frustrated today as my endo has reared its head 10 fold :(. The last few months my pain has been manageable despite removal of all hormone treatments as TTC. This week I found out the reason for this: I'm not ovulating. Bitter pill to swallow as on one hand I was thrilled that
Hi girls. So I'm so frustrated today as my endo has reared its head 10 fold :(. The last few months my pain has been manageable despite removal of all hormone treatments as TTC. This week I found out the reason for this: I'm not ovulating. Bitter pill to swallow as on one hand I was thrilled that
Jessica21
in
Endometriosis UK
7 years ago
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